ESID, IPOPI together with INGID and J Project
In light of Rare Disease Day, Screen4Rare advocates the importance of newborn screening (NBS) as a key element to access to care.
Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index
GPM, Webinars, PID Forum and more, this past 2020
IPOPI, in partnership with ISNS and the ESID, announces the launch of the first International Neonatal Screening Day on June 28, 2021.
Two papers aimed for NMO representatives use in their advocacy work on access to immunoglobulin replacement therapies
IPOPI launched the COVID-19 Learning Expedition (LEX) in July 2020, to identify, analyse and provide recommendations on issues brought about by the COVID-19 pandemic for patients with primary immunodeficiency (PID).
- About IPOPI
- Our Work
Rocky Bottom, Trerieve, Downderry, PL11 3LY, UK
IPOPI is a non-profit charity registered in the UK
Charity number 1058005
Avenue Louise/Louizalaan 367
BE-1050 Brussels, Belgium
IPOPI aisbl is an international non-profit association registered in Belgium
Tel: +44 1503 250 668/961 (UK)