Member organisations
IPOPI’s National Member Organisations (NMOs), national patient groups that represent the interests of primary immunodeficiencies patients, are the reason for IPOPI’s existence.
IPOPI recognises one national patient group per country.
Algeria Algerian Association of People with Primary Immunodeficiency
Address
Algeria
Email/Web
Argentina Asociación Ayuda al Paciente con Inmunodeficiencia Primaria
Address
Argentina
Austria Österreichische Selbsthilfegruppe primärer Immum Defekte
Address
Austria
Australia The Immune Deficiency Foundation of Australia
Address
Australia
Bulgaria Association of People with Congenital Immunodeficiency
Address
Bulgaria
Email/Web
Belgium Belgian Patient Organisation for Primary Immunodeficiencies
Address
Abelenstraat, 20 in 2640 Mortsel
Belgium
Brazil Eu Luto Pela Imuno Brasil
Address
Av. Emílio Ribas 1056, sala 403, Guarulhos -SP Brazil
Brazil
Bolivia Fundacion FIDEP-Bolivia
Address
Bolivia
Bangladesh Primary Immunodeficiency Patients Society of Bangladesh
Address
28/1/B, B.N. Tower (4th Floor), Toyenbee Circular Road, Motijheel C/A, Dhaka -1000, Bangladesh.
Bangladesh
Belarus The republican public organisation of patients (parents) with primary immunodeficiency
Bosnia & Herzegovina Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje
Address
Bosnia & Herzegovina
Email/Web
Phone
+387 66910677
Cyprus Cyprus Primary Association and Friends
Address
Kalli Sakka 5, Parisinos, Strovolos 2066, Nicosia
Cyprus
Colombia Fundación "Diana García de Olarte" para las Inmunodeficiencias Primarias
Address
Colombia
Chile Fundación IDP Chile
Address
Chile
Email/Web
Canada ImmUnity Canada
Address
#206-645 Fort Street Victoria, BC V8W 1G2
Canada
China PID Care China
Address
China
Denmark Immun Defekt Foreningen
Address
Denmark
Estonia Estonian Patient Society for Primary Immunodeficiencies
Address
Estonia
El Salvador Fundación Escudo de Amor para las Inmunodeficiencias Primarias (Love Shield for PID Foundation)
Address
El Salvador
Ecuador Fundación PIDE
Address
Ecuador
Egypt The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency
Address
Egypt
Email/Web
Finland Immunipuutospotilaiden yhdistys ry
Address
Immuunipuutospotilaiden yhdistys ry Turkismiehenkuja 6 A 2 00370 Helsinki
Finland
France Immuno-Deficience Primitive: Recherche, Information, Soutien
Address
247 Colonel Péchot Avenue
France
Germany Deutsche Selbsthilfe Angeborene Immundefekte e. V.
Address
Germany
Greece GALINOS—Immune Deficiency Association of Greece
Address
Greece
Hungary Hungarian Organization for Patients with Immunodeficiencies
Address
Hungary
Hong Kong Primary Immunodeficiency League
Address
Hong Kong
Italy Associazione Immunodeficienze Primitive
Address
Italy
Email/Web
Israel Bubble care
Iceland Icelandic Immune Deficiency Foundation
India Indian Patients Society for Primary Immunodeficiency
Address
India
Iran Iranian Primary Immunodeficiency Association
Address
Iran
Ireland Irish Primary Immunodeficiency Association
Address
Rav Ashi street 7/41
Ireland
Indonesia Perhimpunan Pasien Imunodefisiensi Primer Indonesia
Address
Indonesia
Email/Web
dimas@imunodefisiensi-indonesia.org
https://www.imunodefisiensi-indonesia.org
Phone
+62 8129836493
Japan PID Tsubasa-no-Kai
Address
17-1-706 Nihonmashi-Kabutocho, Chuo-ku, Tokyo 103-0026 Japan
Japan
Email/Web
Kazakhstan Society of Patients with Primary Immune Deficiency "ARAY"
Address
Kazakhstan
Email/Web
Phone
+7 727223 6733
Kenya The Primary Immunodeficiencies Association of Kenya
Lebanon Association of Lebanese Patients with Primary Immunodeficiency
Address
