Member organisations
IPOPI’s National Member Organisations (NMOs), national patient groups that represent the interests of primary immunodeficiencies patients, are the reason for IPOPI’s existence.
IPOPI recognises one national patient group per country.
Algeria Algerian Association of People with Primary Immunodeficiency
Argentina Asociación Ayuda al Paciente con Inmunodeficiencia Primaria (AAPIDP)
Address
Roberta Anido de Pena
Bollini 2157
Capital Federal Bs. As
Codigo Postal 1425
Argentina
Email/Web
Phone
+54 011 4805 4052
+54 9 11 4415 4415
Australia The Immune Deficiency Foundation of Australia (IDFA)
Address
Carolyn Dews
Executive Officer IDFA
Address: PO Box 969 Penrith NSW 2751
5 North Circle Blaxland NSW 2774
Australia
Email/Web
Phone
Office: 1800 100 198
Mobile: 0409 945 114
Austria Österreichische Selbsthilfegruppe primärer Immum Defekte (ÖSPID)
Address
Karin Modl
Eichkogelstraße 7
3004 Riederberg
Österreich
Bangladesh Primary Immunodeficiencey Patients Society of Bangladesh (PIDPSB)
Address
Mohammad Iqbal Hossain - Chairperson
Email/Web
https://www.youtube.com/@PIDPSB
https://www.facebook.com/PIDPSB
Phone
+8801711014621 (WhatsApp)
Belarus The republican public organisation of patients (parents) with primary immunodeficiency “Save immunity”
Address
Ilya Murashkin
Minsk, st. Voronyanskogo 50/4-188 of. 212
Belarus
Belgium Belgian Patient Organisation for Primary Immunodeficiencies (BePOPI)
Address
Wim De Geest - President
Abelenstraat, 20 in 2640 Mortsel
B-2640
Belgium
Bolivia Fundacion FIDEP-Bolivia
Bosnia and Herzegovi Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje (POPID)
Address
Dzenita Subasic: Founder
Sarajevo, Trg Heroja, 30, Bosnia & Harzegovina
Brazil Eu Luto Pela Imuno Brasil – ELPIB
Address
President: Michele dos Santos
Bulgaria Association of People with Congenital Immunodeficiency
Address
Stoil Lazarov: President
Dr. Nedelcho Hadjinikolov: Vice-President and contact person
3, Javoretz str., vh. B 1164, Sofia, Bulgaria
Canada ImmUnity Canada
Address
Whitney Goulstone (Executive Director)
#206-645
Fort Street Victoria, BC
V8W 1G2
Canada
Email/Web
Phone
(250) 381-7134 Toll free line
Chile Fundación IDP Chile
Address
Texia Céspedes (President)
Enrique soro 830, depto. 54, Independencia, Santiago
Chile
China PID Care China
Address
Jessie Qu
5/F Huafuyang building Kejizhong NO.3 Road HI-Tech Park
Nanshan Districs Shenzhen City, Guangdong Province
China
Colombia Fundación “Diana García de Olarte” para las Inmunodeficiencias Primarias (FIP)
Address
Carolyn Álvarez: Secretary
Carrera 43C #9-21 Ed. Modulor
Medellin
Colombia (South America)
Email/Web
Phone
(57) 4-266-4534
Mobile: (57) 314-864-6956
Cyprus Cyprus Primary Association and Friends
Address
Maria G. Charalambous
Kalli Sakka 5
Parisinos - Strovolos
Nicosia 2066
Cyprus
Email/Web
primaryimmunodeficiency.cyprus@gmail.com
https://www.instagram.com/primary_immunodeficiency_cy/
Phone
0035 722 453630
Fax 0035 722 453 631
Denmark Immun Defekt Foreningen (IDF)
Address
Anja Pihl (Chair)
Østparken 83
6840 Oksbøl
Ecuador Fundación PIDE
Address
Diana Carolina Cantuña Cachago (President)
Sector Yaruqui-Barrio Chinangachi
Calle Perseo y Nicolás Paillacho E3-76
Quito, Pichincha
Ecuador
Egypt The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency
Address
Shereen Reda, Professor of Pediatrics, Faculty of Medicine, Ain Shams University
Nada Society
Room 5, ground floor of Children’s Hospital at Faculty of Medicine- Ain Shams University, Abbassya, Cairo 1156, Egypt
El Salvador Fundación Escudo de Amor para las Inmunodeficiencias Primarias (Love Shield for PID Foundation)
Address
Hector Amaya Velasco
Estonia Estonian Patient Society for Primary Immunodeficiencies
Finland Immunipuutospotilaiden yhdistys r.y.
