Member organisations
IPOPI’s National Member Organisations (NMOs), national patient groups that represent the interests of primary immunodeficiencies patients, are the reason for IPOPI’s existence.
IPOPI recognises one national patient group per country.
Algeria
Algerian Association of People with Primary Immunodeficiency
Address
Algeria
Email/Web
Argentina
Asociación Ayuda al Paciente con Inmunodeficiencia Primaria
Austria
Österreichische Selbsthilfegruppe primärer Immum Defekte
Australia
The Immune Deficiency Foundation of Australia
Bulgaria
Association of People with Congenital Immunodeficiency
Address
Bulgaria
Email/Web
Belgium
Belgian Patient Organisation for Primary Immunodeficiencies
Address
Abelenstraat, 20 in 2640 Mortsel
Belgium
Brazil
Eu Luto Pela Imuno Brasil
Address
Av. Emílio Ribas 1056, sala 403, Guarulhos -SP Brazil
Brazil
Bolivia
Fundacion FIDEP-Bolivia
Bangladesh
Primary Immunodeficiency Patients Society of Bangladesh
Address
28/1/B, B.N. Tower (4th Floor), Toyenbee Circular Road, Motijheel C/A, Dhaka -1000, Bangladesh.
Bangladesh
Belarus
The republican public organisation of patients (parents) with primary immunodeficiency
Bosnia & Herzegovina
Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje
Address
Bosnia & Herzegovina
Email/Web
Phone
+387 66910677
Cyprus
Cyprus Primary Association and Friends
Address
Kalli Sakka 5, Parisinos, Strovolos 2066, Nicosia
Cyprus
Colombia
Fundación "Diana García de Olarte" para las Inmunodeficiencias Primarias
Chile
Fundación IDP Chile
Canada
ImmUnity Canada
Address
#206-645 Fort Street Victoria, BC V8W 1G2
Canada
China
PID Care China
Denmark
Immun Defekt Foreningen
Estonia
Estonian Patient Society for Primary Immunodeficiencies
El Salvador
Fundación Escudo de Amor para las Inmunodeficiencias Primarias (Love Shield for PID Foundation)
Ecuador
Fundación PIDE
Egypt
The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency
Finland
Immunipuutospotilaiden yhdistys ry
Address
Immuunipuutospotilaiden yhdistys ry Turkismiehenkuja 6 A 2 00370 Helsinki
Finland
France
Immuno-Deficience Primitive: Recherche, Information, Soutien
Address
247 Colonel Péchot Avenue
France
Germany
Deutsche Selbsthilfe Angeborene Immundefekte e. V.
Greece
GALINOS—Immune Deficiency Association of Greece
Hungary
Hungarian Organization for Patients with Immunodeficiencies
Hong Kong
Primary Immunodeficiency League
Italy
Associazione Immunodeficienze Primitive
Israel
Bubble care
Iceland
Icelandic Immune Deficiency Foundation
India
Indian Patients Society for Primary Immunodeficiency
Iran
Iranian Primary Immunodeficiency Association
Ireland
Irish Primary Immunodeficiency Association
Indonesia
Perhimpunan Pasien Imunodefisiensi Primer Indonesia
Address
Indonesia
Email/Web
dimas@imunodefisiensi-indonesia.org
https://www.imunodefisiensi-indonesia.org
Phone
+62 8129836493
Japan
PID Tsubasa-no-Kai
Address
17-1-706 Nihonmashi-Kabutocho, Chuo-ku, Tokyo 103-0026 Japan
Japan
Email/Web
Kazakhstan
Society of Patients with Primary Immune Deficiency "ARAY"
Address
Kazakhstan
Email/Web
Phone
+7 727223 6733
Kenya
The Primary Immunodeficiencies Association of Kenya
Lebanon
Association of Lebanese Patients with Primary Immunodeficiency
Address
Jal eel Dib Highway, Yachoui center, 7th floor, Metn, Lebanon
Lebanon
Lithuania
Lithuanian society of primary immunodeficiencies
Address
Italu str.2, LT-11329 Vilnius, Lithuania
Lithuania
Mexico
Asociación Mexicana para Pacientes con Inmunodeficiencias Primarias
Morocco
Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitifs
Malaysia
Malaysia Patient Organization of Primary Immunodeficiencies
Nicaragua
Asociación Nicaraguense de Pacientes con Imunodeficeincias Primarias
New Zealand
Immunodeficiency Foundation – New Zealand
Nepal
NePOPII
Address
Nepal
Email/Web
Norway
Norwegian Immunodeficiency Organisation
Netherlands
Stichting voor Afweerstoornissen
Address
Groenstraat 17 5386KW Geffen The Netherlands
Netherlands
Email/Web
info@stichtingvoorafweerstoornissen.nl
https://www.stichtingvoorafweerstoornissen.nl/
Phone
+31 621593548
Peru
Asociación Peruana de Inmunodeficiencias Primarias – No somos Invisibles
Address
Urbanización navidad de villa- Chorrillos – Lima
Peru
Email/Web
Phone
51967604947
Portugal
Associação Portuguesa de Doentes com Imunodeficiência Primária
Poland
Association for Patients with Primary Immunodeficiencies
Paraguay
Association of parents of children and adults with primary immunodeficiency of Paraguay
Philippines
Philippine Patient Organization for Primary Immunodeficiencies
Address
17 San Isidro Arcade 128 Dona Soledad Barangay Don Bosco 1711 Paranaque City
Philippines
Puerto Rico
Puerto Rico Alliance of PID patients
Russia
Association for primary immune deficient patients
Romania
Romanian Association for Patients with Primary Immunodeficiencies
Spain
Asociación española de deficits immunitarios primarios
Address
Cl. Manuel Pombo Angulo, 10 2º Puerta 5 28050 Madrid
Spain
Senegal
Association sénégalaise des déficients immunitaires primitifs
Address
Senegal
Email/Web
Phone
+221 76 685 92 80
South Korea
PID Korea
Address
South Korea
Sweden
Primaer Immunbrist Organisationen
South Africa
Primary Immunodeficiency Network of South Africa
Switzerland
Schweizerische Vereinigung für Angeborene Immundefekte
Slovakia
Slovakian Association of Patients with Primary Immunodeficiency
Slovenia
Slovenian Society for Immune Disorders
Sudan
Sudanese Organization for patients with Primary Immunodeficiency
Address
Sudan
Email/Web
Serbia
Supporting Persons with Primary ImmunoDeficiencies
Tunisia
Association Tunisienne des patients atteins des Déficits Immunitaires Primitifs
Address
13, Place Pasteur 1002 Tunis Belvédère Tunisia
Tunisia
Turkey
Immun Yetmezlik Dernegi
Thailand
Thai Patient Organization for Primary Immundeficiency
Address
27/43 The Plant 2 Village, Khanayao District, Khannayao Sub-district, Kanchanapisek Road, 10230 Bangkok Thailand
Thailand
Uruguay
Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias
Uganda
DOVE Primary Immune Deficiency Patients Organisation
United States of America
Immune Deficiency Foundation
Address
7550 Teague Rd, Suite 220, Hanover MD, 21076.
United States of America
United Kingdom
Immunodeficiency UK
Address
Immunodeficiency UK, PO Box 12635, Colchester, CO7 5AN
United Kingdom
Ukraine
Rare Immune Diseases
Address
4 Levanevskogo street., ap. 65/1, 03058 Kyiv, Ukraine
Ukraine
Venezuela
Inmunodeficiencias Primarias Venezuela
Vietnam
Vietnam Primary Immunodeficiency Patient Support Group
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