Key publications
Statement of solidarity and support to those affected by the war in Ukraine
ESID, IPOPI together with INGID and J Project
Screen4Rare celebrates Rare Disease Day
In light of Rare Disease Day, Screen4Rare advocates the importance of newborn screening (NBS) as a key element to access to care.
New publication presenting the PID environment in 60 countries
Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index
IPOPI’s 2020 Review of Activities and Achievements
GPM, Webinars, PID Forum and more, this past 2020
The International Neonatal Screening Day is born!
IPOPI, in partnership with ISNS and the ESID, announces the launch of the first International Neonatal Screening Day on June 28, 2021.
SAFE Task Force releases two position statements
Two papers aimed for NMO representatives use in their advocacy work on access to immunoglobulin replacement therapies
COVID-19 Learning Expedition Report released
IPOPI launched the COVID-19 Learning Expedition (LEX) in July 2020, to identify, analyse and provide recommendations on issues brought about by the COVID-19 pandemic for patients with primary immunodeficiency (PID).
