IPOPI PID Forum Discusses AI Innovations for Patient-Centred Healthcare in the EU

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On January 27, 2025, the IPOPI PID Forum brought together a vibrant group of patient advocates, experts, and policymakers to explore how artificial intelligence (AI) can transform healthcare for people with Primary Immunodeficiencies (PIDs) in the European Union. The EU PID Forum on “Understanding AI’s Ability to Transform PID Healthcare” was chaired by the Member of the European Parliament (MEP) András Kulja (EPP, Hungary) and was held at the European Parliament in Brussels (Belgium).

The Forum, moderated by Leire Solis, IPOPI’s Health Policy and Advocacy Director, explored the challenges and opportunities to ensure a patient-centred use of AI, from improving diagnostics to enhancing care and treatment.

The speakers of this Forum were:

  • MEP Andras Kulja on the need to ensure that AI is fit for purpose and patient-centred;
  • Martine Pergent, IPOPI President, setting the scene and presenting IPOPI’s approach to AI in the healthcare environment;
  • Dr Jacques Riviere, a paediatric immunologist from Vall d’Hebron University Hospital, on the use of AI to improve PID diagnosis;
  • Dr Helen Leavis, from UMC Utrecht, showcased real-world examples of AI in clinical practice, spotlighting its potential and challenges
  • Johan Prevot, IPOPI Executive Director, explained the project which IPOPI is currently developing that uses AI to foster the diagnosis of specific PID.
  • Martin Ulbrich, an AI expert from the AI Office of the EU Commission, explains the Commission’s approach to AI;
  • Nooshin Amirifar, from CEN-CENELEC, about the Joint Technical Committee 21 on Artificial Intelligence created to harmonise rules on AI throughout the EU while allowing for appropriate representation and effective participation of relevant stakeholders.

There was a full room at the Forum, with representation of several NMOs: Otilia Stanga (President of the Romanian Association for Patients with PIDs, ARPID, and IPOPI treasurer), David Jimenez (Board member of the Spanish PID patient organisation, AEDIP), Dr Eva Varga (Board member of the Hungarian PID patient organisation) and Marie-Sophie Enry-Aude (Board member of the French PID patient organisation, IRIS).

IPOPI would like to thank CSL Behring, Grifols and Takeda for their continued support. 

The report from the event will shortly be made available. Stay tuned!

 

 

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