Member organisations
IPOPI’s National Member Organisations (NMOs), national patient groups that represent the interests of primary immunodeficiencies patients, are the reason for IPOPI’s existence.
IPOPI recognises one national patient group per country.
Algeria
Algerian Association of People with Primary Immunodeficiency
Argentina
Asociación Ayuda al Paciente con Inmunodeficiencia Primaria (AAPIDP)
Address
Roberta Anido de Pena
Bollini 2157
Capital Federal Bs. As
Codigo Postal 1425
Argentina
Email/Web
Phone
+54 011 4805 4052
+54 9 11 4415 4415
Australia
The Immune Deficiency Foundation of Australia (IDFA)
Address
Carolyn Dews
Executive Officer IDFA
Address: PO Box 969 Penrith NSW 2751
5 North Circle Blaxland NSW 2774
Australia
Email/Web
Phone
Office: 1800 100 198
Mobile: 0409 945 114
Austria
Österreichische Selbsthilfegruppe primärer Immum Defekte (ÖSPID)
Address
Karin Modl
Eichkogelstraße 7
3004 Riederberg
Österreich
Belarus
The republican public organisation of patients (parents) with primary immunodeficiency “Save immunity”
Address
Ilya Murashkin
Minsk, st. Voronyanskogo 50/4-188 of. 212
Belarus
Belgium
Belgian Patient Organisation for Primary Immunodeficiencies (BePOPI)
Address
Wim De Geest - President
Abelenstraat, 20 in 2640 Mortsel
B-2640
Belgium
Bolivia
Fundacion FIDEP-Bolivia
Bosnia and Herzegovi
Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje (POPID)
Address
Dzenita Subasic: Founder
Sarajevo, Trg Heroja, 30, Bosnia & Harzegovina
Brazil
ANPIC (Associação Nacional dos Portadores de Imunodeficiência Primária Congênita)
Address
Alexandre Fonseca: Communications Director
Alameda Alváro Celso, 241, Centro. Belo Horizonte - Minas Gerais
Bulgaria
Association of People with Congenital Immunodeficiency
Address
Stoil Lazarov: President
Dr. Nedelcho Hadjinikolov: Vice-President and contact person
3, Javoretz str., vh. B 1164, Sofia, Bulgaria
Canada
ImmUnity Canada
Address
Whitney Goulstone (Executive Director)
#206-645
Fort Street Victoria, BC
V8W 1G2
Canada
Email/Web
Phone
(250) 381-7134 Toll free line
Chile
Fundación IDP Chile
Address
Texia Céspedes (President)
Enrique soro 830, depto. 54, Independencia, Santiago
Chile
China
PID Care China
Address
Jessie Qu
5/F Huafuyang building Kejizhong NO.3 Road HI-Tech Park
Nanshan Districs Shenzhen City, Guangdong Province
China
Colombia
Fundación “Diana García de Olarte” para las Inmunodeficiencias Primarias (FIP)
Address
Carolyn Álvarez: Secretary
Carrera 43C #9-21 Ed. Modulor
Medellin
Colombia (South America)
Email/Web
Phone
(57) 4-266-4534
Mobile: (57) 314-864-6956
Cyprus
Cyprus Primary Association and Friends
Address
Maria G. Charalambous
Kalli Sakka 5
Parisinos - Strovolos
Nicosia 2066
Cyprus
Email/Web
primaryimmunodeficiency.cyprus@gmail.com
https://www.instagram.com/primary_immunodeficiency_cy/
Phone
0035 722 453630
Fax 0035 722 453 631
Denmark
Immun Defekt Foreningen (IDF)
Address
Anja Pihl (Chair)
Østparken 83
6840 Oksbøl
Ecuador
Fundación PIDE
Address
Diana Carolina Cantuña Cachago (President)
Sector Yaruqui-Barrio Chinangachi
Calle Perseo y Nicolás Paillacho E3-76
Quito, Pichincha
Ecuador
Egypt
The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency
Address
Shereen Reda, Professor of Pediatrics, Faculty of Medicine, Ain Shams University
Nada Society
Room 5, ground floor of Children’s Hospital at Faculty of Medicine- Ain Shams University, Abbassya, Cairo 1156, Egypt
El Salvador
Fundación Escudo de Amor para las Inmunodeficiencias Primarias (Love Shield for PID Foundation)
Address
Hector Amaya Velasco
Estonia
Estonian Patient Society for Primary Immunodeficiencies
Finland
Immunipuutospotilaiden yhdistys r.y.
