Over the last two years, IPOPI combined its efforts with a worldwide multi-disciplinary team of specialists to develop the “Primary Immunodeficiencies Principles of Care”. The paper outlines the key necessary elements and policies that should be in place to provide a “gold standard” framework of diagnosis and care for primary immunodeficiencies. IPOPI is delighted to […]
IPOPI held yesterday its 5th PID Forum at the European Parliament in Brussels (Belgium), which was co-chaired by Dr Cristian Busoi MEP and Dr Boreslaw Piecha MEP. This edition focused on the need for a comprehensive framework for care and policy for PIDs. Patient organisations, stakeholder groups, European and international organisations and industry representatives gathered […]
Because infectious diseases are a major source of morbidity and mortality in the majority of patients with primary immunodeficiencies (PIDs), the application of a prophylactic regimen is often necessary. However, given the variety of PIDs and pathogens involved, and because evidence is scarce, practices are heterogeneous. To homogenize practices, the French National Reference Centre for […]
The Autumn 2014 edition of IPOPI’s e-News is out and can be accessed here. Check out the new section NMO Focus with an article about the Portuguese NMO APDIP and get in touch with our preparation work for the second edition of IPIC2015. e-News is a quarterly electronic newsletter covering the latest activities and news items from […]
IPOPI is now a member of Health First Europe (HFE). As a follow-up from the participation in HFE’s General Assembly IPOPI requested membership to this alliance of patients, healthcare workers, academics and healthcare experts and the medical technology industry. As a patient organization, IPOPI will bring a first-hand insight of what are the key policy issues for […]
