Member organisations
IPOPI’s National Member Organisations (NMOs), national patient groups that represent the interests of primary immunodeficiencies patients, are the reason for IPOPI’s existence.
IPOPI recognises one national patient group per country.
Algeria
Algerian Association of People with Primary Immunodeficiency
Argentina
Asociación Ayuda al Paciente con Inmunodeficiencia Primaria (AAPIDP)
President
Roberta Anido de Pena
Address
Bollini 2157
Capital Federal Bs. As
Codigo Postal 1425
Argentina
Email/Web
Phone
+54 011 4805 4052
+54 9 11 4415 4415
Australia
The Immune Deficiency Foundation of Australia (IDFA)
Address
Executive Officer IDFA
Address: PO Box 969 Penrith NSW 2751
5 North Circle Blaxland NSW 2774
Australia
Austria
Österreichische Selbsthilfegruppe primärer Immum Defekte (ÖSPID)
President
Karin Modl
Address
Eichkogelstraße 7
3004 Riederberg
Österreich
Bangladesh
Primary Immunodeficiencey Patients Society of Bangladesh (PIDPSB)
President
Mohammad Iqbal Hossain
Address
Belarus
The republican public organisation of patients (parents) with primary immunodeficiency “Save immunity”
President
Svetlana Sokolona
Address
Minsk, st. Voronyanskogo 50/4-188 of. 212
Belarus
Belgium
Belgian Patient Organisation for Primary Immunodeficiencies (BePOPI)
President
Wim De Geest
Address
Abelenstraat, 20 in 2640 Mortsel
B-2640
Belgium
Bolivia
Fundacion FIDEP-Bolivia
Bosnia and Herzegovi
Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje (POPID)
President
Dzenita Subasic
Address
Sarajevo, Trg Heroja, 30, Bosnia & Harzegovina
Brazil
Eu Luto Pela Imuno Brasil – ELPIB
President
Michele dos Santos
Address
Bulgaria
Association of People with Congenital Immunodeficiency
President
Stoil Lazarov
Address
Dr. Nedelcho Hadjinikolov: Vice-President and contact person
3, Javoretz str., vh. B 1164, Sofia, Bulgaria
Canada
ImmUnity Canada
President
Christine Duncan
Address
#206-645
Fort Street Victoria, BC
V8W 1G2
Canada
Email/Web
Phone
+1 2503817134
Chile
Fundación IDP Chile
President
Texia Céspedes
Address
Enrique soro 830, depto. 54, Independencia, Santiago
Chile
China
PID Care China
President
Jessie Qu
Address
5/F Huafuyang building Kejizhong NO.3 Road HI-Tech Park
Nanshan Districs Shenzhen City, Guangdong Province
China
Colombia
Fundación “Diana García de Olarte” para las Inmunodeficiencias Primarias (FIP)
President
Jose Alvarez
Address
Carrera 43C #9-21 Ed. Modulor
Medellin
Colombia (South America)
Email/Web
Phone
(57) 4-266-4534
Mobile: (57) 314-864-6956
Social Networks
Cyprus
Cyprus Primary Association and Friends
President
Maria G. Charalambous
Address
Kalli Sakka 5
Parisinos - Strovolos
Nicosia 2066
Cyprus
Denmark
Immun Defekt Foreningen (IDF)
President
Anja Pihl
Address
Østparken 83
6840 Oksbøl
Ecuador
Fundación PIDE
President
Carolina Catuña
Address
Sector Yaruqui-Barrio Chinangachi
Calle Perseo y Nicolás Paillacho E3-76
Quito, Pichincha
Ecuador
Egypt
The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency
Address
Nada Society
Room 5, ground floor of Children’s Hospital at Faculty of Medicine- Ain Shams University, Abbassya, Cairo 1156, Egypt
El Salvador
Fundación Escudo de Amor para las Inmunodeficiencias Primarias (Love Shield for PID Foundation)
Estonia
Estonian Patient Society for Primary Immunodeficiencies
Finland
Immunipuutospotilaiden yhdistys r.y.
President
Hannu Savolainen
Address
Turkismiehenkuja 6 A 2
00370 Helsinki
FINLAND
France
Immuno-Deficience Primitive: Recherche, Information, Soutien (IRIS)
President
Matteo PELLEGRINUZZI
Address
Virginie Grosjean: Executive Director
Association IRIS
247 Colonel Péchot Avenue 54200 Toul
France
Email/Web
Phone
Office: +33 3 83 64 09 80
Mobile: +33 6 43 78 50 34
Germany
Deutsche Selbsthilfe Angeborene Immundefekte e. V. (DSAI)
President
Gabriele Grundl
Address
Hochschatzen 5
D-83 530 Schnaitsee
Germany
Greece
GALINOS – Immune Deficiency Association of Greece
President
Konstantinos Chondropoulos
Address
GALINOS—Immune Deficiency Association of Greece
Ilia Iliou 5, Stavroupoli, Thessaloniki
P.C. 56430
Greece
Hong Kong
Primary Immunodeficiency League
Hungary
HOPI (Hungarian Organization for Patients with Immunodeficiencies)
President
Monika Apati Nagy
Address
Nagyerdei Krt.
