IPOPI is a non-profit international organisation and the leading advocate for primary immunodeficiency (PID) patients worldwide working in collaboration with patients, doctors, politicians, regulators, pharmaceutical industry and other relevant stakeholders.
IPOPI is the Association of national PID patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency patients worldwide through global collaboration.
IPOPI Strategic Objectives 2021-2025
- Improve access to early diagnosis and patient-centred care through advocacy and awareness
- Build capacity and support IPOPI’s national member organisations to improve living conditions for people living with PID
- Educate, promote knowledge and data sharing to increase understanding of PID, improve clinical care and advance research
- Strengthen multi-stakeholder cooperation to optimize all programmes and activities