NMO support

Objective 2: To develop, strengthen and support National Member Organisations

IPOPI Global PID Patient Meetings

IPOPI XVth Global Patient Meetings – October 24-27, 2018

IPOPI’s XVth Global Patients’ Meeting was organised later this year between October 24-27 in the amazing city of Lisbon, Portugal, in collaboration with the European Society for Immunodeficiencies (ESID) and the International Nursing Group for Immunodeficiencies (INGID).  It was made up of a three-day educational programme followed by a social programme on the last day.
Here are the programme of the meeting and the speakers’ presentations

Regional and National Patient Meetings 

The IPOPI Latin American Patients Meeting

The Latin American Patients Meeting was organised back to back with the LASID Congress on 5-6 October 2017. The two-day intensive meeting included educational lectures and brainstorming workshops for the patient representatives. The 70 participants to the meeting included patient leaders
from IPOPI Latin American national member organisations (NMOs), but also patients and parents from other countries, other PID and Rare Disease organisations, nurses and physicians from all over Latin America.

2nd IPOPI National PID Patients & Doctors Meeting

IPOPI organised two meetings in Hanoi, Vietnam on December 8-9, 2017, in close collaboration with the
National Children’s Hospital and the Paediatric Association of Vietnam. The first meeting took place in
the National Children’s Hospital in Hanoi and aimed at educating healthcare professionals and medical
students about primary immunodeficiencies (PIDs). The second meeting was aimed at PID patients from
all over Vietnam with a programme consisting of educational lectures and discussions.

This meeting was possible thanks to the support from Kedrion:

IPOPI National PID Meeting in Indonesian
PID Patients meeting & Clinical care meeting

IPOPI held a two-day meeting in Jakarta, Indonesia, in collaboration with the Indonesian PID Patient Society (IPIPS) and the Mangunkusumo Hospital in Jakarta on 6-7 May 2017. The first day was dedicated to patients and the second to physicians.

This meeting was possible thanks to funds from the IPOPI Bob LeBien Asian Development Programme and help from:

IPOPI Regional African Patients Meeting

IPOPI Regional African meeting was organised back to back with the ASID Congress on April 2, 2017. This meeting was divided into three sessions and brought together PID patients and patient representatives from six African countries.

Kindly sponsored by: