The IPOPI Global Multi-Stakeholders’ Summit in 2022 marked a pivotal moment for the Primary Immunodeficiency (PID) community, fostering forward-thinking discussions among stakeholders to shape the future priorities of PID care. In this article, we’re excited to share the comprehensive recommendations that emerged from this groundbreaking summit. From newborn screening to curative therapies During the summit, […]
2022 was a very special year for IPOPI, as we celebrated our 30th anniversary as an organisation! We had the pleasure of celebrating this milestone at the Global Patients’ Meeting in Gothenburg, Sweden, together with over 100 patient advocates from 34 countries. During this festivity, we seized the opportunity to appreciate current and successive Board […]
IPOPI’s 2021 Review of Activities and Achievements is now available. 2021 was a busy year for IPOPI, filled with events, campaigns, and policy efforts to improve care for patients with primary immunodeficiencies. The new strategic plan for 2021–2025 served as a guide to strengthen our educational programme in 2021. Throughout the year, we organised several […]
IPOPI is launching a new educational video series on primary immunodeficiencies. With this new series, IPOPI intends to raise awareness of these disorders and encourage discussions about the value of early detection and accessibility to treatment. In recent years, IPOPI has increasingly used videos to foster a better understanding of PIDs among stakeholders and to […]
ESID, IPOPI together with INGID and J Project
