Screen4Rare and MEP Alliance for Rare Disease Newborn Screening

Screen4Rare and its founding organisations (IPOPI, ISNS,  and ESID) are pleased to share the meeting report from the recent Screen4Rare  hybrid event on June 29, in Brussels, organised with the support of the MEP Alliance for Rare Disease Newborn Screening (NBS).

The event, which was held in connection with International Neonatal Screening Day, focused on “Establishing Best Practices – How Can Newborn Screening Be Supported in the European Union.” It was hosted by the Member of the European Parliament (MEP) Stelios Kympouropoulos (EPP, Greece), and moderated by Mr Johan Prévot, Executive Director of the International Patient Organisation for Primary Immunodeficiencies (IPOPI).

This first event by Screen4Rare and the MEP Alliance for Newborn Screening for Rare Diseases received significant interest from Key Opinion Leaders around the world, with over 100 participants in-person and online.

The next event will take place during the second half of 2022 and the date will be available in IPOPI’s calendar.