AGORA: New consortium for improved gene therapy access in Europe

Visit article
23rd September 2022/by IPOPI

IPOPI welcomes the Commission’s proposal for a Regulation on Substances of Human Origin

The International Patient Organisation for Primary Immunodeficiencies…
29th July 2022/by IPOPI

International Neonatal Screening Day (INSD) website comes to life!

Visit article
3rd June 2022/by IPOPI

Recomb is developing promising gene therapy for RAG1-SCID

Visit article
3rd June 2022/by IPOPI

EMA renews IPOPI membership at PCWP

Read more here
12th May 2022/by IPOPI

Statement of solidarity and support to those affected by the war in Ukraine

ESID, IPOPI together with INGID and J Project
4th March 2022/by IPOPI

IPOPI is ready to play Q-ID!

So what is Q-ID all about?
- a quiz-based app for everyone to play
- a fun and easy game-based learning tool for PIDs
- join in challenging others to beat your score
28th February 2022/by IPOPI

Three new IPOPI PID information leaflets published

- Essentials of PID Diagnosis
- Rheumatological, Autoimmune & Autoinflammatory Crossovers
- Targeted Therapies for PIDs
10th February 2022/by IPOPI

New publication presenting the PID environment in 60 countries

New publication: The global PID environment
Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index
24th November 2021/by IPOPI

12-15 Oct, 2022

XVII Global Patients’ Meeting 2022

Gothenburg, Sweden


19-20 Nov, 2022

IPOPI Regional Asian Meeting

Kuala Lumpur, Malaysia


Copyright © 2021 IPOPI. All Rights Reserved.