The IPOPI Jose Drabwell Research Grant Programme is an initiative aimed at promoting scientific and clinical research in the field of primary immunodeficiencies. The second grant call in 2025, supported by Grifols and Kedrion, ran from April to August, inviting applicants from around the world to seize the opportunity to fuel innovation in the field […]
From 16-19 October, IPOPI’s XVIII Global Patients’ Meeting (GPM) brought together 100 participants from nearly 50 countries, in Marseille, marking a record number of National Member Organisations (NMOs). Held alongside the European Society for Immunodeficiencies (ESID) and the International Nursing Group for Immunodeficiencies’ (INGID) congresses, this flagship biennial event highlighted collaboration across the primary immunodeficiency (PID) community. Programme This meeting featured insightful sessions on mental health, innovative therapies, artificial […]
The proceedings of the third Global Multi-Stakeholders Summit held by IPOPI on July 1-2, 2024, in Lisbon, Portugal, have been published in Frontiers in Immunology. The paper entitled “Navigating disruption in the PID landscape: embracing opportunities and anticipating threats in the next ten years” reflects the high-level discussions held over the two-day summit between all participants. Participants […]
IPOPI is pleased to share the results of our global survey on the long-term effects of COVID-19 in people living with primary immunodeficiencies (PIDs), now published and available to the public. The paper titled “Long-term effects of COVID-19 in patients with primary immunodeficiency: An IPOPI worldwide survey” was published in The Journal of Allergy and Clinical […]
On 14 May 2025, the International Patient Organisation for Primary Immunodeficiencies (IPOPI) organised a PID Forum titled ‘Shaping the Future of Research: Patients as Equal Partners’. The event took place in Brussels (Belgium) in the European Parliament. It was co-hosted by Member of the European Parliament (MEP) Romana Jerković (S&D, Croatia) and Nicolás González Casares […]