98. 4032 Debrecan
Hungary
Iceland
Lind – Icelandic Immune Deficiency Foundation
President
Gudlaug Bjarnadottir
Address
Spitalastigur 8
IS-101 Reykjavik
India
Indian Patients Society for Primary Immunodeficiency (IPSPI)
President
Rubby Chawla
Address
PLOT NO. 36, SWARNAPURI,PATIA,C.S.PUR,
BHUBANESWAR(ORISSA)-751075
Email/Web
Phone
Tel/Fax: 0674-2726402 (O)
+91 98611 85656 (M)
Indonesia
Perhimpunan Pasien Imunodefisiensi Primer Indonesia
President
Dimas (Adhi Sugiharto)
Address
Iran
Iranian Primary Immunodeficiency Association (IPIA)
Ireland
Irish Primary Immunodeficiency Association (IPIA)
Israel
Bubble Care
President
Ruti Steinberg
Address
President
Rav Ashi street 7/41
Tel Aviv 6939541
Israel
Italy
Associazione Immunodeficienze Primitive (AIP)
President
Alessandro Segato
Address
Associazione Imunodeficienze Primitive onlus
Via Galvani, 18
25123 Brescia - Italy
Japan
PID Tsubasa-no-Kai
President
Shun Kimura
Address
17-1-706 Nihonmashi-Kabutocho, Chuo-ku, Tokyo 103-0026 Japan
C/O Japanese Society for Pediatric Infectious Diseases
Kazakhstan
Kazakhstan Society of Patients with Primary Immune Deficiency “ARAY”
President
Eugeniya Beloussova
Address
Shashkin Street 38B
Almaty
A26G7H4
Kazakhstan
Email/Web
Phone
+7 (727) 223 6733
Kenya
The Primary Immunodeficiencies Association of Kenya (PIDs Kenya)
President
Cynthia Olotch
Address
P.O.Box 7146
00100 Nairobi
Kenya
Lebanon
Association of Lebanese Patients with Primary Immunodeficiency
President
Hala Maadad Takieddine
Address
Jal eel Dib Highway, Yachoui center, 7th floor, Metn, Lebanon
Lithuania
Lithuanian society of primary immunodeficiencies (IMUNAS)
President
Solveiga Kurtinaityte
Address
Italu str.2,
LT-11329
Vilnius, Lithuania
Malaysia
Malaysia Patient Organization of Primary Immunodeficiencies (MyPOPI)
President
Bruce Lim Wee Diong
Address
Jabatan Pediatrik, Pusat Perubatan Universiti Kebangsaan Malaysia
Jalan Yaacob Latiff, 56000 Bandar Tun Razak, Kuala Lumpur, Malaysia
Mexico
Asociación Mexicana para Pacientes con Inmunodeficiencias Primarias
President
Gabriela Suarez
Address
Av. José Loreto Fabela N° 659 Edif. 1C Depto. 204, Col. Pueblo San juan de Aragón, Del. Gustavo A. Madero
C.P. 07950, CDMX
Mexico
Morocco
Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitifs
President
Prof Bousfiha Ahmed Aziz
Address
Number 60, Street 2
District Miamer
Casablanca
Nepal
NePOPII – Nepal
President
Sandip Paudel
Address
Email/Web
Netherlands
Stichting voor Afweerstoornissen
President
TBD
Address
Groenstraat 17
KW Geffen
5386
The Netherlands
Email/Web
info@stichtingvoorafweerstoornissen.nl
www.stichtingvoorafweerstoornissen.nl
Phone
+31 062 895 32 95
New Zealand
Immunodeficiency Foundation – New Zealand (IDFNZ)
President
Nick
Address
IDFNZ
PO Box 75-076, Manurewa, Auckland
Manukau 2243
New Zealand
Email/Web
Phone
+64 9 528 6212
Social Networks
Nicaragua
Asociación Nicaraguense de Pacientes con Imunodeficeincias Primarias (ANIPIDP)
Norway
Norwegian Immunodeficiency Organisation
President
Eva Brox
Address
Borgundvegen 478
6015 Ålesund
Norway
Paraguay
Association of parents of children and adults with primary immunodeficiency of Paraguay (ASPANA IDP)
President
Lucidio Gonzalez Cabrera
Address
Paraguay
Email/Web
Phone
+595 984 900444
Social Networks
Peru
ASOCIACIÓN PERUANA DE INMUNODEFICIENCIAS PRIMARIAS – NO SOMOS INVISIBLES – IDP PERÚ
President
Tracey Gasla Tang de Perez
Address
Urbanización navidad de villa- Chorrillos – Lima
Philippines
Philippine Patient Organization for Primary Immunodeficiencies (PhilPOPI)
President
Colly Carag
Address
17 San Isidro Arcade
128 Dona Soledad Barangay Don Bosco
1711 Paranaque City
Philippines
Poland
Association for Patients with Primary Immunodeficiencies “Immunoprotect”
President
Pawel Gorniak
Address
Stowarzyszenie IMMUNOPROTECT
