News
PIDs and autoinflammation mini documentary
IPOPI launched the COVID-19 Learning Expedition (LEX) in July 2020, to identify, analyse and provide recommendations on issues brought about by the COVID-19 pandemic for patients with primary immunodeficiency (PID).
IPIC has moved!
IPOPI is delighted to invite you all to participate in the next International Primary Immunodeficiencies Congress - IPIC 5th Edition - which will be held in Vilamoura (Algarve), Portugal, on 27-29 April 2022!
IPIC was initially planned to take place in Germany in November 2021.
Six new IPOPI PID information leaflets published
PIDs and Skin, PIDs and Cancer, Hyper IgE Syndrome, Ataxia-Telangiectasia, A Guide for Hepatologists and Genetic Diagnosis of PIDs
More PID diagnostic tests included in the WHO EDL
For the second year in a row, tests for diagnosing primary immunodeficiencies (PIDs) have been included in this Model List.
IPOPI launches new strategic plan
In the last 24 months, IPOPI undertook a thorough and comprehensive process to develop its new 5-year strategic plan for the 2021-2025 period.
COVID-19 Learning Expedition Report released
IPOPI launched the COVID-19 Learning Expedition (LEX) in July 2020, to identify, analyse and provide recommendations on issues brought about by the COVID-19 pandemic for patients with primary immunodeficiency (PID).
IPOPI’s PID Life Index – the PID environment around the globe
An interactive tool built on 6 key principles of care that measures the status of the PID healthcare environment across the globe
IPOPI Clinical Care Webinars – year-round PID Education
IPOPI Clinical Care Webinars are aimed at patient group leaders, clinicians and nurses with an interest in PID clinical care management
IPOPI XVI Global Patients Meeting – First ever online!
IPOPI had the great pleasure of welcoming 200 delegates from 40 countries from all over the world to the XVI Global Patients Meeting (GPM).
PID GENIUS, the personal assistant to PID patients
IPOPI launched PID GENIUS, the first mobile application developed by a PID patient organisation for worldwide use.
IPIC2019 Together in Madrid!
IPIC2019 will be held in Europe in the cosmopolitan city of Madrid on 6-8 November 2019!
IPOPI 25th Anniversary
IPOPI is celebrating its 25th Anniversary and we pleased to celebrate this major milestone with the...
Growing older with a PID
IPOPI organised its 9th EU PID Forum on ‘Growing older with a PID: transition of care and ageing’ at the European Parliament on June 22, 2017. The meeting was hosted by Members of the European Parliament (MEPs) Dr Elena Gentile (S&D Italy), supported by Mr Carlos Zorrinho (S&D Portugal) and counted with the participation of Ms Sirpa Pietikainen (EPP, Finland).
Rare Disease day
IPOPI joins the rest of the primary immunodeficiency (PID) community in celebrating Rare Disease day today! This year's campaign focuses on the importance of increasing research in rare diseases.