Address
Pirkko Grahn (Chair)
Turkismiehenkuja 6 A 2
00370 Helsinki
FINLAND
France
Immuno-Deficience Primitive: Recherche, Information, Soutien (IRIS)
Address
Matteo Pellegrinuzzi (President)
Virginie Grosjean: Executive Director
Association IRIS
247 Colonel Péchot Avenue 54200 Toul
France
Email/Web
Phone
Office: +33 3 83 64 09 80
Mobile: +33 6 43 78 50 34
Germany
Deutsche Selbsthilfe Angeborene Immundefekte e. V. (DSAI)
Address
Gabriele Gruendl
Hochschatzen 5
D-83 530 Schnaitsee
Germany
Greece
GALINOS – Immune Deficiency Association of Greece
Address
Konstantinos Chondropoulos
GALINOS—Immune Deficiency Association of Greece
Ilia Iliou 5, Stavroupoli, Thessaloniki
P.C. 56430
Greece
Hong Kong
Primary Immunodeficiency League
Address
Gary But (President)
Hungary
HOPI (Hungarian Organization for Patients with Immunodeficiencies)
Address
Monika Apati Nagy: President
Nagyerdei Krt.
98. 4032 Debrecan
Hungary
Iceland
Lind – Icelandic Immune Deficiency Foundation
Address
Gudlaug Bjarnadottir
Spitalastigur 8
IS-101 Reykjavik
India
Indian Patients Society for Primary Immunodeficiency (IPSPI)
Address
Rubby Chawla: Predident
PLOT NO. 36, SWARNAPURI,PATIA,C.S.PUR,
BHUBANESWAR(ORISSA)-751075
Email/Web
Phone
Tel/Fax: 0674-2726402 (O)
+91 98611 85656 (M)
Indonesia
Indonesian Primary Immunodeficiency Patients Society (IPIPS)
Address
Contact person: Dimas Adhi Sugiharto
Iran
Iranian Primary Immunodeficiency Association (IPIA)
Address
Dr Nima Rezaei
Research Center for Immunodeficiencies
Children's Medical Center - Dr Gharib St, Keshavarz Blvd
Tehran 14194, Iran
Email/Web
Ireland
Irish Primary Immunodeficiency Association (IPIA)
Israel
Bubble Care
Address
Ruti Steinberg
President
Rav Ashi street 7/41
Tel Aviv 6939541
Israel
Italy
Associazione Immunodeficienze Primitive (AIP)
Address
Andrea Gressani
Associazione Imunodeficienze Primitive onlus
Via Galvani, 18
25123 Brescia - Italy
Japan
PID Tsubasa-no-Kai
Kazakhstan
Kazakhstan Society of Patients with Primary Immune Deficiency “ARAY”
Address
Shashkin Street 38B
Almaty
A26G7H4
Kazakhstan
Email/Web
Phone
+7 (727) 223 6733
Kenya
The Primary Immunodificiencies Association – Kenya (PIDs Kenya)
Address
Cynthia Olotch
P.O.Box 7146
00100 Nairobi
Kenya
Lithuania
Lithuanian society of primary immunodeficiencies (IMUNAS)
Address
Solveiga Kurtinaityte (President)
Italu str.2,
LT-11329
Vilnius, Lithuania
Malaysia
Malaysia Patient Organization of Primary Immunodeficiencies (MyPOPI)
Address
Mr. Bruce Lim Wee Diong: President
Jabatan Pediatrik, Pusat Perubatan Universiti Kebangsaan Malaysia
Jalan Yaacob Latiff, 56000 Bandar Tun Razak, Kuala Lumpur, Malaysia
Mexico
Asociación Mexicana para Pacientes con Inmunodeficiencias Primarias
Address
President: Gabriela Suárez Martinez
Av. José Loreto Fabela N° 659 Edif. 1C Depto. 204, Col. Pueblo San juan de Aragón, Del. Gustavo A. Madero
C.P. 07950, CDMX
Mexico
Morocco
Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitifs
Address
Bousfiha Ahmed Aziz
Number 60, Street 2
District Miamer
Casablanca
Netherlands
Stichting voor Afweerstoornissen
Address
Jose Verstegen (Vice-president)
Groenstraat 17
KW Geffen
5386
The Netherlands
Email/Web
info@stichtingvoorafweerstoornissen.nl
www.stichtingvoorafweerstoornissen.nl
Phone
+31 062 895 32 95
New Zealand
Immunodeficiency Foundation – New Zealand (IDFNZ)
Address
Janet Simons
IDFNZ
PO Box 75-076, Manurewa, Auckland
Manukau 2243
New Zealand
Nicaragua
Asociación Nicaraguense de Pacientes con Imunodeficeincias Primarias (ANIPIDP)
Norway
Norwegian Immunodeficiency Organisation
Paraguay
Association of parents of children and adults with primary immunodeficiency of Paraguay (ASPANA IDP)
Address
President: Dario Alderete
Paraguay
Email/Web
Phone
+595 984 900444
Philippines
Philippine Patient Organization for Primary Immunodeficiencies (PhilPOPI)
Address
Colly Carag (President)
17 San Isidro Arcade
128 Dona Soledad Barangay Don Bosco
1711 Paranaque City
Philippines
Poland
Association for Patients with Primary Immunodeficiencies “Immunoprotect”
