The Dublin Consensus Statement 2012 on optimised supply of plasma-derived medicinal products
Key publicationsIrish Haemophilia Society, Steering Group PLUS, Dublin, Ireland
IPOPI PID Patient Needs & Outlooks Survey
Key publicationsThe IPOPI PID Patient Needs & Outlooks Survey was carried out during the second half of 2011 and is based on completed questionnaires from 300 patients and care-givers of people living with a primary immunodeficiency and treated with immunoglobulin replacement therapy. The sample of respondents was sourced through IPOPI’s national member Organisations (NMOs) in 21 countries and was self-selecting amongst those invited by participating NMOs. The survey report provides detail on the current landscape, outlook and needs of people living with a PID in relation to their circumstances, outlooks and treatment needs. It explores the patient experience of PID, covering aspects from treatment and unmet needs to the impact of PID on daily and social life. The conjoint section asked respondents to evaluate a number of treatment options in rotation to establish unmet needs. IPOPI would like to warmly thank its participating National Member Organisations and all participants for their collaboration in this project.
Contact us
Belgium
Avenue Louise/Louizalaan 65, Bte 11
BE-1050 Brussels, Belgium
IPOPI aisbl is an international non-profit association registered in Belgium
Numéro d’entreprise
BE 0761.784.055
Email: info@ipopi.org
Tel: +32 2 790 73 66 (Belgium)