PID awareness
Objective 3: To raise PID awareness globally
World Primary Immunodeficiencies Week – WPIW
World Primary Immunodeficiencies Week is a global campaign aimed at raising awareness and improving diagnosis and treatment of primary immunodeficiencies. The campaign is organised every year in April 22-29.
IPOPI’s 2017 WPIW Policy Event took place at the European Parliament on April 25 and focused on the Availability and access to immunoglobulin replacement therapies. The event brought together European, African, Asian and EU neighboring countries patient organisations, healthcare professionals, researchers, and policy-makers.
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IPOPI supported 21 national WPIW campaigns and event that included medical symposia, members’ get-togethers, family days and camps, publication of information materials, blood or plasma donation days, policy events, and many more!
IPOPI TV
Stay tuned to IPOPI TV to watch new PID community videos!
IPOPI is producing patient testimonials, in cooperation with its NMOs, in their native languages. German, Spanish, Portuguese and Dutch videos featuring patient, parent and physicians are already online. Polish and Swedish testimonials will follow.
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IPOPI e-News
Our quarterly electronic newsletter is released in March, June, September and December and remains our main periodic communications tool.
It comprises three specific sessions: IPOPI’s News, Around the world and NMO Focus. IPOPI uses this important tool to report its actions and achievements and those of its members.
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