Early diagnosis and care

IPOPI Newborn Screening Activities

IPOPI is currently combining efforts at international and regional level with its National Member Organisations (NMOs) to organise national political and awareness campaigns.

NMOs around the world are leading great initiatives at national level in order to request the inclusion of SCID amongst the diseases which newborns are screened for at birth. IPOPI endeavours to assist and support their efforts in order to ensure that there is coordination between national, regional and international levels.

Globally, IPOPI actively supports national political advocacy campaigns aimed at accelerating the implementation of SCID newborn screening in a step-by-step approach at national level. IPOPI plays an important role in the outreach to Ministers of Health, heads of the national newborn screening committees or regional departments of health, in emphasising the need for SCID screening of babies at birth. 

IPOPI supports its NMOs in organising meetings with national policy makers to advocate for SCID newborn screening, as well as providing expertise, advice and support to the NMO activities when needed. 

IPOPI Participation in Newborn Screening at International events

As one of the founding members of Screen4Rare

IPOPI Participation in Newborn Screening at Regional events

As one of the founding members of Screen4Rare

IPOPI National Parliamentary events