IPOPI is launching a new educational video series on primary immunodeficiencies. With this new series, IPOPI intends to raise awareness of these disorders and encourage discussions about the value of early detection and accessibility to treatment. In recent years, IPOPI has increasingly used videos to foster a better understanding of PIDs among stakeholders and to […]
Award winners, finalists and presenters. From the left: Bruce Lim, Prof Surjit Singh, Jessie Qu, Dr Nahla Erwa, Martine Pergent, Otilia Stanga, Christine Jeffery At every Global Patients’ Meeting, the IPOPI community comes together to celebrate the PID Champion Awards. On October 13, during a sparkling award ceremony, people whose actions have contributed positively […]
The new Board of Directors of IPOPI was recently elected by IPOPI’s National Member Organisations, and the results were announced during the Annual General Assembly at the Global Patients’ Meeting on October 14, 2022, in Gothenburg. IPOPI is delighted to congratulate Martine Pergent (France), Otilia Stanga (Romania) and Whitney Ayoub Goulstone (Canada) for being elected […]
The meeting report is now available
IPOPI was pleased to represent the PID patients’ community at the first meeting of the AGORA (Access to Gene therapies fOr RAre disease) consortium. The new consortium, launched on September 22, aims to facilitate access to gene therapies for patients with ultra-rare diseases, in Europe. The meeting was held at London’s Great Ormond Street Hospital […]
