News

GPM, Webinars, PID Forum and more, this past 2020

Log symptoms, update prescriptions, follow treatments and view daily health summaries

PID patients true stories dedicated to addressing the worldwide need for more regionally balanced plasma collection

New stakeholder of the European Alliance for Transformative Therapies

Launch Meeting of the ERN Expert Platform on NBS and the Slovenian Presidency Event on NBS

IPOPI’s Board of Directors announces the passing of former Board Member Sven Fandrup

New deadline - September 30!

Read the Position Paper

IPOPI, in partnership with ISNS and the ESID, announces the launch of the first International Neonatal Screening Day on June 28, 2021.

You can now register and submit your abstract

Two papers aimed for NMO representatives use in their advocacy work on access to immunoglobulin replacement therapies

S4R organised two high-level meetings

Mini documentary dedicated to the crossover of primary immunodeficiencies (PID) and autoinflammatory and rheumatological manifestations

IPOPI is delighted to invite you all to participate in the next International Primary Immunodeficiencies Congress - IPIC 5th Edition -  which will be held in Vilamoura (Algarve), Portugal, on 27-29 April 2022! IPIC was initially planned to take place in Germany in November 2021.

PIDs and Skin, PIDs and Cancer, Hyper IgE Syndrome, Ataxia-Telangiectasia, A Guide for Hepatologists and Genetic Diagnosis of PIDs

For the second year in a row, tests for diagnosing primary immunodeficiencies (PIDs) have been included in this Model List.

In the last 24 months, IPOPI undertook a thorough and comprehensive process to develop its new 5-year strategic plan for the 2021-2025 period.

IPOPI launched the COVID-19 Learning Expedition (LEX) in July 2020, to identify, analyse and provide recommendations on issues brought about by the COVID-19 pandemic for patients with primary immunodeficiency (PID).

An interactive tool built on 6 key principles of care that measures the status of the PID healthcare environment across the globe

IPOPI Clinical Care Webinars are aimed at patient group leaders, clinicians and nurses with an interest in PID clinical care management

IPOPI had the great pleasure of welcoming 200 delegates from 40 countries from all over the world to the XVI Global Patients Meeting (GPM).

IPOPI launched PID GENIUS, the first mobile application developed by a PID patient organisation for worldwide use.

IPIC2019 will be held in Europe in the cosmopolitan city of Madrid on 6-8 November 2019!

IPOPI is celebrating its 25th Anniversary and we pleased to celebrate this major milestone with the...

IPOPI organised its 9th EU PID Forum on ‘Growing older with a PID: transition of care and ageing’ at the European Parliament on June 22, 2017. The meeting was hosted by Members of the European Parliament (MEPs) Dr Elena Gentile (S&D Italy), supported by Mr Carlos Zorrinho (S&D Portugal) and counted with the participation of Ms Sirpa Pietikainen (EPP, Finland).

IPOPI joins the rest of the primary immunodeficiency (PID) community in celebrating Rare Disease day today! This year's campaign focuses on the importance of increasing research in rare diseases.