NMO support

Previous Regional and National Patient Meetings 

The IPOPI Latin American Patients Meeting

The Latin American Patients Meeting was organised back to back with the LASID Congress on 5-6 October 2017. The two-day intensive meeting included educational lectures and brainstorming workshops for the patient representatives. The 70 participants to the meeting included patient leaders from IPOPI Latin American national member organisations (NMOs), but also patients and parents from other countries, other PID and Rare Disease organisations, nurses and physicians from all over Latin America.

2nd IPOPI National Vietnamese PID Patients & Doctors Meeting

IPOPI organised two meetings in Hanoi, Vietnam on December 8-9, 2017, in close collaboration with the National Children’s Hospital and the Paediatric Association of Vietnam. The first meeting took place in the National Children’s Hospital in Hanoi and aimed at educating healthcare professionals and medical students about primary immunodeficiencies (PIDs). The second meeting was aimed at PID patients from all over Vietnam with a programme consisting of educational lectures and discussions.

This meeting was possible thanks to the support from Kedrion:

IPOPI National PID Meeting in Indonesia
PID Patients meeting & Clinical care meeting

IPOPI held a two-day meeting in Jakarta, Indonesia, in collaboration with the Indonesian PID Patient Society (IPIPS) and the Mangunkusumo Hospital in Jakarta on 6-7 May 2017. The first day was dedicated to patients and the second to physicians.

This meeting was possible thanks to funds from the IPOPI Bob LeBien Asian Development Programme and help from:

IPOPI Regional African Patients Meeting

IPOPI Regional African meeting was organised back to back with the ASID Congress on April 2, 2017. This meeting was divided into three sessions and brought together PID patients and patient representatives from six African countries.

Kindly sponsored by:

1st Taiwanese Primary Immunodeficiencies Patients-Doctors Meeting, October 29, 2016

The meeting was very effective in identifying the key facts and next steps for the Taiwanese PID community.

Kindly sponsored by:

1st Philippine PID Patients-Doctors National Meeting held in Manila, Philippines November 5-6 2016

The national PID meeting was the first of its kind in the Philippines bringing together patients, family members, medical students and doctors from different regions of the country. It was an opportunity to exchange concerns in PID care and to a unanimous agreement that there is a need to launch a national patient organisation.

IPOPI First Vietnamese Primary Immunodeficiency Patients-Doctors Meeting, 3rd December 2015

Kindly sponsored by:

Bob LeBien – IPOPI Asian Development Programme

IPOPI First Indonesian PID Patients-Doctors National Meeting, Jakarta, Indonesia, 2 May 2015

Brazil Political Event 11th of November 2014

Kindly sponsored by:

IPOPI First Singapore National PID Patient Workshop, 13 September 2014

Kindly sponsored by:

Bob LeBien – IPOPI Asian Development Programme

IPOPI Eastern European Regional Meeting, 15 of March 2014

Kindly sponsored by:

IPOPI-MSAI First National Malaysian PID Patients Workshop, 27 of October 2013

Kindly sponsored by:

Bob LeBien – IPOPI Asian Development Programme

IPOPI Awareness Campaign Workshop, Sibiu, Romania, 11 of October 2013

Kindly sponsored by:

IPOPI First Thai PID Patients Meeting, Bangkok, Thailand, 29 of September 2013

Kindly sponsored by:

Bob LeBien – IPOPI Asian Development Programme

IPOPI Regional Patient Meeting ASID Congress, Sun City, South Africa, 7 of June 2013

Kindly sponsored by:

IPOPI Awareness Campaign Workshop, São Paulo, Brazil, 17 of May 2013

Kindly sponsored by:

IPOPI Awareness Campaign Workshop, Barcelona, Spain, 17 of November 2012

Kindly sponsored by:

IPOPI Advocacy and Media Training Workshop, Belgrade, Serbia, 14 and 15 of September 2012

Kindly sponsored by:

IPOPI Awareness Campaign Workshop, Dublin, Ireland, 12 May 2012

Kindly sponsored by: