Member organisations

IPOPI’s National Member Organisations (NMOs), national patient groups that represent the interests of primary immunodeficiencies patients, are the reason for IPOPI’s existence.
IPOPI recognises one national patient group per country.

Algeria Algerian Association of People with Primary Immunodeficiency

Address

Algeria

Email/Web

Argentina Asociación Ayuda al Paciente con Inmunodeficiencia Primaria

Address

Argentina

Email/Web

info@aapidp.com.ar

https://www.aapidp.com.ar

Phone

+54 91144154415

Austria Österreichische Selbsthilfegruppe primärer Immum Defekte

Address

Austria

Email/Web

info@oespid.org

https://www.oespid.at

Phone

+664 1830169

Australia The Immune Deficiency Foundation of Australia

Address

Australia

Email/Web

info@idfa.org.au

Phone

+61 1800100198

Bulgaria Association of People with Congenital Immunodeficiency

Address

Bulgaria

Email/Web

Belgium Belgian Patient Organisation for Primary Immunodeficiencies

Address

Abelenstraat, 20 in 2640 Mortsel

Belgium

Email/Web

info@bepopi.be

https://www.bepopi.be

Phone

+32 485560977

Brazil Eu Luto Pela Imuno Brasil

Address

Av. Emílio Ribas 1056, sala 403, Guarulhos -SP Brazil

Brazil

Email/Web

eulutopelaimuno.org@gmail.com

Phone

55-16-99222-9150

Bolivia Fundacion FIDEP-Bolivia

Address

Bolivia

Email/Web

vivian.kohlberg@gmail.com

Phone

+591 75119119

Bangladesh Primary Immunodeficiency Patients Society of Bangladesh

Address

28/1/B, B.N. Tower (4th Floor), Toyenbee Circular Road, Motijheel C/A, Dhaka -1000, Bangladesh.

Bangladesh

Email/Web

iqbal_hossain.bdnt@yahaoo.com

Phone

´8801711014621

Belarus The republican public organisation of patients (parents) with primary immunodeficiency

Address

Belarus

Email/Web

http://immunodeficiency.org.by/english

Phone

00375295549104,00375 017 2654 222

Bosnia & Herzegovina Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje

Address

Bosnia & Herzegovina

Email/Web

Phone

+387 66910677

Cyprus Cyprus Primary Association and Friends

Address

Kalli Sakka 5, Parisinos, Strovolos 2066, Nicosia

Cyprus

Email/Web

primaryimmunodeficiency.cyprus@gmail.com

Phone

+357 99610534

Colombia Fundación "Diana García de Olarte" para las Inmunodeficiencias Primarias

Address

Colombia

Chile Fundación IDP Chile

Address

Chile

Canada ImmUnity Canada

Address

#206-645 Fort Street Victoria, BC V8W 1G2

Canada

China PID Care China

Denmark Immun Defekt Foreningen

Address

Denmark

Estonia Estonian Patient Society for Primary Immunodeficiencies

Address

Estonia

Email/Web

kersti13@gmail.com

Phone

+372 56668277

El Salvador Fundación Escudo de Amor para las Inmunodeficiencias Primarias (Love Shield for PID Foundation)

Address

El Salvador

Email/Web

hectoramaya09@gmail.com

Phone

+503 78609798

Ecuador Fundación PIDE

Address

Ecuador

Email/Web

nenita393@hotmail.com

Phone

593-0984896930

Egypt The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency

Address

Egypt

Email/Web

Finland Immunipuutospotilaiden yhdistys ry

Address

Immuunipuutospotilaiden yhdistys ry Turkismiehenkuja 6 A 2 00370 Helsinki

Finland

France Immuno-Deficience Primitive: Recherche, Information, Soutien

Address

247 Colonel Péchot Avenue

France

Germany Deutsche Selbsthilfe Angeborene Immundefekte e. V.

Address

Germany

Greece GALINOS—Immune Deficiency Association of Greece

Hungary Hungarian Organization for Patients with Immunodeficiencies

Hong Kong Primary Immunodeficiency League

Italy Associazione Immunodeficienze Primitive

Address

Italy

Israel Bubble care

Address

Israel

Email/Web

https://www.bubblecare.org.il/

Phone

+972 528797337

Iceland Icelandic Immune Deficiency Foundation

Address

Iceland

Email/Web

https://www.lindisland.net/

Phone

+354 6988806

India Indian Patients Society for Primary Immunodeficiency

Iran Iranian Primary Immunodeficiency Association

Address

Iran

Email/Web

somayeh.khojaste@gmail.com

Phone

+98 9394017439

Ireland Irish Primary Immunodeficiency Association

Address

Rav Ashi street 7/41

Ireland

Indonesia Perhimpunan Pasien Imunodefisiensi Primer Indonesia

Japan PID Tsubasa-no-Kai

Address

17-1-706 Nihonmashi-Kabutocho, Chuo-ku, Tokyo 103-0026 Japan

Japan

Kazakhstan Society of Patients with Primary Immune Deficiency "ARAY"

