IPOPI’s 2021 Review of Activities and Achievements

, , ,

IPOPI’s 2021 Review of Activities and Achievements is now available. 2021 was a busy year for IPOPI, filled with events, campaigns, and policy efforts to improve care for patients with primary immunodeficiencies.

The new strategic plan for 2021–2025 served as a guide to strengthen our educational programme in 2021. Throughout the year, we organised several webinars for PID Clinical Care Education in addition to publishing six new educational PID leaflets and a mini-documentary on PIDs with antiinflammatory and rheumatological crossovers. Additionally, we have maintained our support for stakeholder cooperation in initiatives like Screen4Rare and ERN-Rita. IPOPI was also instrumental in the establishment of International Neonatal Screening Day, taking place annually on June 28.

In addition to this, we have organised several EU PID Forums in the European Parliament as well as three successful regional PID patient meetings in Africa (Hybrid), Latin America (Online) and Asia (Online advocacy workshop). We are proud to work with and represent a growing number of national member organisations who all share our common vision to improve PID patient lives.

We hope you will enjoy reading this annual report, which highlights the most significant IPOPI initiatives, campaigns, and events in the previous year.

Screen4Rare celebrates Rare Disease Day

In light of Rare Disease Day, Screen4Rare advocates the importance of newborn screening (NBS) as a key element to access to care.

New publication presenting the PID environment in 60 countries

,

Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index