Global immunoglobulin supply: steaming towards the iceberg?

Global immunoglobulin supply: steaming towards the iceberg?

A new article looking at plasma collection and immunoglobulin supply dynamics has just been published. In “Global immunoglobulin supply: steaming towards the iceberg?”, IPOPI’s Executive Director Johan Prevot and Professor Stephen Jolles (University Hospital of Wales) describe how plasma is sourced for fractionation into plasma-derived medicinal products (PDMPs), such as immunoglobulin (Ig) and provide an overview of the global plasma supply environment. Specific areas of growth in immunoglobulin use are identified alongside novel therapies, both of which are likely to have an impact on the access to immunoglobulin therapies in the years to come.

The article describes the current significant geographical imbalance in global plasma supply and the dependency on the United States. It argues for both more plasma supply and greater regionally balanced plasma collection to achieve global sufficiency in PDPMs. It also highlights the need for progress to be made towards a transparent, regulated and well tolerated framework for the coexistence of unpaid and compensated plasma donations. Concluding that these discussions should be informed by the needs of patients for these life-saving therapies, the care of donors and the safety of plasma and PDMPs.

 

 

 

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IPOPI calls for increased plasma collection during IPAW

IPOPI is glad to take part in the celebration of the International Plasma Awareness Week (IPAW), calling for national, regional and international decision makers to consider ways of safely increasing plasma collection. Sufficient plasma collection is much needed to ensure that many patients with primary immunodeficiencies (PIDs) continue to access the life-saving immunoglobulin replacement therapies.

Demand for immunoglobulin has been continuing to rise at a rate of 6-8% yearly in the past years, therefore, ensuring sufficient collection and supply of plasma has been an ongoing concern. The COVID-19 pandemic has led to a worldwide decline of blood and plasma donations which will lead to further strains on the supply of immunoglobulins.

Read the 7 measures IPOPI is calling for: IPOPI Statement for IPAW

 

 

 

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Two-day IPOPI Regional Asian PID Meeting

IPOPI had the great pleasure of welcoming delegates from 19 countries from the Asia-Pacific region to the virtual IPOPI 3rd Regional Asian PID Meeting, held on September 18-19, 2020. During this well attended online meeting the participants learned from both international and regional primary immunodeficiencies (PID) experts on the latest developments in Asia.

The meeting featured many key speakers, explored topics such as PID diagnosis and care priorities in Japan, SEAPID and APSID updates, transition care and much more. The participants also learned from a discussion on Complex regional clinical care cases, as well as an interactive workshop organised for patient representatives in the region.

The meeting was initially scheduled to take place in Kyoto, Japan, in September 2020, back to back with the JSA/WAO/APAPARI 2020 Congress. After careful consideration of the ongoing spread of COVID-19 worldwide, and in order to ensure the safety of all participants, IPOPI decided to move this meeting online, with a shortened programme.

The report and the videos of the meeting will soon be available here.

 

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Screen4Rare continues advocating for newborn screening for rare diseases!

Screen4Rare, the platform let by IPOPI, the International Society for Neonatal Screening (ISNS) and the European Society for Immunodeficiencies (ESID) has made progress in the past months. As part of its strategy, Scree4Rare has reached out to the European Reference Network for PIDs and other auto-immune and auto-inflammatory disorders (ERN RITA) and to the Reference Network for hereditary metabolic disorders (MetabERN). These two Networks provided their support to the initiative and will be willing to support future work.

The platform has also been in contact with representatives of the European Commission and of the European Parliament to continue raising awareness on the importance of the campaign as well as keeping informed the based of supporters in these institutions.

Stay tuned for upcoming updates through the EU Health Policy Platform where Screen4Rare has become a Stakeholder Network to update the wider community of its progress. More information can be found here.

 

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IPOPI Clinical Care Webinars – year-round PID Education

IPOPI Clinical Care Webinars are aimed at patient group leaders, clinicians and nurses with an interest in PID clinical care management

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