IPOPI Global Patients Meeting 2020
Welcome to the online XVI IPOPI’s Global PID Patients Meeting!
The XVI IPOPI Global PID Patients Meeting was planned to take place this year in Birmingham, UK, between October 14-17, back to back with the European Society for Immunodeficiencies (ESID) and International Nursing Group for Immunodeficiencies (INGID) biennial meetings. The COVID-19 pandemic has made us adjust our plans and move this meeting into a virtual format.
The 2020 Global PID Patients Meeting will take place on October 15 and 16, between 13h and 17h30 CEST.
Nothing replaces in-person interaction but this meeting is cost free, doesn’t require traveling and several members of your NMO can attend! We look forward to getting together with all of you so be sure to check the programme and register!
See you soon!
Wednesday 14 October 2020, 16h45-17h30 CEST |
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| Time | Presentation | Speakers/Moderators/System |
|---|---|---|
| Opening Session (on ESID system) | ESID Congress system – have your user/pass at hand | |
| 17:20 – 17:35 | ESID, IPOPI & INGID Opening Ceremony | Martine Pergent |
Day 1: Thursday 15 October 2020, 13-16h30 CEST |
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| Time | Presentation | Speakers/Moderators | ||
|---|---|---|---|---|
| 13:00-14:00 | Session 1: Welcome Session | IPOPI Zoom meeting | ||
| 13:00 | Welcome, introduction & ice breaker | Martine Pergent | ||
| 13:20 | IPOPI Global Perspectives Presentation | Johan Prevot | ||
| 13:35 | The coming decade from the scientific and medical perspective | Dr Nizar Mahlaoui | ||
| 13:50 | Q&A | Live | ||
| 14:00-14:45 | Session 2: Bad Bugs – Managing infections |
ESID Congress system – have your user/pass at hand |
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| 14:00 | Welcome, introduction & moderation | Jose Drabwell | ||
| 14:05 | Lessons learnt from COVID19 | Dr Stuart Tangye | ||
| 14:20 | Managing specific infections (bacteria and viruses) in PID – how do we tackle them? | Dr David Lowe | ||
| 14:35 | Q&A | ALL (live) | ||
| 14:45- 15:15 | 30 min break | |||
| 15:15-16:20 | Session 3 (sponsored by Takeda) – Living life with PID: from childhood to ageing | ESID Congress system – have your user/pass at hand | ||
| 15:15 | Welcome, introduction & moderation | John Seymour | ||
| 15:20 | What do we mean by transition care? | Dr Nizar Mahlaoui | ||
| 15:30 | ERN-RITA transition survey & regional challenges | Dr Siobhan Burns | ||
| 15:45 | Supporting patients’ needs through Patients Council validation | Lillian Ng, Takeda | ||
| 16:00 | From the principles of care to the PID Life Index | Martine Pergent | ||
| 16:10 – 16:20 | Q&A | Live | ||
| 16:25-16:45 | Luciano Vassalli Award Ceremony | IPOPI Zoom meeting | ||
| 16:25 | Presentation of the Luciano Vassalli Award by Christine Jeffery | |||
| 16:30 | Winner speech | |||
Day 2: Friday 16 October 2020, 11:00-17:00 CEST |
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| Time | Presentation | Speakers/Moderators/ System |
|---|---|---|
| 10:45- 12:15 | ESID-INGID-IPOPI Joint Session | |
| Quality of Life and Patient’s Perspective | ESID, INGID and IPOPI representatives | |
| 13:00-14:00 | IPOPI Annual General Assembly | Closed session, separate registration needed. IPOPI Zoom meeting |
| 13:00 | Welcome, introduction & moderation | Martine Pergent/Johan Prevot |
| AGM agenda is circulated separately. | The IPOPI AGM is only open to IPOPI’s NMOs! | |
| 14:00-15:10 | Session 4 – PID crossovers | ESID Congress system – have your user/pass at hand |
| 14:00 | Welcome & set the scene | Bruce Lim |
| 14:05 | Secondary immunodeficiencies | Dr Silvia Sánchez-Ramón |
| 14:25 | Auto-immunity and auto-inflammation | Dr Virgil Dalm |
| 14:45 | Allergy | Dr Joshua Milner |
| 15:00 | Q&A Live | |
| 15:10– 15:40 30 min break |
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| 15:40-16:40 | Session 5: Grow your NMO (on ESID system) | ESID Congress system – have your user/pass at hand |
| Session moderators: Christine Jeffery & Martine Pergent (5 min introduction)
Topics: 30 min in break out rooms |
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| How to lead an NMO: be an effective stakeholder | Topic moderators: Andrea Gressani Case study: Case study: ARPID (Romania) | |
| How to engage young people: next generation leadership | Topic moderators: Bruce Lim Case study: AIP (Italy) | |
| How to get involved in Clinical Trials and medical research | Topic moderators: Jose Drabwell Case study: DSAI (Germany) | |
| How to advocate: make your case! | Topic moderators: John Seymour Case study: CIPO (Canada) | |
| How to lead a PID patient group in a low-income country | Topic moderators: Martine Pergent, Case study : FIDEP (Bolivia) | |
| Presentation of findings | Topic groups representatives | |
| 16:45-17:00 | LeBien Award Ceremony (on IPOPI Zoom) | IPOPI Zoom meeting |
| 16:45 | LeBien Award Ceremony presented by Martine Pergent | |
| 16:50 | Winner speech | |
| 17:05 | Farewell remarks by Martine Pergent | |
This meeting was supported by IPOPI’s Corporate Partners:
