Entries by IPOPI

IPOPI joins Health First Europe

IPOPI is now a member of Health First Europe (HFE). As a follow-up from the participation in HFE’s General Assembly IPOPI requested membership to this alliance of patients, healthcare workers, academics and healthcare experts and the medical technology industry. As a patient organization, IPOPI will bring a first-hand insight of what are the key policy issues for […]

IPOPI Review of Activities and Achievements – 2013

The 2013 IPOPI Review of Activities and Achievements is out and available online! In this report find out about IPOPI’s activities and achievements during the past year. 2013 was a historical for IPOPI and for the global PID community with great initiatives taking place in all regions of the world. IPOPI Review of Activities and […]

IPOPI Patient Needs and Outlooks Study Publication

IPOPI is pleased to announce the publication of its survey manuscript looking at Improving current immunoglobulin therapy for patients with primary immunodeficiency: quality of life and views on treatment. The purpose of this study was to gain an understanding of how existing PID therapies affect patient lives and to identify desired improvements to immunoglobulin treatments. […]