Mission and objectives
IPOPI is a non-profit international organisation and the leading advocate for patients living with primary immunodeficiencies (PID) and associated conditions worldwide, working in collaboration with patients, doctors, politicians, regulators, the pharmaceutical industry and other relevant stakeholders.
IPOPI is the Association of National PID patient organisations dedicated to raising awareness and promoting equitable access to early diagnosis and personalised treatment through global collaborations, partnerships, and innovative solutions.
IPOPI Strategic Objectives 2026-2030
- Expand global access to early diagnosis and patient-centred care for PIDs and associated conditions through advocacy, awareness and innovation.
- Strengthen NMO capacity-building programmes, deepen regional collaboration and support leadership development.
- Drive global education and data-sharing initiatives to promote knowledge of PID and associated conditions, improve clinical care, and advance research.
- Expand collaborative initiatives and partnerships to address the growing intersection of global health, innovative technologies, climate change, and mental health in the PID and associated conditions community.
