The meeting report is now available
Renewal of IPOPI’s membership at the PCWP
Q-ID - the quiz app for the PID community!
Essentials of PID Diagnosis, Rheumatological, Autoimmune & Autoinflammatory Crossovers, and Targeted Therapies for PIDs
Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index
GPM, Webinars, PID Forum and more, this past 2020
PID patients true stories dedicated to addressing the worldwide need for more regionally balanced plasma collection
New stakeholder of the European Alliance for Transformative Therapies
Launch Meeting of the ERN Expert Platform on NBS and the Slovenian Presidency Event on NBS
IPOPI’s Board of Directors announces the passing of former Board Member Sven Fandrup
New deadline - September 30!
Read the Position Paper
IPOPI, in partnership with ISNS and the ESID, announces the launch of the first International Neonatal Screening Day on June 28, 2021.
Two papers aimed for NMO representatives use in their advocacy work on access to immunoglobulin replacement therapies
S4R organised two high-level meetings
Mini documentary dedicated to the crossover of primary immunodeficiencies (PID) and autoinflammatory and rheumatological manifestations
IPOPI is delighted to invite you all to participate in the next International Primary Immunodeficiencies Congress - IPIC 5th Edition - which will be held in Vilamoura (Algarve), Portugal, on 27-29 April 2022! IPIC was initially planned to take place in Germany in November 2021.
PIDs and Skin, PIDs and Cancer, Hyper IgE Syndrome, Ataxia-Telangiectasia, A Guide for Hepatologists and Genetic Diagnosis of PIDs
For the second year in a row, tests for diagnosing primary immunodeficiencies (PIDs) have been included in this Model List.
In the last 24 months, IPOPI undertook a thorough and comprehensive process to develop its new 5-year strategic plan for the 2021-2025 period.
IPOPI launched the COVID-19 Learning Expedition (LEX) in July 2020, to identify, analyse and provide recommendations on issues brought about by the COVID-19 pandemic for patients with primary immunodeficiency (PID).
An interactive tool built on 6 key principles of care that measures the status of the PID healthcare environment across the globe
IPOPI Clinical Care Webinars are aimed at patient group leaders, clinicians and nurses with an interest in PID clinical care management
IPOPI had the great pleasure of welcoming 200 delegates from 40 countries from all over the world to the XVI Global Patients Meeting (GPM).
- About IPOPI
- Our Work
Rocky Bottom, Trerieve, Downderry, PL11 3LY, UK
IPOPI is a non-profit charity registered in the UK
Charity number 1058005
Avenue Louise/Louizalaan 367
BE-1050 Brussels, Belgium
IPOPI aisbl is an international non-profit association registered in Belgium
Tel: +44 1503 250 668/961 (UK)