News

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IPIC2017 – Join us in Dubai!

IPIC2017 which will take place in the vibrant city of Dubai on 8-10 November 2017! The congress programme promises to be even more exciting this time featuring…
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IPOPI 25th Anniversary

IPOPI is celebrating its 25th Anniversary and we pleased to celebrate this major milestone with the...
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Growing older with a PID

IPOPI organised its 9th EU PID Forum on ‘Growing older with a PID: transition of care and ageing’ at the European Parliament on June 22, 2017. The meeting was hosted by Members of the European Parliament (MEPs) Dr Elena Gentile (S&D Italy), supported by Mr Carlos Zorrinho (S&D Portugal) and counted with the participation of Ms Sirpa Pietikainen (EPP, Finland).
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IPOPI National PID Events in Indonesia

IPOPI held a two-day meeting in Jakarta, Indonesia, in collaboration with the Indonesian PID Patient Society (IPIPS), the Mangunkusumo Hospital in Jakarta and…
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SCID Newborn Screening

IPOPI, PID UK (UK primary immunodeficiencies patient group) and Prof Bobby Gaspar organised a Parliamentary Reception on newborn screening for Severe Combined…
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Eurordis Membership Meeting

Leire Solis represented IPOPI at the Eurordis (Rare Diseases Europe) Membership Meeting held in Budapest on May 19-20, 2017. Before the Membership Meeting a session…
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Don’t Brexit on rare diseases patients

The International Organisation for Primary Immunodeficiencies (IPOPI) is launching today a set of Recommendations for UK and EU policy makers to protect rare disease…
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Rare Disease day

IPOPI joins the rest of the primary immunodeficiency (PID) community in celebrating Rare Disease day today! This year's campaign focuses on the importance of increasing research in rare diseases.
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SCID and rare diseases

Glenis Willmott MEP published an article on 21 February on the potential impact of Brexit on rare disease research and people suffering with less prevalent disorders.…
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European Reference Network

European Member States approved on December 15 the proposal for a Rare Immunodeficiency, Autoinflammatory and Autoimmune (RITA) European Reference Network. IPOPI…
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SCID newborn screening

The New Zealand Health Minister, Jonathan Coleman, announced on 7 November 2016 the implementation of newborn screening for severe combined immunodeficiencies (SCID)…
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Shire and Baxalta Complete Merger

Shire today completed its previously announced combination with Baxalta forming the leading global company in rare diseases therapies including for primary immunodeficiencies.…
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SCIDNET website goes live

SCIDNET, a partnership initiative in which IPOPI is participating, has launched its new website www.scidnet.eu SCIDNET is an ambitious project, financially supported…
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IPOPI TV launched today

IPOPI is pleased to announce the launch of IPOPI TV, a brand new online tool for the PID community! You can now find all IPOPI’s video content including patient…
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Shire and Baxalta announce merger

Shire plc and Baxalta Incorporated announced today that both companies have reached an agreement under which Shire will combine with Baxalta. This union will result…
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New SCID website page

IPOPI is proud to announce the launch of a new website section dedicated to newborn screening for Severe Combined Immunodeficiencies (NBS for SCID). This new…
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Publication of PIDs Principles of Care

Over the last two years, IPOPI combined its efforts with a worldwide multi-disciplinary team of specialists to develop the “Primary Immunodeficiencies Principles…
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PID moving forward in South East Asia

IPOPI in collaboration with the Care-for-Rare Foundation, co-organised the “First Care-for-Rare European-South East Asian PID Meeting – from Bench to Bedside”…
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Publication of PIDs -Principles of Care

Over the last two years, IPOPI combined its efforts with a worldwide multi-disciplinary team of specialists to develop the “Primary Immunodeficiencies Principles…
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IPOPI Autumn e-News is out!

The Autumn 2014 edition of IPOPI's e-News is out and can be accessed here. Check out the new section NMO Focus with an article about the Portuguese NMO APDIP and…
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IPOPI joins Health First Europe

IPOPI is now a member of Health First Europe (HFE). As a follow-up from the participation in HFE’s General Assembly IPOPI requested membership to this alliance…