News
IPOPI 25th Anniversary
IPOPI is celebrating its 25th Anniversary and we pleased to celebrate this major milestone with the...
Growing older with a PID
IPOPI organised its 9th EU PID Forum on ‘Growing older with a PID: transition of care and ageing’ at the European Parliament on June 22, 2017. The meeting was hosted by Members of the European Parliament (MEPs) Dr Elena Gentile (S&D Italy), supported by Mr Carlos Zorrinho (S&D Portugal) and counted with the participation of Ms Sirpa Pietikainen (EPP, Finland).
SCID and rare diseases
Glenis Willmott MEP published an article on 21 February on the…
European Reference Network
European Member States approved on December 15 the proposal…
SCID newborn screening
The New Zealand Health Minister, Jonathan Coleman, announced…
Patients in action at XIV IPOPI Biennial Meeting, Barcelona
IPOPI held its XIVth Biennial meeting in the fantastic city of…
GSK, Telethon and OSR gene treatment for ADA-SCID approved
GlaxoSmithKline (GSK), Fondazione Telethon (Telethon) and…
Shire and Baxalta Complete Merger
Shire today completed its previously announced combination with…
SCIDNET website goes live
SCIDNET, a partnership initiative in which IPOPI is participating,…
European Reference Network for PIDs a key element for improving PID care in Europe
Participants to the IPOPI 2016 World Primary Immunodeficiency…
IPOPI celebrates World Primary Immunodeficiency Week at the European Parliament
On the occasion of World Primary Immunodeficiency Week, IPOPI…
IPOPI launches Burden of Treatment Study with UK Kick-Off
IPOPI is pleased to announce the launch of a new Primary…
Two PID questions to the European Commission
Two parliamentary questions have been tabled to the European…
IPOPI TV launched today
IPOPI is pleased to announce the launch of IPOPI TV, a brand…
IPOPI publishes Position Statement on Zika virus
Zika virus recent outbreaks in different regions and particularly…
Shire and Baxalta announce merger
Shire plc and Baxalta Incorporated announced today that both…
The Value of One Patient Organisation per Country
PLUS, the Platform of Plasma Protein Users, which represents…
Rare Diseases International launched today
Over 60 patient representatives from 30 countries are gathering…
Marketing application for new ADA-SCID gene therapy submitted to EMA
GSK (GlaxoSmithKline), Fondazione Telethon (Telethon) and Ospedale…
EU-wide overview of the market of blood, blood components and plasma derivatives
The European Commission (EC) published in April a report on ‘An…
Council of Europe adopts Resolution on Principles of Immunoglobulin Therapies for PIDs
The Council of Europe adopted an important Resolution about Therapies…
Publication of PIDs Principles of Care
Over the last two years, IPOPI combined its efforts with a worldwide…
Publication of PIDs -Principles of Care
Over the last two years, IPOPI combined its efforts with a worldwide…
IPOPI 5th PID Forum at the European Parliament
IPOPI held yesterday its 5th PID Forum at the European Parliament…
Recommendations for anti-infectious prophylaxis
Because infectious diseases are a major source of morbidity and…
IPOPI Autumn e-News is out!
The Autumn 2014 edition of IPOPI's e-News is out and can be accessed here.
Check…
IPOPI joins Health First Europe
IPOPI is now a member of Health First Europe (HFE). As a follow-up…
IPOPI Review of Activities and Achievements – 2013
The 2013 IPOPI Review of Activities and Achievements is out and…
IPOPI Patient Needs and Outlooks Study Publication
IPOPI is pleased to announce the publication of its survey manuscript…
World Primary Immunodefiencies Week is here!
The 4th edition of World Primary Immunodefiencies Week (WPIW)…