Jal eel Dib Highway, Yachoui center, 7th floor, Metn, Lebanon
Lebanon
Lithuania Lithuanian society of primary immunodeficiencies
Address
Italu str.2, LT-11329 Vilnius, Lithuania
Lithuania
Mexico Asociación Mexicana para Pacientes con Inmunodeficiencias Primarias
Address
Mexico
Morocco Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitifs
Address
Morocco
Malaysia Malaysia Patient Organization of Primary Immunodeficiencies
Address
Malaysia
Nicaragua Asociación Nicaraguense de Pacientes con Imunodeficeincias Primarias
New Zealand Immunodeficiency Foundation – New Zealand
Address
New Zealand
Nepal NePOPII
Address
Nepal
Email/Web
Norway Norwegian Immunodeficiency Organisation
Address
Norway
Netherlands Stichting voor Afweerstoornissen
Address
Groenstraat 17 5386KW Geffen The Netherlands
Netherlands
Email/Web
info@stichtingvoorafweerstoornissen.nl
https://www.stichtingvoorafweerstoornissen.nl/
Phone
+31 621593548
Peru Asociación Peruana de Inmunodeficiencias Primarias – No somos Invisibles
Address
Urbanización navidad de villa- Chorrillos – Lima
Peru
Email/Web
Phone
51967604947
Portugal Associação Portuguesa de Doentes com Imunodeficiência Primária
Address
Portugal
Poland Association for Patients with Primary Immunodeficiencies
Address
Poland
Email/Web
Paraguay Association of parents of children and adults with primary immunodeficiency of Paraguay
Address
Paraguay
Email/Web
Philippines Philippine Patient Organization for Primary Immunodeficiencies
Address
17 San Isidro Arcade 128 Dona Soledad Barangay Don Bosco 1711 Paranaque City
Philippines
Puerto Rico Puerto Rico Alliance of PID patients
Address
Puerto Rico
Russia Association for primary immune deficient patients
Address
Russia
Romania Romanian Association for Patients with Primary Immunodeficiencies
Address
Romania
Spain Asociación española de deficits immunitarios primarios
Address
Cl. Manuel Pombo Angulo, 10 2º Puerta 5 28050 Madrid
Spain
Senegal Association sénégalaise des déficients immunitaires primitifs
Address
Senegal
Email/Web
Phone
+221 76 685 92 80
South Korea PID Korea
Address
South Korea
Sweden Primaer Immunbrist Organisationen
Address
Sweden
South Africa Primary Immunodeficiency Network of South Africa
Address
South Africa
Switzerland Schweizerische Vereinigung für Angeborene Immundefekte
Address
Switzerland
Slovakia Slovakian Association of Patients with Primary Immunodeficiency
Address
Slovakia
Slovenia Slovenian Society for Immune Disorders
Address
Slovenia
Sudan Sudanese Organization for patients with Primary Immunodeficiency
Address
Sudan
Email/Web
Serbia Supporting Persons with Primary ImmunoDeficiencies
Tunisia Association Tunisienne des patients atteins des Déficits Immunitaires Primitifs
Address
13, Place Pasteur 1002 Tunis Belvédère Tunisia
Tunisia
Turkey Immun Yetmezlik Dernegi
Thailand Thai Patient Organization for Primary Immundeficiency
Address
27/43 The Plant 2 Village, Khanayao District, Khannayao Sub-district, Kanchanapisek Road, 10230 Bangkok Thailand
Thailand
Uruguay Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias
Uganda DOVE Primary Immune Deficiency Patients Organisation
Address
Uganda
United States of America Immune Deficiency Foundation
Address
7550 Teague Rd, Suite 220, Hanover MD, 21076.
United States of America
United Kingdom Immunodeficiency UK
Address
Immunodeficiency UK, PO Box 12635, Colchester, CO7 5AN
United Kingdom
Ukraine Rare Immune Diseases
Address
4 Levanevskogo street., ap. 65/1, 03058 Kyiv, Ukraine
Ukraine
Venezuela Inmunodeficiencias Primarias Venezuela
Address
Venezuela
Vietnam Vietnam Primary Immunodeficiency Patient Support Group
Address
Vietnam