NMO support
Previous Regional and National Patient Meetings
The 3rd Vietnamese National PID Doctors and Patients meeting
IPOPI has been continuing its PID awareness raising activities in South East Asia, most recently with the 3rd Vietnamese National PID Doctors and Patients meeting, following the 1st and 2nd meetings in 2015 and 2017. This two-day meeting took place on 23-24 November 2019 at the Hotel Nikko Saigon, Ho Chi Minh (HCMC), and was organised in close collaboration with the HCMC Children’s Hospital 1.
This meeting was possible thanks to the support from Kedrion.
The 11th National Clinical Immunology Symposium & The 2nd International Conference on PIDs
IPOPI had the great pleasure to co-organise and support the 11th National Clinical Immunology Symposium (NACLIS), together with the Malaysian Society for Allergy and Immunology (MSAI) and with IPOPI’s Malaysian member, MyPOPI, among others. The symposium took place on November 20-21, 2019, in the newly opened Hospital Pengajar University Putra Malaysia (HPUPM), and welcomed both national, regional and international speakers.
IPOPI Regional Latin American PID Patients Meeting – 10-11 October 2019, Cancún, Mexico
Every other year IPOPI organises its Regional Latin American PID Patients Meeting in parallel to the biennial Latin American Society for Immunodeficiencies (LASID) congress, and 2019 was no exception. This year’s edition took place in Cancún (Mexico) 10th-11th October, and brought together patient representatives from a great majority of IPOPI’s Latin American National Member Organisations (NMOs). The successful meeting offered educational lectures, various workshops and a networking dinner for the participants, giving them an opportunity to learn, to share and to be challenged by new scenarios in the workshops.
Would you like to know more about this meeting? Below you find links to the programme, presentations, the meeting report and the pictures!
This meeting was kindly supported by
IPOPI Regional African Patients Meeting – 11-12th April, Dakar, Senegal
IPOPI held a Regional African Patients Meeting in Dakar, Senegal during the 11th and 12th of April 2019. The meeting was organised back to back with the 6th ASID Congress (African Society for Immunodeficiencies). This meeting offered a unique opportunity for patient representatives in the region to interact, and to experience both interactive workshops and educational lectures to increase the understanding of the conditions of PID patients.
This meeting was partly supported through an unrestricted grant from
IPOPI 2nd Regional Asian PID Patients and Doctors Meeting
IPOPI organised its second Regional Patients and Doctors meeting in Asia on November 10-11 in Bangkok, Thailand. The two-day meeting was organised back to back with FIMSA (Federation of Immunological Societies of Asia-Oceania) Congress 2018. The first day of the meeting was geared toward doctors and the second day was dedicated to patient education and included a workshop on World PI Week.
This meeting was possible thanks to the support from Shire.
IPOPI National Philippine Strategic Meeting
IPOPI and PhilPOPI organised a small-scale meeting in Manila on September 29, 2018, to help the associate Philippine National Member Organisation (NMO) to activate and find strategies and concrete action points for the future.
IPOPI South East Asia Advocacy and Media Training Workshop
IPOPI held a South East Asia Advocacy & Media Workshop in Kuala Lumpur (Malaysia), on September 22 – 23, 2018.
The workshop was preceded by a joint NACLIS-IPOPI meeting.
The workshop was organised with the generous support of CSL Behring.
The IPOPI Latin American Patients Meeting
The Latin American Patients Meeting was organised back to back with the LASID Congress on 5-6 October 2017. The two-day intensive meeting included educational lectures and brainstorming workshops for the patient representatives. The 70 participants to the meeting included patient leaders from IPOPI Latin American national member organisations (NMOs), but also patients and parents from other countries, other PID and Rare Disease organisations, nurses and physicians from all over Latin America.
2nd IPOPI National Vietnamese PID Patients & Doctors Meeting
IPOPI organised two meetings in Hanoi, Vietnam on December 8-9, 2017, in close collaboration with the National Children’s Hospital and the Paediatric Association of Vietnam. The first meeting took place in the National Children’s Hospital in Hanoi and aimed at educating healthcare professionals and medical students about primary immunodeficiencies (PIDs). The second meeting was aimed at PID patients from all over Vietnam with a programme consisting of educational lectures and discussions.
This meeting was possible thanks to the support from Kedrion:
IPOPI National PID Meeting in Indonesia
PID Patients meeting & Clinical care meeting
IPOPI held a two-day meeting in Jakarta, Indonesia, in collaboration with the Indonesian PID Patient Society (IPIPS) and the Mangunkusumo Hospital in Jakarta on 6-7 May 2017. The first day was dedicated to patients and the second to physicians.
This meeting was possible thanks to funds from the IPOPI Bob LeBien Asian Development Programme and help from:
IPOPI Regional African Patients Meeting
IPOPI Regional African meeting was organised back to back with the ASID Congress on April 2, 2017. This meeting was divided into three sessions and brought together PID patients and patient representatives from six African countries.
Kindly sponsored by:
1st Taiwanese Primary Immunodeficiencies Patients-Doctors Meeting, October 29, 2016
The meeting was very effective in identifying the key facts and next steps for the Taiwanese PID community.
Kindly sponsored by:
1st Philippine PID Patients-Doctors National Meeting held in Manila, Philippines November 5-6 2016
The national PID meeting was the first of its kind in the Philippines bringing together patients, family members, medical students and doctors from different regions of the country. It was an opportunity to exchange concerns in PID care and to a unanimous agreement that there is a need to launch a national patient organisation.
IPOPI First Vietnamese Primary Immunodeficiency Patients-Doctors Meeting, 3rd December 2015
Kindly sponsored by:
Bob LeBien – IPOPI Asian Development Programme
IPOPI First Indonesian PID Patients-Doctors National Meeting, Jakarta, Indonesia, 2 May 2015
Brazil Political Event 11th of November 2014
Kindly sponsored by:
IPOPI First Singapore National PID Patient Workshop, 13 September 2014
Kindly sponsored by:
Bob LeBien – IPOPI Asian Development Programme
IPOPI Eastern European Regional Meeting, 15 of March 2014
Kindly sponsored by:
IPOPI-MSAI First National Malaysian PID Patients Workshop, 27 of October 2013
Kindly sponsored by:
Bob LeBien – IPOPI Asian Development Programme
IPOPI Awareness Campaign Workshop, Sibiu, Romania, 11 of October 2013
Kindly sponsored by:
IPOPI First Thai PID Patients Meeting, Bangkok, Thailand, 29 of September 2013
- Programme
- Presentations
- Meeting Report
Kindly sponsored by:
Bob LeBien – IPOPI Asian Development Programme
IPOPI Regional Patient Meeting ASID Congress, Sun City, South Africa, 7 of June 2013
Kindly sponsored by:
IPOPI Awareness Campaign Workshop, São Paulo, Brazil, 17 of May 2013
- Programme
- Presentations
- Meeting Report
- Participants List
Kindly sponsored by:
IPOPI Awareness Campaign Workshop, Barcelona, Spain, 17 of November 2012
Kindly sponsored by:
IPOPI Advocacy and Media Training Workshop, Belgrade, Serbia, 14 and 15 of September 2012
Kindly sponsored by:
IPOPI Awareness Campaign Workshop, Dublin, Ireland, 12 May 2012
Kindly sponsored by: