IPOPI welcomes the Commission’s proposal for a Regulation on Substances of Human Origin
The International Patient Organisation for Primary Immunodeficiencies…
NEWS
International Neonatal Screening Day (INSD) website comes to life!
Visit article
NEWS
Recomb is developing promising gene therapy for RAG1-SCID
Visit article
NEWS
EMA renews IPOPI membership at PCWP
Read more here
NEWS
‘Towards Achieving Equity and Innovation in Newborn Screening across Europe’
Screen4Rare collaborations
NEWS
IPOPI is ready to play Q-ID!
So what is Q-ID all about?
- a quiz-based app for everyone to play
- a fun and easy game-based learning tool for PIDs
- join in challenging others to beat your score
- a quiz-based app for everyone to play
- a fun and easy game-based learning tool for PIDs
- join in challenging others to beat your score
NEWS
Screen4Rare celebrates Rare Disease Day
In light of Rare Disease Day, Screen4Rare advocates the importance of newborn screening (NBS) as a key element to access to care.
NEWS
Three new IPOPI PID information leaflets published
- Essentials of PID Diagnosis
- Rheumatological, Autoimmune & Autoinflammatory Crossovers
- Targeted Therapies for PIDs
- Rheumatological, Autoimmune & Autoinflammatory Crossovers
- Targeted Therapies for PIDs
NEWS
New publication presenting the PID environment in 60 countries
New publication: The global PID environment
Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index
Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index
News
IPIC 5th Edition – Regular registration is open until 18 April 2022
Regular registration is open until April 18th
News
IPOPI’s 2020 Review of Activities and Achievements
GPM, Webinars, PID Forum and more, this past 2020
calendar
12-15 Oct, 2022
XVII Global Patients’ Meeting 2022
Gothenburg, Sweden
IPOPI
19-20 Nov, 2022
IPOPI Regional Asian Meeting
Kuala Lumpur, Malaysia
IPOPI