Address
Pirkko Grahn (Chair)
Turkismiehenkuja 6 A 2
00370 Helsinki
FINLAND
France Immuno-Deficience Primitive: Recherche, Information, Soutien (IRIS)
Address
Matteo Pellegrinuzzi (President)
Virginie Grosjean: Executive Director
Association IRIS
247 Colonel Péchot Avenue 54200 Toul
France
Email/Web
Phone
Office: +33 3 83 64 09 80
Mobile: +33 6 43 78 50 34
Germany Deutsche Selbsthilfe Angeborene Immundefekte e. V. (DSAI)
Address
Gabriele Gruendl
Hochschatzen 5
D-83 530 Schnaitsee
Germany
Greece GALINOS – Immune Deficiency Association of Greece
Address
Konstantinos Chondropoulos
GALINOS—Immune Deficiency Association of Greece
Ilia Iliou 5, Stavroupoli, Thessaloniki
P.C. 56430
Greece
Hong Kong Primary Immunodeficiency League
Address
Gary But (President)
Hungary HOPI (Hungarian Organization for Patients with Immunodeficiencies)
Address
Monika Apati Nagy: President
Nagyerdei Krt.
98. 4032 Debrecan
Hungary
Iceland Lind – Icelandic Immune Deficiency Foundation
Address
Gudlaug Bjarnadottir
Spitalastigur 8
IS-101 Reykjavik
India Indian Patients Society for Primary Immunodeficiency (IPSPI)
Address
President: Rubby Chawla
PLOT NO. 36, SWARNAPURI,PATIA,C.S.PUR,
BHUBANESWAR(ORISSA)-751075
Email/Web
Phone
Tel/Fax: 0674-2726402 (O)
+91 98611 85656 (M)
Indonesia Indonesian Primary Immunodeficiency Patients Society (IPIPS)
Address
Contact person: Dimas Adhi Sugiharto
Iran Iranian Primary Immunodeficiency Association (IPIA)
Address
Chairperson: Somayeh Khojasteh
Email/Web
Ireland Irish Primary Immunodeficiency Association (IPIA)
Israel Bubble Care
Address
Ruti Steinberg
President
Rav Ashi street 7/41
Tel Aviv 6939541
Israel
Italy Associazione Immunodeficienze Primitive (AIP)
Address
Andrea Gressani
Associazione Imunodeficienze Primitive onlus
Via Galvani, 18
25123 Brescia - Italy
Japan PID Tsubasa-no-Kai
Kazakhstan Kazakhstan Society of Patients with Primary Immune Deficiency “ARAY”
Address
Shashkin Street 38B
Almaty
A26G7H4
Kazakhstan
Email/Web
Phone
+7 (727) 223 6733
Kenya The Primary Immunodificiencies Association – Kenya (PIDs Kenya)
Address
Cynthia Olotch
P.O.Box 7146
00100 Nairobi
Kenya
Lithuania Lithuanian society of primary immunodeficiencies (IMUNAS)
Address
Solveiga Kurtinaityte (President)
Italu str.2,
LT-11329
Vilnius, Lithuania
Malaysia Malaysia Patient Organization of Primary Immunodeficiencies (MyPOPI)
Address
Mr. Bruce Lim Wee Diong: President
Jabatan Pediatrik, Pusat Perubatan Universiti Kebangsaan Malaysia
Jalan Yaacob Latiff, 56000 Bandar Tun Razak, Kuala Lumpur, Malaysia
Mexico Asociación Mexicana para Pacientes con Inmunodeficiencias Primarias
Address
President: Gabriela Suárez Martinez
Av. José Loreto Fabela N° 659 Edif. 1C Depto. 204, Col. Pueblo San juan de Aragón, Del. Gustavo A. Madero
C.P. 07950, CDMX
Mexico
Morocco Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitifs
Address
Bousfiha Ahmed Aziz
Number 60, Street 2
District Miamer
Casablanca
Netherlands Stichting voor Afweerstoornissen
Address
Jose Verstegen (Vice-president)
Groenstraat 17
KW Geffen
5386
The Netherlands
Email/Web
info@stichtingvoorafweerstoornissen.nl
www.stichtingvoorafweerstoornissen.nl
Phone
+31 062 895 32 95
New Zealand Immunodeficiency Foundation – New Zealand (IDFNZ)
Address
Janet Simons
IDFNZ
PO Box 75-076, Manurewa, Auckland
Manukau 2243
New Zealand
Nicaragua Asociación Nicaraguense de Pacientes con Imunodeficeincias Primarias (ANIPIDP)
Norway Norwegian Immunodeficiency Organisation
Paraguay Association of parents of children and adults with primary immunodeficiency of Paraguay (ASPANA IDP)
Address
President: Dario Alderete
Paraguay
Email/Web
Phone
+595 984 900444
Philippines Philippine Patient Organization for Primary Immunodeficiencies (PhilPOPI)
Address
Colly Carag (President)
17 San Isidro Arcade
128 Dona Soledad Barangay Don Bosco
1711 Paranaque City
Philippines
Poland Association for Patients with Primary Immunodeficiencies “Immunoprotect”
Address
Paweł Górniak, President
Stowarzyszenie IMMUNOPROTECT
