First African Registry for Inborn Errors of Immunity/Primary Immunodeficiencies

Developed by the ASID Registry Team in collaboration with IPOPI and African patient organisations, this important initiative will help improve our understanding of IEI/PID across Africa and support better care for patients.

📢 If you are an African healthcare professional involved in the diagnosis or care of people with IEI/PID, we invite you to complete a short survey.

📝 Take the survey here in English: https://www.surveymonkey.com/r/ASIDregistry-EN
📝 Take the survey here in French: https://fr.surveymonkey.com/r/ASIDregistry-FR

Your input will help:
✅ Build the African IEI/PID Registry
✅ Identify current practices and needs
✅ Strengthen research and advocacy
✅ Improve care for people living with IEI/PID across the continent

Please share this survey with colleagues who care for IEI/PID patients, including paediatricians, immunologists, internists, haematologists, infectious disease specialists and pulmonologists.

For more information visit: asidregistry.com

Together, we can help build a stronger future for the IEI/PID community in Africa.

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Shaping EU Policy for PIDs & SIDs

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IPOPI Participates in Moroccan IEI Congress

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IPOPI was proud to participate in the 19th Moroccan Congress on the Predisposition to Infections, Allergies and Autoimmunities and the 10th Maghrebin IVIG Meeting, held in Casablanca, Morocco.

Representing IPOPI, Martine Pergent, President of IPOPI, joined healthcare professionals, researchers, patient advocates and representatives from across the region for important discussions on advancing care and raising awareness for people living with Inborn Errors of Immunity (IEI).

A highlight of the event was the opening ceremony keynote presentation delivered by Dr Nizar Mahlaoui, titled “Education and Employment in IEI: A Pathology-Based Approach.” His presentation shed light on the many challenges faced by people living with IEI and underlined the importance of improving access to diagnosis, care, education and social inclusion.

Alongside the scientific programme, a dedicated patient meeting brought together patients, families, advocacy groups and healthcare professionals to exchange experiences, discuss unmet needs and strengthen collaboration within the IEI community. IPOPI was pleased to contribute to these discussions, reinforcing the essential role that patient organisations play in improving the quality of life of people living with IEI.

Events such as these demonstrate the power of partnership between the medical and patient communities in driving better outcomes and ensuring that the voices of people living with IEI are heard.

IPOPI warmly thanks the organisers, including the Moroccan Society for PID (MSPID), LICIA, and all partners involved, for creating such an important platform for education, collaboration and advocacy.

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