NMO support

Objective 2: To develop, strengthen and support National Member Organisations

IPOPI Global PID Patient Meetings

IPOPI XVIth Global Patient Meeting – October 15-16, 2020 (online)

IPOPI welcomed 200 delegates from 40 countries from all over the world to the XVI Global Patients Meeting (GPM). The GPM is one of IPOPI’s key biennial events and is organised back to back with the European Society for Immunodeficiencies (ESID) and International Nursing Group for Immunodeficiencies (INGID) biennial congresses. The meeting was originally taking place in Birmingham, UK, but was moved online due to the concerning development of the COVID-19 pandemic. Despite this change of plans we were grateful for the opportunity to organise this virtually for the very first time and ensure that the PID patient community could continue to unite and grow stronger together.   

Regional and National Patient Meetings 

IPOPI Doctors and PID Patients Meeting Thailand – (Online)

On November 27-28, 2021 IPOPI returned to Thailand to host a doctor and patient meeting for participants interested in learning more about primary immunodeficiencies. The meeting reached its objective to improve awareness of PIDs, diagnosis and management in Thailand and to stimulate discussions for the participants of both the doctors and patients meeting.

The meeting was made possible thanks to support from Grifols.

IPOPI Latin American PID Patients Meeting – (Online)

In mid-October it was finally time for IPOPI to welcome its Latin American National Member Organisations (NMOs) to this year’s regional meeting, organised October 13-14, in parallel with the congress of the Latin American Society for Immunodeficiencies (LASID). The meeting was well attended, with over 35 participants from 10 countries in the region (Argentina, Bolivia, Chile, Ecuador, El Salvador, Mexico, Nicaragua, Paraguay, Puerto Rico, Venezuela), speaking mainly in Spanish. The combination of educational sessions as well as multiple interactive elements created a great mix and many good discussions, and IPOPI was thrilled to once again have the opportunity to bring together our regional patient leaders and strengthen the PID patient community in Latin America.

This meeting was made possible thanks to the support from Takeda.

IPOPI African PID Patients Meeting – (hybrid)

IPOPI started the month of October by welcoming patient representatives from 11 countries from the continent to this year’s African PID Patients Meeting, organised 1-2 October 2021 alongside the 7th Congress of the African Society for Immunodeficiencies (ASID). The theme of this year’s ASID congress was “PID-IEI in Africa: Where and how to find them?”, bringing together both health care professionals and patient representatives from Africa as well as from nearby regions to discuss this important and relevant theme.

This meeting was made possible thanks to the support from National Bioproducts Institute.

IPOPI Indonesian PID Conference – (online)

IPOPI organised a virtual Indonesian PID Conference, held on June 19-20 and 26, 2021, hosting both a Clinical Care Meeting and a PID Patients’ Meeting. The participation in the meeting exceeded expectations, demonstrating the demand and continuous need for educational sessions on primary immunodeficiencies in Indonesia.

This meeting was made possible thanks to the support from Kedrion.

Asian Advocacy Workshop

During 17th and 18th April, 2021, IPOPI’s National Member Organisations (NMOs) from Asia and neighbouring regions took part in IPOPI’s regional Advocacy Workshop,  with the aim of increasing participants knowledge on strategic planning on advocacy and communication, using the metaphor of advocacy work being like preparation for a marathon,

This meeting was possible thanks to the support from

The 3rd Vietnamese National PID Doctors and Patients meeting

IPOPI has been continuing its PID awareness raising activities in South East Asia, most recently with the 3rd Vietnamese National PID Doctors and Patients meeting, following the 1st and 2nd meetings in 2015 and 2017. This two-day meeting took place on 23-24 November 2019 at the Hotel Nikko Saigon, Ho Chi Minh (HCMC), and was organised in close collaboration with the HCMC Children’s Hospital 1.

This meeting was possible thanks to the support from Kedrion.

The 11th National Clinical Immunology Symposium & The 2nd International Conference on PIDs

IPOPI had the great pleasure to co-organise and support the 11th National Clinical Immunology Symposium (NACLIS), together with the Malaysian Society for Allergy and Immunology (MSAI) and with IPOPI’s Malaysian member, MyPOPI, among others. The symposium took place on November 20-21, 2019, in the newly opened Hospital Pengajar University Putra Malaysia (HPUPM), and welcomed both national, regional and international speakers.

IPOPI Regional Latin American PID Patients Meeting – 10-11 October 2019, Cancún, Mexico

Every other year IPOPI organises its Regional Latin American PID Patients Meeting in parallel to the biennial Latin American Society for Immunodeficiencies (LASID) congress, and 2019 was no exception. This year’s edition took place in Cancún (Mexico) 10th-11th October, and brought together patient representatives from a great majority of IPOPI’s Latin American National Member Organisations (NMOs). The successful meeting offered educational lectures, various workshops and a networking dinner for the participants, giving them an opportunity to learn, to share and to be challenged by new scenarios in the workshops.

Would you like to know more about this meeting? Below you find links to the programme, presentations, the meeting report and the pictures!

This meeting was kindly supported by

IPOPI Regional African Patients Meeting – 11-12th April, Dakar, Senegal  

IPOPI held a Regional African Patients Meeting in Dakar, Senegal during the 11th and 12th of April 2019. The meeting was organised back to back with the 6th ASID Congress (African Society for Immunodeficiencies). This meeting offered a unique opportunity for patient representatives in the region to interact, and to experience both interactive workshops and educational lectures to increase the understanding of the conditions of PID patients.

This meeting was partly supported through an unrestricted grant from