NMO support

Objective 2: To develop, strengthen and support National Member Organisations

IPOPI Global PID Patient Meetings

IPOPI XVth Global Patient Meeting – October 24-27, 2018

IPOPI’s XVth Global Patients’ Meeting was organised later this year between October 24-27 in the amazing city of Lisbon, Portugal, in collaboration with the European Society for Immunodeficiencies (ESID) and the International Nursing Group for Immunodeficiencies (INGID).  It was made up of a three-day educational programme followed by a social programme on the last day.
Here are the programme of the meeting and the speakers’ presentations

Regional and National Patient Meetings 

IPOPI Regional Latin American PID Patients Meeting – 10-11 October 2019, Cancún, Mexico

Every other year IPOPI organises its Regional Latin American PID Patients Meeting in parallel to the biennial Latin American Society for Immunodeficiencies (LASID) congress, and 2019 was no exception. This year’s edition took place in Cancún (Mexico) 10th-11th October, and brought together patient representatives from a great majority of IPOPI’s Latin American National Member Organisations (NMOs). The successful meeting offered educational lectures, various workshops and a networking dinner for the participants, giving them an opportunity to learn, to share and to be challenged by new scenarios in the workshops.

Would you like to know more about this meeting? Below you find links to the programme, presentations, the meeting report and the pictures!

This meeting was kindly supported by

IPOPI Regional African Patients Meeting – 11-12th April, Dakar, Senegal  

IPOPI held a Regional African Patients Meeting in Dakar, Senegal during the 11th and 12th of April 2019. The meeting was organised back to back with the 6th ASID Congress (African Society for Immunodeficiencies). This meeting offered a unique opportunity for patient representatives in the region to interact, and to experience both interactive workshops and educational lectures to increase the understanding of the conditions of PID patients.

This meeting was partly supported through an unrestricted grant from

IPOPI 2nd Regional Asian PID Patients and Doctors Meeting

IPOPI organised its second Regional Patients and Doctors meeting in Asia on November 10-11 in Bangkok, Thailand. The two-day meeting was organised back to back with FIMSA (Federation of Immunological Societies of Asia-Oceania) Congress 2018. The first day of the meeting was geared toward doctors and the second day was dedicated to patient education and included a workshop on World PI Week.

This meeting was possible thanks to the support from Shire.

IPOPI National Philippine Strategic Meeting

IPOPI and PhilPOPI organised a small-scale meeting in Manila on September 29, 2018, to help the associate Philippine National Member Organisation (NMO) to activate and find strategies and concrete action points for the future.

IPOPI South East Asia Advocacy and Media Training Workshop

IPOPI held a South East Asia Advocacy & Media Workshop in Kuala Lumpur (Malaysia), on September 22 – 23, 2018.
The workshop was preceded by a joint NACLIS-IPOPI meeting.

The workshop was organised with the generous support of CSL Behring.