Address

Kazakhstan

Email/Web

Phone

+7 727223 6733

Kenya The Primary Immunodeficiencies Association of Kenya

Address

Kenya

Email/Web

pidskenya@gmail.com

Phone

+254 725520066

Lebanon Association of Lebanese Patients with Primary Immunodeficiency

Address

Jal eel Dib Highway, Yachoui center, 7th floor, Metn, Lebanon

Lebanon

Email/Web

alppi2024@gmail.com

Phone

9613907838

Lithuania Lithuanian society of primary immunodeficiencies

Address

Italu str.2, LT-11329 Vilnius, Lithuania

Lithuania

Email/Web

draugija.imunas@gmail.com

Phone

+370 60722979

Mexico Asociación Mexicana para Pacientes con Inmunodeficiencias Primarias

Address

Mexico

Morocco Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitifs

Address

Morocco

Malaysia Malaysia Patient Organization of Primary Immunodeficiencies

Address

Malaysia

Nicaragua Asociación Nicaraguense de Pacientes con Imunodeficeincias Primarias

Address

Nicaragua

Email/Web

asociacion.anipidp@gmail.com

Phone

+505 8452-5111

New Zealand Immunodeficiency Foundation – New Zealand

Address

New Zealand

Nepal NePOPII

Address

Nepal

Email/Web

Norway Norwegian Immunodeficiency Organisation

Netherlands Stichting voor Afweerstoornissen

Address

Groenstraat 17 5386KW Geffen The Netherlands

Netherlands

Peru Asociación Peruana de Inmunodeficiencias Primarias – No somos Invisibles

Address

Urbanización navidad de villa- Chorrillos – Lima

Peru

Email/Web

Phone

51967604947

Portugal Associação Portuguesa de Doentes com Imunodeficiência Primária

Address

Portugal

Email/Web

geral@apdip.pt

www.apdip.pt

Phone

+351 914342169

Poland Association for Patients with Primary Immunodeficiencies

Address

Poland

Paraguay Association of parents of children and adults with primary immunodeficiency of Paraguay

Address

Paraguay

Philippines Philippine Patient Organization for Primary Immunodeficiencies

Address

17 San Isidro Arcade 128 Dona Soledad Barangay Don Bosco 1711 Paranaque City

Philippines

Puerto Rico Puerto Rico Alliance of PID patients

Address

Puerto Rico

Russia Association for primary immune deficient patients

Address

Russia

Email/Web

info@oppid.ru

http://oppid.ru/

Phone

+7 9067938340

Romania Romanian Association for Patients with Primary Immunodeficiencies

Spain Asociación española de deficits immunitarios primarios

Address

Cl. Manuel Pombo Angulo, 10 2º Puerta 5 28050 Madrid

Spain

Email/Web

aedip@aedip.com

https://www.aedip.com

Phone

+34 616587865

Senegal Association sénégalaise des déficients immunitaires primitifs

Address

Senegal

Email/Web

Phone

+221 76 685 92 80

South Korea PID Korea

Address

South Korea

Sweden Primaer Immunbrist Organisationen

South Africa Primary Immunodeficiency Network of South Africa

Address

South Africa

Email/Web

info@pinsa.org.za

https://www.pinsa.org.za

Phone

+27 0823654663

Switzerland Schweizerische Vereinigung für Angeborene Immundefekte

Address

Switzerland

Slovakia Slovakian Association of Patients with Primary Immunodeficiency

Slovenia Slovenian Society for Immune Disorders

Sudan Sudanese Organization for patients with Primary Immunodeficiency

Address

Sudan

Email/Web

Serbia Supporting Persons with Primary ImmunoDeficiencies

Address

Serbia

Email/Web

gojkovicnatasa86@gmail.com

Phone

+381 112602030

Tunisia Association Tunisienne des patients atteins des Déficits Immunitaires Primitifs

Address

13, Place Pasteur 1002 Tunis Belvédère Tunisia

Tunisia

Turkey Immun Yetmezlik Dernegi

Address

Turkey

Thailand Thai Patient Organization for Primary Immundeficiency

Address

27/43 The Plant 2 Village, Khanayao District, Khannayao Sub-district, Kanchanapisek Road, 10230 Bangkok Thailand

Thailand

Email/Web

ronnapee.camry@gmail.com

Phone

+66 851225171

Uruguay Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias

Address

Uruguay

Email/Web

aupidp@gmail.com

Phone

+598 96223375

Uganda DOVE Primary Immune Deficiency Patients Organisation

Address

Uganda

Email/Web

winmuk-nam@yahoo.com

Phone

+256 774956574

United States of America Immune Deficiency Foundation

Address

7550 Teague Rd, Suite 220, Hanover MD, 21076.

United States of America

United Kingdom Immunodeficiency UK

Address

Immunodeficiency UK, PO Box 12635, Colchester, CO7 5AN

United Kingdom

Ukraine Rare Immune Diseases

Address

4 Levanevskogo street., ap. 65/1, 03058 Kyiv, Ukraine

Ukraine

Venezuela Inmunodeficiencias Primarias Venezuela

Address

Venezuela

Email/Web

idpvenezuela@gmail.com

Phone

+58 4169759057

Vietnam Vietnam Primary Immunodeficiency Patient Support Group

Address

Vietnam

Email/Web

thuchuyen.hn@gmail.com

Phone

+84 0972347272