IPOPI is pleased to share the results of our global survey on the long-term effects of COVID-19 in people living with primary immunodeficiencies (PIDs), now published and available to the public. The paper titled “Long-term effects of COVID-19 in patients with primary immunodeficiency: An IPOPI worldwide survey” was published in The Journal of Allergy and Clinical […]
On 14 May 2025, the International Patient Organisation for Primary Immunodeficiencies (IPOPI) organised a PID Forum titled ‘Shaping the Future of Research: Patients as Equal Partners’. The event took place in Brussels (Belgium) in the European Parliament. It was co-hosted by Member of the European Parliament (MEP) Romana Jerković (S&D, Croatia) and Nicolás González Casares […]
The Platform of Plasma Users (PLUS) organised its Stakeholder Consensus Conference on January 23-24 in Estoril (Portugal). The meeting gathered representatives from the following stakeholder organisations: Alpha-1 Belgium, the American Platform of Plasma Users (A-PLUS), the European Blood Alliance (EBA), the European Haemophilia Consortium (EHC), the European Plasma Alliance (EPA), the GBS-CIDP Foundation International, the […]
