News
COVID-19 Learning Expedition Report released
IPOPI launched the COVID-19 Learning Expedition (LEX) in July 2020, to identify, analyse and provide recommendations on issues brought about by the COVID-19 pandemic for patients with primary immunodeficiency (PID).
IPOPI’s PID Life Index – the PID environment around the globe
An interactive tool built on 6 key principles of care that measures the status of the PID healthcare environment across the globe
IPOPI Clinical Care Webinars – year-round PID Education
IPOPI Clinical Care Webinars are aimed at patient group leaders, clinicians and nurses with an interest in PID clinical care management
IPOPI XVI Global Patients Meeting – First ever online!
IPOPI has decided to hold its 2020 Global Patients Meeting online!
PID GENIUS, the personal assistant to PID patients
IPOPI launched PID GENIUS, the first mobile application developed by a PID patient organisation for worldwide use.
IPIC2019 Together in Madrid!
IPIC2019 will be held in Europe in the cosmopolitan city of Madrid on 6-8 November 2019!
IPOPI 25th Anniversary
IPOPI is celebrating its 25th Anniversary and we pleased to celebrate this major milestone with the...
Growing older with a PID
IPOPI organised its 9th EU PID Forum on ‘Growing older with a PID: transition of care and ageing’ at the European Parliament on June 22, 2017. The meeting was hosted by Members of the European Parliament (MEPs) Dr Elena Gentile (S&D Italy), supported by Mr Carlos Zorrinho (S&D Portugal) and counted with the participation of Ms Sirpa Pietikainen (EPP, Finland).
Rare Disease day
IPOPI joins the rest of the primary immunodeficiency (PID) community in celebrating Rare Disease day today! This year's campaign focuses on the importance of increasing research in rare diseases.