Address
Paweł Górniak, President
Stowarzyszenie IMMUNOPROTECT
ul. Wedmanowej 7
93-228 Łódź
Poland
Portugal
Associação Portuguesa de Doentes com Imunodeficiência Primária (APDIP)
Address
President: Ricardo Pereira
Portugal
Puerto Rico
APIP – Puerto Rico Alliance of PID patients
Republic of Korea
PID Korea
Address
Contact person: Jungwoo Park
Address: 429-23 Hyundai-Village B-1, Wolgye-dong, Nowon-gu, Seoul, Korea
Romania
Romanian Association for Patients with Primary Immunodeficiencies (ARPID)
Address
Artemiza Baldea - President
Matei Basarab Street, no.10 A, building 37, entrance B, apartment 6
Timisoara, Timis County
Romania
Russian Federation
OPPID
Senegal
Association sénégalaise des déficients immunitaires primitifs (ASDIP)
Address
Prof Tandakha Dieye
Université Cheikh Anta Diop Dakar (UCAD)
Service d’Immunologie CHNU A le Dantee
Senegal (Associate NMO)
Serbia
Supporting Persons with Primary ImmunoDeficiencies (SPwPID/POsPID)
Address
Dragana Koruga
O. Zapanica 12/38
SRB -11070 New Belgrade
Serbia
Slovakia
Slovakian Association of Patients with Primary Immunodeficiency
Address
Lucia Bodor (President)
Slovakia
Slovenia
Slovenian Society for immune disorders
Address
Prof. Natasa Toplak (President)
Bohoričeva 20
SI-1000 Ljubljana
Slovenia
South Africa
Primary Immunodeficiency Network of South Africa (PINSA)
Address
Anton van der Zandt (Chair)
De Velde, 2 De Beers Avenue, Somerset West, Western Cape
South Africa
Spain
Asociación española de deficits immunitarios primarios (AEDIP)
Address
Carlos Jimenez: President
Cl. Manuel Pombo Angulo, 10 2º Puerta 5
28050 Madrid
Spain
Sudan
Sudanese Organization for Patients with Primary Immunodeficiency – Soppi
Address
Salma Ali Elmahdi
P.O. Box 13031, Khartoum Central Post, Khartoum, Sudan
00249962831502
Sweden
Primär Immunbrist Organisationen (PIO)
Address
Maria Löfving (Chair)
Anneli Larsson: Executive Director
Mellringevaegen 120 B
S-703 53 Oerebrro
Sweden
Switzerland
Schweizerische Vereinigung für Angeborene Immundefekte (SVAI)
Address
Sergio Vassalli
Postfach 1089
Baslerstr. 141
CH-8048 Zürich
Switzerland
Email/Web
Phone
+41 44 4353 800 (day time); +41 43 8171 717 (home)
+41 44 4353 808 (fax)
Thailand
ThaiPOPI
Address
Contact person: Ronnapee Nushiri
27/43 The Plant 2 Village, Khanayao District, Khannayao Sub-district, Kanchanapisek Road, 10230 Bangkok
Thailand
Tunisia
Tunisian Association of Primitive Immune Deficiency (ATunDip)
Address
Mohamed Habib Selmi (President)
Association Tunisienne des patients atteins des Déficits Immunitaires Primitifs (ATun DIPs)
18 Avenue Hbib BOURGUIBA
5100 Mahdia
Tunisie
Turkey
Immun Yetmezlik Dernegi (IMYED)
Address
Omer Iren
Unalan Mah. Ulgen sok. No:14/1
Uskudar / İstanbul
Turkey
Email/Web
Phone
0216 523 60 60 /145
Mobile: 0535 736 81 33
Uganda
Dove Primary Immune Deficiency Patients Organisation Limited (DPIDPO)
Address
Winnie Namara Mukasa , Kabanda Zubeda Lucky (Co-chairpersons)
UGANDA CENTRAL, KAYUNGA BUBAJJWE A
P.O Box 740126 Kayunga
Uganda
Ukraine
Rare Immune Diseases (RID)
Address
Roman Shpak
4 Levanevskogo street., ap. 65/1
03058 Kiev, Ukraine
Ukraine
United Kingdom
Immunodeficiency UK
Address
Contact: Susan Walsh, Director
Immunodeficiency UK
PO Box 12635
Colchester CO7 5AN
United Kingdom
United States
Immune Deficiency Foundation (IDF)
Address
Immune Deficiency Foundation
110 West Road, Suite 300
Towson
MD 21204
United States of America
Uruguay
Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias (AUPIDP)
Address
María Isabel Sánchez - President
Hudson 4591 bis, Montevideo, Uruguay
Uruguay
Venezuela
Inmunodeficiencias Primarias Venezuela (IDP Venezuela)
Address
Chairman: José Angel Cova
Urb. Campo Claro.
Terrazas de Sol. Casa 46.
5151, Mérida
Venezuela
Email/Web
www.facebook.com/Inmunodeficiencias-Primarias-Venezuela-Asociaci%C3%B3n-Civil-1903228006610511/
Phone
+58 274 2403531
Mobile: +58 414 1793041
Vietnam
VietPIPS (Vietnam Primary Immunodeficiency Patient Support Group)
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