IPOPI’s new White Paper sets out a European policy framework to address the respiratory health challenges faced by people living with Primary Immunodeficiencies (PIDs), also known as Inborn Errors of Immunity (IEI), and related conditions, including Secondary Immunodeficiencies (SIDs). Building on IPOPI’s 2025 Expert Round Table and a structured 2026 engagement process involving clinicians and […]
From 14–16 October, IPOPI welcomed 89 participants from 51 countries to its Global Patients’ Meeting (GPM) 2026 in Maastricht, the Netherlands. Taking place alongside the ESID Congress, the meeting brought together the global PID community for three days of learning, shared experiences and collaboration. Programme This year’s programme covered key topics including gastrointestinal and […]
IPOPI’s National Member Organisations recently elected the new IPOPI Executive Committee, and the results were announced during the Annual General Assembly at the Global Patients’ Meeting on the 16th of October, 2026, in Maastricht. Congratulations to Whitney Ayoub Goulstone (Canada), Bruce Lim (Malaysia) and Otilia Stanga (Romania) on being elected to the Executive Committee for […]
With over 900 attendees from 70 countries, IPIC2025 was a truly inspiring gathering of the global primary immunodeficiency community, bringing together leading experts, clinicians, nurses, patient representatives, industry partners, and other stakeholders committed to improving patient care. Held in Prague, Czech Republic, from 5-7 November 2025, the congress featured a patient-centred scientific programme focused on […]
IPOPI has launched its policy recommendations, “When Rare Meets the Not-So-Rare: Strengthening EU Action on Primary and Secondary Immunodeficiencies”, calling for stronger European action to improve diagnosis, treatment and care for people living with primary immunodeficiencies (PIDs) and secondary immunodeficiencies (SIDs). The recommendations identify five key areas for action: strengthening early and accurate diagnosis; ensuring […]
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