Entries by IPOPI

EU SoHO Regulation at the Midpoint: Strengthening Plasma Collection in the EU

  As we reach the midpoint of the three-year transition period foreseen for the implementation of the Regulation on Substances of Human Origin (SoHO), the International Patient Organisation for Primary Immunodeficiencies (IPOPI) wishes to reaffirm the central importance of patient-centred policy making and to highlight the urgent need to strengthen plasma collection in the EU […]

New Educational Leaflet on SIDs is Out!

Discover IPOPI’s newest leaflet on Secondary Immunodeficiencies (SIDs). Designed for patients, caregivers, and healthcare professionals, this educational tool aims to increase understanding of SIDs — an often under-recognised area of immune health. Through clear explanations and practical guidance, the leaflet educates readers on what SIDs are, the challenges of diagnosing and managing SIDs, and their […]

Thank You and See You in Mallorca!

We extend our heartfelt thanks to everyone who made IPIC2025 an unforgettable success! With over 900 attendees, IPIC2025 was a truly inspiring gathering of our global community—filled with learning, collaboration, and shared commitment to advancing care for people with primary immunodeficiencies. As we close this remarkable chapter, we are already looking ahead with excitement to our […]