Key publications

IPOPI is glad to announce the publication of a new series of primary immunodeficiencies (PID) information leaflets. The new series comprises 3 leaflets dedicated…

IPOPI’s 2018 Review of Activities and Achievements was published today! 2018 was a major year for IPOPI – we gathered our members in Lisbon for the Global…

Primary immunodeficiency (PID) diagnostic tests have been included in the World Health Organization (WHO)’s Essential Diagnostics List (EDL) published by WHO…

The European Medicines Agency (EMA) recently confirmed that IPOPI’s application to renew its mandate on the Patients and Consumers Working Party (PCWP) was successful…

IPOPI held a Regional African Patients Meeting in Dakar, Senegal during the 11th and 12th of April 2019. The meeting was organised back to back with the 6th ASID…

IPOPI has since 2011 been producing primary immunodeficiencies (PID) information and a new series has just been published. This last series comprises 3 leaflets…

PLUS Consensus principles on strategies to encourage donations Download

This  IPOPI publication is available for download on our website. Within a national healthcare system, selection of immunoglobulin (IG) therapies for conditions…

Leaflet 'Being the parent of a teenager with a chronic illness' by Dr Lotte Denning Download

This publication is part of IPOPI's Burden of Treatment Survey project. Read it here

IPOPI is pleased to announce that the IPIC2017 Congress Report is now online!

IPOPI has since 2011 been producing primary immunodeficiencies (PID) information and a new series has just been published. This last series comprises 3 leaflets…

IPOPI is concerned by recent developments in several countries that may restrict access to the most suitable immunoglobulin (IG) therapy for individual patients…

APEC Recommendations for Enhancing Access to Safe Therapy for Persons with Immunodeficiency and Bleeding Disorders APEC Hanoi Recommendations on Implementation…

IPOPI is pleased to announce the publication of the ‘PID Principles of Care Implementation Package’, a new key document designed specifically for our National…

The first leaflet 'Immunoglobulin replacement therapy - One size does not fit all' explains the variety of factors that patients with PIDs should consider, and…

Over the last two years, IPOPI combined its efforts with a worldwide multi-disciplinary team of specialists to develop the “Primary Immunodeficiencies Principles…

IPOPI is pleased to announce the publication of its survey manuscript looking at Improving current immunoglobulin therapy for patients with primary immunodeficiency:…

The IPIC2013 Report of Highlights is now available online! In this report read about key highlights from the first edition of IPOPI's successful event attended…

PLUS, the Platform of Plasma Protein Users, represent organisations of patients with treatable rare diseases linked by common therapies based on products manufactured…

Irish Haemophilia Society, Steering Group PLUS, Dublin, Ireland download

The IPOPI PID Patient Needs & Outlooks Survey was carried out during the second half of 2011 and is based on completed questionnaires from 300 patients and…

IPOPI’s recently released a co-edited issue of Pharmaceuticals Policy and Law in collaboration with Professor Jose-Luis Valverde (University of Granada, Spain)…

This issue of the Pharmaceuticals Policy and Law series (Volume 10) published by IOS press and edited by Professor Jose-Luis Valverde, was co-edited by David Watters,…

This is the first international survey carried out by IPOPI. The survey was conducted between February 2010 and August 2010 to establish a mapping of several criteria…

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Maj-Lis Hellström, founder in 1978 of PIO, the Swedish organisation for patients with primary immunodeficiency, and an officer of the IPOPI board for eight years,…

A helpful guide for patients and caregivers By Sara J. LeBien CONTENTS: Section One WHAT HAPPENS AFTER THE DIAGNOSIS Section Two WHAT TO EXPECT AS YOUR CHILD…

The World Health Organization (WHO) recognizes over 150 primary immunodeficiencies including X-Linked Agammaglobulinemia (Bruton's Disease), Common Variable Immunodeficiency…

This new IPOPI report summarizes some of the highlights of the XIVth ESID Meeting's scientific programme. IPOPI would like to thank Dr Peter Spaeth for his precious…

PID Glossary

PLUS - The Dublin Consensus Statement on vital issues relating to the collection of blood and plasma and the manufacture of plasma products Download