NMO Support
Objective 2: To develop, strengthen and support National Member Organisations
IPOPI Global PID Patient Meetings
The Global Patients Meeting (GPM) is one of IPOPI’s key biennial events. It is organised back to back with the European Society for Immunodeficiencies (ESID) and International Nursing Group for Immunodeficiencies (INGID) biennial congresses. This meeting gathers IPOPI members from around the world for three exciting days of educational sessions, workshops and networking.
IPOPI XVIII Global Patient Meeting – October 16-18, 2024
In 2024, we were thrilled to welcome 100 participants from nearly 50 countries to our meeting, with a record number of NMOs joining. The event was filled with educational sessions, skill-building, and opportunities for collaboration and connection. It was a truly important moment for the growth and strengthening of our global community.
Regional and National Patient Meetings
IPOPI 5th Asian PID Patients and Doctors meeting – March 23-25, 2024
During the Sakura season, IPOPI welcomed 50 participants from 13 countries across Asia (Bangladesh, Cambodia, China, India, Indonesia, Japan, Malaysia, Nepal, Philippines, Singapore, South Korea, Thailand, and Vietnam). This was a two-day meeting of insightful discussions on key aspects of effective primary immunodeficiency (PID) patient care, diagnosis challenges, and the rapidly evolving landscape of PIDs. We explored the latest regional initiatives from both patient representatives and physicians, sparking interesting and fruitful discussions.
On March 22, we also held a fruitful strategic meeting with Tsubasa-no-Kai members, medical advisors, and stakeholders, addressing our organisation’s specific challenges.
This meeting was made possible thanks to the support from Takeda, Pharming, Grifols, and Chiesi.
IPOPI Latin American PID Patients´ Meeting – October 19-20, 2023
In Mexico City, IPOPI covened it´s Latin American National Member Organisations (NMOs) for an in-person regional meeting once again. With 35 participants from 12 Latin American countries (Argentina, Bolivia, Brazil, Chile, Costa Rica, Ecuador, El Salvador, Mexico, Paraguay, Peru, Puerto Rico, and Uruguay). The two-day program addressed regional challenges in primary immunodeficiencies, focusing on regulatory processes, advocacy for treatment access, and sharing impactful projects by national member organizations. The meeting aimed to foster collaboration and commitment to addressing ongoing healthcare challenges in the region.
This meeting was made possible thanks to the support from Grifols and Takeda.
IPOPI 8th African PID Patients´ Meeting – June 14-15, 2023
In mid-June IPOPI welcomed its African National Member Organisations (NMOs) to the 8th Regional African PID Patients Meeting, organised in June 14-15, 2023, in parallel with the congress of the African Society for Immunodeficiencies (ASID). The meeting was very well attended, with over 50 participants from 10 countries in the region (Algeria, Kenya, Morocco, Namibia, Rwanda, Senegal, South Africa, Sudan, Tunisia and Uganda).
This meeting was made possible thanks to the support from Grifols and Takeda.
IPOPI Thai PID Meeting – November 22-23, 2022
IPOPI was back in Bangkok, on 22 November and welcomed 200 participants to a fantastic doctor´s meeting dedicated to discussing the latest developments in primary immunodeficiencies in Thailand. On November 23, IPOPI also hosted a patients´ meeting with members of ThaiPOPI to work on their development and discuss solutions for the country for improving the infusion service for IVIG and access to vaccination for PID patients.
This meeting was made possible thanks to the support from Grifols.
IPOPI 4th Regional Asian PID Meeting – November 19-20, 2022
IPOPI was delighted to be back in person in Asia and welcome 50 participants to the 4th Regional Asian PID Meeting, held on 19-20 November 2022 in Kuala Lumpur, Malaysia.
At this two-day meeting, patient representatives and healthcare professionals from 11 countries from the Asia-Pacific region (Cambodia, China, India, Indonesia, Japan, Malaysia, Nepal, Philippines, South Korea, Thailand, and Vietnam) gathered to discuss exciting developments in Asia and identifying key areas of improvement. This meeting provided a unique opportunity for patient representatives in the region to interact with each other and healthcare professionals, through educational lectures, debating forums, and a workshop.
This meeting was made possible thanks to the support from Takeda.
IPOPI Doctors and PID Patients Meeting Thailand – (Online)
On November 27-28, 2021 IPOPI returned to Thailand to host a doctor and patient meeting for participants interested in learning more about primary immunodeficiencies. The meeting reached its objective of improving awareness of PIDs, diagnosis and management in Thailand and to stimulate discussions for the participants of both the doctors and patients meeting.
The meeting was made possible thanks to support from Grifols.
IPOPI Latin American PID Patients Meeting – (Online)
In mid-October, it was finally time for IPOPI to welcome its Latin American National Member Organisations (NMOs) to this year’s regional meeting, organised October 13-14, in parallel with the congress of the Latin American Society for Immunodeficiencies (LASID). The meeting was well attended, with over 35 participants from 10 countries in the region (Argentina, Bolivia, Chile, Ecuador, El Salvador, Mexico, Nicaragua, Paraguay, Puerto Rico, and Venezuela), speaking mainly in Spanish. The combination of educational sessions as well as multiple interactive elements created a great mix and many good discussions, and IPOPI was thrilled to once again have the opportunity to bring together our regional patient leaders and strengthen the PID patient community in Latin America.
This meeting was made possible thanks to the support from Takeda.
IPOPI African PID Patients Meeting – (hybrid)
IPOPI started the month of October by welcoming patient representatives from 11 countries from the continent to this year’s African PID Patients Meeting, organised 1-2 October 2021 alongside the 7th Congress of the African Society for Immunodeficiencies (ASID). The theme of this year’s ASID congress was “PID-IEI in Africa: Where and how to find them?”, bringing together both health care professionals and patient representatives from Africa as well as from nearby regions to discuss this important and relevant theme.
This meeting was made possible thanks to the support from National Bioproducts Institute.
IPOPI Indonesian PID Conference – (online)
IPOPI organised a virtual Indonesian PID Conference, held on June 19-20 and 26, 2021, hosting both a Clinical Care Meeting and a PID Patients’ Meeting. The participation in the meeting exceeded expectations, demonstrating the demand and continuous need for educational sessions on primary immunodeficiencies in Indonesia.
This meeting was made possible thanks to the support from Kedrion.
Asian Advocacy Workshop
During 17th and 18th April, 2021, IPOPI’s National Member Organisations (NMOs) from Asia and neighbouring regions took part in IPOPI’s regional Advocacy Workshop, with the aim of increasing participants knowledge on strategic planning on advocacy and communication, using the metaphor of advocacy work being like preparation for a marathon,
This meeting was possible thanks to the support from
