Globally there are large differences in recognition and support towards patients with primary immunodeficiencies (PIDs). Adult PID patients are often not eligible for disability support, even when experiencing serious (at times non-visible) impairment.
IPOPI has released a new position statement arguing that PIDs causing a heavy burden of disease must always be recognised as a disability and that such patients should receive the necessary long-term financial and practical assistance. The fact that PIDs are rare should never result in patients being denied their right to disability support.
Read the full statement here.