The new Board of Directors of IPOPI was recently elected by IPOPI’s National Member Organisations, and the results were announced during the Annual General Assembly at the Global Patients’ Meeting on October 14, 2022, in Gothenburg. IPOPI is delighted to congratulate Martine Pergent (France), Otilia Stanga (Romania) and Whitney Ayoub Goulstone (Canada) for being elected […]
The meeting report is now available
IPOPI was pleased to represent the PID patients’ community at the first meeting of the AGORA (Access to Gene therapies fOr RAre disease) consortium. The new consortium, launched on September 22, aims to facilitate access to gene therapies for patients with ultra-rare diseases, in Europe. The meeting was held at London’s Great Ormond Street Hospital […]
The International Patient Organisation for Primary Immunodeficiencies (IPOPI) welcomes the European Commission proposal for a Regulation on standards of quality and safety for substances of human origin (SoHO) intended for human application published in July 2022. IPOPI is pleased that this proposal effectively provides: recognition of the importance of patient safety and the need for […]
