IPOPI’s 2020 Review of Activities and Achievements
GPM, Webinars, PID Forum and more, this past 2020
The International Neonatal Screening Day is born!
IPOPI, in partnership with ISNS and the ESID, announces the launch of the first International Neonatal Screening Day on June 28, 2021.
SAFE Task Force releases two position statements
The Supply and Access for Everyone (SAFE) Task Force and IPOPI are happy to share with IPOPI’s members two position statements on 2 key topics of relevance to patients with PIDs worldwide:
- Patients with PID need sustained & continued access to their Ig therapies!
- Managing demand for immunoglobulins: PIDs are a priority indication at all times
These two papers aim at being used by NMO representatives in their advocacy work on access to immunoglobulin replacement therapies.
The SAFE Task Force, was launched by IPOPI in 2020 to monitor plasma collection and the availability of immunoglobulin replacement therapies for patients with PIDs worldwide, as well as provide guidance and support to patients with PIDs in their access to live-saving immunoglobulin therapies.
The taskforce is composed of experts from different parts of the world and IPOPI staff (in alphabetical order): Ms Roberta Anido de Pena, Ms Jose Drabwell, Dr Nahla Ewra, Prof Stephen Jolles, Dr Nizar Mahlaoui, Ms Martine Pergent, Mr Johan Prevot, Prof John Seymour, Prof Surjit Singh, Ms Leire Solis.
COVID-19 Learning Expedition Report released
IPOPI launched the COVID-19 Learning Expedition (LEX) in July 2020, to identify, analyse and provide recommendations on issues brought about by the COVID-19 pandemic for patients with primary immunodeficiency (PID).
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