ul. Wedmanowej 7
93-228 Łódź
Poland
Portugal
Associação Portuguesa de Doentes com Imunodeficiência Primária (APDIP)
Puerto Rico
APIP – Puerto Rico Alliance of PID patient
President
Blanca Imbert
Address
Puerto Rico (Associate NMO)
Romania
Romanian Association for Patients with Primary Immunodeficiencies (ARPID)
President
Otilia Stanga
Address
Matei Basarab Street, no.10 A, building 37, entrance B, apartment 6
Timisoara, Timis County
Romania
Russian Federation
Association for primary immune deficient patients
Senegal
Association sénégalaise des déficients immunitaires primitifs (ASDIP)
President
Adiouma Sarr
Address
Université Cheikh Anta Diop Dakar (UCAD)
Service d’Immunologie CHNU A le Dantee
Senegal (Associate NMO)
Serbia
Supporting Persons with Primary ImmunoDeficiencies (SPwPID/POsPID)
President
Nataša Gojković
Address
O. Zapanica 12/38
SRB -11070 New Belgrade
Serbia
Slovakia
Slovakian Association of Patients with Primary Immunodeficiency
Slovenia
Slovenian Society for immune disorders
President
Prof. Natasa Toplak
Address
Bohoričeva 20
SI-1000 Ljubljana
Slovenia
South Africa
Primary Immunodeficiency Network of South Africa (PINSA)
President
Anton van der Zandt
Address
De Velde, 2 De Beers Avenue, Somerset West, Western Cape
South Africa
South Korea
PID Korea
President
Jungwoo Park
Address
Address: 429-23 Hyundai-Village B-1, Wolgye-dong, Nowon-gu, Seoul, Korea
Spain
Asociación española de deficits immunitarios primarios (AEDIP)
President
Carlos Jimenez
Address
Cl. Manuel Pombo Angulo, 10 2º Puerta 5
28050 Madrid
Spain
Sudan
Sudanese Organization for Patients with Primary Immunodeficiency – Soppi
President
Dr. Salma Ali Elmahdi
Address
P.O. Box 13031, Khartoum Central Post, Khartoum, Sudan
00249962831502
Sweden
Primär Immunbrist Organisationen (PIO)
President
Maria Löfving
Address
Anneli Larsson: Executive Director
Mellringevaegen 120 B
S-703 53 Oerebrro
Sweden
Switzerland
Schweizerische Vereinigung für Angeborene Immundefekte (SVAI)
Address
Postfach 1089
Baslerstr. 141
CH-8048 Zürich
Switzerland
Email/Web
Phone
+41 44 4353 800 (day time); +41 43 8171 717 (home)
+41 44 4353 808 (fax)
Thailand
ThaiPOPI
President
Mr Ronnapee Nushiri (Dew)
Address
27/43 The Plant 2 Village, Khanayao District, Khannayao Sub-district, Kanchanapisek Road, 10230 Bangkok
Thailand
Tunisia
Tunisian Association of Primitive Immune Deficiency (ATunDip)
President
Meriem Ben Ali Nakti
Address
Association Tunisienne des patients atteins des Déficits Immunitaires Primitifs (ATun DIPs)
13, Place Pasteur
1002 Tunis Belvédère
Tunisia
Turkey
Immun Yetmezlik Dernegi (IMYED)
President
Dr. Elif Aydiner
Address
Unalan Mah. Ulgen sok. No:14/1
Uskudar / İstanbul
Turkey
Email/Web
Phone
0216 523 60 60 /145
Mobile: 0535 736 81 33
Uganda
Dove Primary Immune Deficiency Patients Organisation Limited (DPIDPO)
President
KABANDA ZUBEDA LUCKY (Co-Chair), Winnie Namara (Co-Chair)
Address
UGANDA CENTRAL, KAYUNGA BUBAJJWE A
P.O Box 740126 Kayunga
Uganda
Ukraine
Rare Immune Diseases (RID)
President
Roman Shpak
Address
4 Levanevskogo street., ap. 65/1
03058 Kiev, Ukraine
Ukraine
United Kingdom
Immunodeficiency UK
Address
Immunodeficiency UK
PO Box 12635
Colchester CO7 5AN
United Kingdom
United States
Immune Deficiency Foundation (IDF)
President
Jorey Berry
Address
110 West Road, Suite 300
Towson
MD 21204
United States of America
Uruguay
Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias (AUPIDP)
President
Isabel Sanchez
Address
Hudson 4591 bis, Montevideo, Uruguay
Uruguay
Venezuela
Inmunodeficiencias Primarias Venezuela (IDP Venezuela)
President
José Angel Cova
Address
Urb. Campo Claro.
Terrazas de Sol. Casa 46.
5151, Mérida
Venezuela
Vietnam
VietPIPS (Vietnam Primary Immunodeficiency Patient Support Group)
Social Media
Website sponsors