ul. Wedmanowej 7
93-228 Łódź
Poland
Portugal Associação Portuguesa de Doentes com Imunodeficiência Primária (APDIP)
Address
President: Ricardo Pereira
Portugal
Puerto Rico APIP – Puerto Rico Alliance of PID patients
Address
Blanca Imbert (President)
Republic of Korea PID Korea
Address
Contact person: Jungwoo Park
Address: 429-23 Hyundai-Village B-1, Wolgye-dong, Nowon-gu, Seoul, Korea
Romania Romanian Association for Patients with Primary Immunodeficiencies (ARPID)
Address
Artemiza Baldea - President
Matei Basarab Street, no.10 A, building 37, entrance B, apartment 6
Timisoara, Timis County
Romania
Russian Federation OPPID
Senegal Association sénégalaise des déficients immunitaires primitifs (ASDIP)
Address
Prof Tandakha Dieye
Université Cheikh Anta Diop Dakar (UCAD)
Service d’Immunologie CHNU A le Dantee
Senegal (Associate NMO)
Serbia Supporting Persons with Primary ImmunoDeficiencies (SPwPID/POsPID)
Address
Dragana Koruga
O. Zapanica 12/38
SRB -11070 New Belgrade
Serbia
Slovakia Slovakian Association of Patients with Primary Immunodeficiency
Address
Lucia Bodor (President)
Slovakia
Slovenia Slovenian Society for immune disorders
Address
Prof. Natasa Toplak (President)
Bohoričeva 20
SI-1000 Ljubljana
Slovenia
South Africa Primary Immunodeficiency Network of South Africa (PINSA)
Address
Anton van der Zandt (Chair)
De Velde, 2 De Beers Avenue, Somerset West, Western Cape
South Africa
Spain Asociación española de deficits immunitarios primarios (AEDIP)
Address
Carlos Jimenez: President
Cl. Manuel Pombo Angulo, 10 2º Puerta 5
28050 Madrid
Spain
Sudan Sudanese Organization for Patients with Primary Immunodeficiency – Soppi
Address
Salma Ali Elmahdi
P.O. Box 13031, Khartoum Central Post, Khartoum, Sudan
00249962831502
Sweden Primär Immunbrist Organisationen (PIO)
Address
Maria Löfving (Chair)
Anneli Larsson: Executive Director
Mellringevaegen 120 B
S-703 53 Oerebrro
Sweden
Switzerland Schweizerische Vereinigung für Angeborene Immundefekte (SVAI)
Address
Claudia Faessler
Postfach 1089
Baslerstr. 141
CH-8048 Zürich
Switzerland
Email/Web
Phone
+41 44 4353 800 (day time); +41 43 8171 717 (home)
+41 44 4353 808 (fax)
Thailand ThaiPOPI
Address
Contact person: Ronnapee Nushiri
27/43 The Plant 2 Village, Khanayao District, Khannayao Sub-district, Kanchanapisek Road, 10230 Bangkok
Thailand
Tunisia Tunisian Association of Primitive Immune Deficiency (ATunDip)
Address
Mohamed Habib Selmi (President)
Association Tunisienne des patients atteins des Déficits Immunitaires Primitifs (ATun DIPs)
18 Avenue Hbib BOURGUIBA
5100 Mahdia
Tunisie
Turkey Immun Yetmezlik Dernegi (IMYED)
Address
Omer Iren
Unalan Mah. Ulgen sok. No:14/1
Uskudar / İstanbul
Turkey
Email/Web
Phone
0216 523 60 60 /145
Mobile: 0535 736 81 33
Uganda Dove Primary Immune Deficiency Patients Organisation Limited (DPIDPO)
Address
Winnie Namara Mukasa , Kabanda Zubeda Lucky (Co-chairpersons)
UGANDA CENTRAL, KAYUNGA BUBAJJWE A
P.O Box 740126 Kayunga
Uganda
Ukraine Rare Immune Diseases (RID)
Address
Roman Shpak
4 Levanevskogo street., ap. 65/1
03058 Kiev, Ukraine
Ukraine
United Kingdom Immunodeficiency UK
Address
Contact: Susan Walsh, Director
Immunodeficiency UK
PO Box 12635
Colchester CO7 5AN
United Kingdom
United States Immune Deficiency Foundation (IDF)
Address
Immune Deficiency Foundation
110 West Road, Suite 300
Towson
MD 21204
United States of America
Uruguay Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias (AUPIDP)
Address
María Isabel Sánchez - President
Hudson 4591 bis, Montevideo, Uruguay
Uruguay
Venezuela Inmunodeficiencias Primarias Venezuela (IDP Venezuela)
Address
Chairman: José Angel Cova
Urb. Campo Claro.
Terrazas de Sol. Casa 46.
5151, Mérida
Venezuela
Email/Web
www.facebook.com/Inmunodeficiencias-Primarias-Venezuela-Asociaci%C3%B3n-Civil-1903228006610511/
Phone
+58 274 2403531
Mobile: +58 414 1793041
Vietnam VietPIPS (Vietnam Primary Immunodeficiency Patient Support Group)
Address
Dr Thuc Thanh Huyen
Vietnam