EDUCATION

This page is designed to compile the IPOPI Educational Tools available. We encourage you to use these resources for your initiatives.

Share them with your members, healthcare professionals, and other stakeholders in your country to help spread knowledge about Primary Immunodeficiencies (PIDs).

IPOPI LEAFLETS

• • Informative brochures covering various aspects of Primary Immunodeficiencies (PIDs), including symptoms, treatments, and patient care.
  • These are available in multiple languages.
  • Is you language missing? Reach out to IPOPI at info@ipopi.org and help us make these resources available for your community.
  • Find them here.

IPOPI MINI-DOCUMENTARIES

• Short video films that provide information about Immunodeficiencies, featuring insights from patients and healthcare professionals. They highlight important issues faced by the PID community, enhance knowledge, and foster greater stakeholder engagement on specific topics.

Topics:

• Turning plasma into life-saving treatments (2024)

• Immunoglobulins: Essential medicines to treat immunodeficiencies (2024)

• A closer look at Primary and Secondary Immunodeficiencies (2023)

• PIDs and autoinflammation – exploring the crossover (2021)

IPOPI PID MINI-SERIES

• A brief video series focused on primary immunodeficiencies (PIDs) that aims to raise awareness of these disorders and encourage discussions about the importance of early detection and access to treatment.

Topics:

• What are Primary Immunodeficiencies?

• Diagnosing Primary Immunodeficiencies

• Treating Primary Immunodeficiencies

Subtitles are available in 10 languages, with the support of our NMOs: English, Arabic, Chinese, Danish, Dutch, French, Italian, Portuguese, Romanian and Spanish.

IPOPI NMO WEBCHATS

• A unique global forum, connecting PID patient representatives worldwide — a space where ideas come together, promoting shared learning and collaboration globally!

Here’s why you shouldn’t miss out:

• Expert Insights: Engage with PID experts, advocacy specialists, and skill-building professionals.
• Interactive Lectures: Ask your questions directly to experts in an exclusive session.
• Global Connectivity: Connect, share, and learn from other PID patient organisations from around the globe.

Invitations are sent to our members directly.

IPOPI HARD TALKS

• Are webinars featuring interactive discussions and lively debates between expert speakers, addressing challenging topics to increase expertise in crucial clinical care issues. These webinars are aimed at clinicians, nurses, and patient group leaders interested in PID diagnosis and clinical management.
• Attending these webinars and watching recordings of previous ones, can be a valuable educational tool for your members and physicians, helping them learn more about important PID topics.

Topics:

• Insights on the impact of viral respiratory infections in antibody deficiency (September 19, 2024)

• Advances in management and treatment of X-linked Agammaglobulinemia (July 11, 2024)

• Diagnosis and Management of Paediatric Congenital Athymia (June 7, 2024)

• Secondary immunodeficiencies – Haematological and immunological insights (May 17, 2024)

• APDS Diagnosis (October 3, 2023)

• Primary Immunodeficiencies and Allergy Crossovers (July 11, 2023)

IPOPI CLINICAL CARE WEBINARS

• These webinars were designed for clinicians, nurses, and patient group leaders interested in PID clinical care management. They feature lectures followed by a Q&A session, offering valuable insights and discussions on key clinical care topics.

Topics:

• The A To Z Of APDS (November 22, 2022)

• Wiskott-Aldrich Syndrome (October 4, 2022)

• Transition care: Exploring the Journey (June 8, 2021)

• Lung complications in PID (April 15, 2021)

• Genetic testing for PIDs (December 20, 2020)

• Shortening the PID diagnostic delay with calculated globulins (July 3, 2020)

• Hyperinflammation in PID & how it differs from COVID-19 (May 27, 2020)

• PID & Cancer – Exploring the Crossover (April 28, 2020)

• PID and Vaccines (September 9, 2020)

• WHIM Syndrome (October 20, 2020)

• PID and Secondary Immunodeficiencies Crossover (November, 16, 2020)

IPOPI Q-ID APP

• Q-ID is a fun and interactive quiz app designed to test and expand your knowledge of primary immunodeficiencies (PIDs).
• With quizzes covering topics like diagnosis, treatment, and research, it’s a great way to learn and raise awareness about PIDs.
• We encourage you to share this app with your members, family, friends, and colleagues. It could also be a fun and engaging way to wrap up a Family Day event in your NMO.
• Join from any device with a web browser – no download needed. Sign up and play here.