NEWS
AGORA: New consortium for improved gene therapy access in Europe
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IPOPI welcomes the Commission’s proposal for a Regulation on Substances of Human Origin
The International Patient Organisation for Primary Immunodeficiencies…
NEWS
International Neonatal Screening Day (INSD) website comes to life!
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NEWS
Recomb is developing promising gene therapy for RAG1-SCID
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NEWS
EMA renews IPOPI membership at PCWP
Read more here
NEWS
Statement of solidarity and support to those affected by the war in Ukraine
ESID, IPOPI together with INGID and J Project
NEWS
IPOPI is ready to play Q-ID!
So what is Q-ID all about?
- a quiz-based app for everyone to play
- a fun and easy game-based learning tool for PIDs
- join in challenging others to beat your score
- a quiz-based app for everyone to play
- a fun and easy game-based learning tool for PIDs
- join in challenging others to beat your score
NEWS
Three new IPOPI PID information leaflets published
- Essentials of PID Diagnosis
- Rheumatological, Autoimmune & Autoinflammatory Crossovers
- Targeted Therapies for PIDs
- Rheumatological, Autoimmune & Autoinflammatory Crossovers
- Targeted Therapies for PIDs
HIGHLIGHT
New publication presenting the PID environment in 60 countries
New publication: The global PID environment
Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index
Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index
calendar
12-15 Oct, 2022
XVII Global Patients’ Meeting 2022
Gothenburg, Sweden
IPOPI
19-20 Nov, 2022
IPOPI Regional Asian Meeting
Kuala Lumpur, Malaysia
IPOPI
