Entries by IPOPI
Screen4Rare continues advocating for newborn screening for rare diseases!
Screen4Rare, the platform let by IPOPI, the International Society for Neonatal Screening (ISNS) and the European Society for Immunodeficiencies (ESID) has made progress in the past months. As part of its strategy, Scree4Rare has reached out to the European Reference Network for PIDs and other auto-immune and auto-inflammatory disorders (ERN RITA) and to the Reference […]
IPOPI calls for increased plasma collection during IPAW
IPOPI is glad to take part in the celebration of the International Plasma Awareness Week (IPAW), calling for national, regional and international decision makers to consider ways of safely increasing plasma collection. Sufficient plasma collection is much needed to ensure that many patients with primary immunodeficiencies (PIDs) continue to access the life-saving immunoglobulin replacement therapies. […]
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