News

Renewal of IPOPI’s membership at the PCWP

Renewal of IPOPI’s membership at the PCWP

Renewal of IPOPI’s membership at the PCWP

Screen4Rare collaborations

Q-ID - the quiz app for the PID community!

Essentials of PID Diagnosis, Rheumatological, Autoimmune & Autoinflammatory Crossovers, and Targeted Therapies for PIDs

Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index

GPM, Webinars, PID Forum and more, this past 2020

PID patients true stories dedicated to addressing the worldwide need for more regionally balanced plasma collection

New stakeholder of the European Alliance for Transformative Therapies

Launch Meeting of the ERN Expert Platform on NBS and the Slovenian Presidency Event on NBS

IPOPI’s Board of Directors announces the passing of former Board Member Sven Fandrup

New deadline - September 30!

Read the Position Paper

IPOPI, in partnership with ISNS and the ESID, announces the launch of the first International Neonatal Screening Day on June 28, 2021.

Two papers aimed for NMO representatives use in their advocacy work on access to immunoglobulin replacement therapies

S4R organised two high-level meetings

Mini documentary dedicated to the crossover of primary immunodeficiencies (PID) and autoinflammatory and rheumatological manifestations

IPOPI is delighted to invite you all to participate in the next International Primary Immunodeficiencies Congress - IPIC 5th Edition -  which will be held in Vilamoura (Algarve), Portugal, on 27-29 April 2022! IPIC was initially planned to take place in Germany in November 2021.

PIDs and Skin, PIDs and Cancer, Hyper IgE Syndrome, Ataxia-Telangiectasia, A Guide for Hepatologists and Genetic Diagnosis of PIDs

For the second year in a row, tests for diagnosing primary immunodeficiencies (PIDs) have been included in this Model List.

In the last 24 months, IPOPI undertook a thorough and comprehensive process to develop its new 5-year strategic plan for the 2021-2025 period.

IPOPI launched the COVID-19 Learning Expedition (LEX) in July 2020, to identify, analyse and provide recommendations on issues brought about by the COVID-19 pandemic for patients with primary immunodeficiency (PID).

An interactive tool built on 6 key principles of care that measures the status of the PID healthcare environment across the globe

IPOPI Clinical Care Webinars are aimed at patient group leaders, clinicians and nurses with an interest in PID clinical care management

IPOPI had the great pleasure of welcoming 200 delegates from 40 countries from all over the world to the XVI Global Patients Meeting (GPM).