
IPOPI welcomes the Commission’s proposal for a Regulation on Substances of Human Origin
The International Patient Organisation for Primary Immunodeficiencies…
29th July 2022/by IPOPI
NEWS
International Neonatal Screening Day (INSD) website comes to life!
Visit article
3rd June 2022/by IPOPI
NEWS
Recomb is developing promising gene therapy for RAG1-SCID
Visit article
3rd June 2022/by IPOPI
NEWS
EMA renews IPOPI membership at PCWP
Read more here
12th May 2022/by IPOPI
NEWS
‘Towards Achieving Equity and Innovation in Newborn Screening across Europe’
Screen4Rare collaborations
11th May 2022/by IPOPI
NEWS
IPOPI is ready to play Q-ID!
So what is Q-ID all about?
- a quiz-based app for everyone to play
- a fun and easy game-based learning tool for PIDs
- join in challenging others to beat your score
28th February 2022/by IPOPI- a quiz-based app for everyone to play
- a fun and easy game-based learning tool for PIDs
- join in challenging others to beat your score

NEWS
Screen4Rare celebrates Rare Disease Day
In light of Rare Disease Day, Screen4Rare advocates the importance of newborn screening (NBS) as a key element to access to care.
28th February 2022/by IPOPINEWS
Three new IPOPI PID information leaflets published
- Essentials of PID Diagnosis
- Rheumatological, Autoimmune & Autoinflammatory Crossovers
- Targeted Therapies for PIDs
10th February 2022/by dc- Rheumatological, Autoimmune & Autoinflammatory Crossovers
- Targeted Therapies for PIDs

NEWS
New publication presenting the PID environment in 60 countries
New publication: The global PID environment
Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index
24th November 2021/by IPOPIRead IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index

News
IPIC 5th Edition – Regular registration is open until 18 April 2022
Regular registration is open until April 18th
10th June 2021/by IPOPI
News
IPOPI’s 2020 Review of Activities and Achievements
GPM, Webinars, PID Forum and more, this past 2020
22nd October 2021/by IPOPI
calendar
12-15 Oct, 2022
XVII Global Patients’ Meeting 2022
Gothenburg, Sweden
IPOPI
19-20 Nov, 2022
IPOPI Regional Asian Meeting
Kuala Lumpur, Malaysia
IPOPI