IPOPI Regional Asian PID Patients and Doctors’ Meeting

IPOPI is thrilled to announce the upcoming IPOPI 5^th Regional Asian PID Patients and Doctors’ Meeting, scheduled for March 24-25, in the city of Tokyo, Japan. The first day’s meeting programme is tailored for patient representatives, while the second day is tailored for health professionals from the region. Nevertheless, both days are open to healthcare professionals and IPOPI National Member Organisations (NMOs) from the region.

MEETING VENUE

Sola City Conference Center, Tokyo, Japan.

DATES

24-25 March, 2024.

TRAVEL GRANTS

Travel grants are available for invited patient representatives and healthcare professionals from the region (to cover travel and accommodation).

LANGUAGE

The official meeting language will be English.

Japanese translation facilitated through AI translation service will be available during the meeting.

WHO IS IT FOR?

This collaborative meeting is open to invited healthcare professionals with an interest in PIDs, as well as to members of IPOPI from the region.

REGISTRATION & CONTACT

Miriam Ferreira, IPOPI NMO Programmes Officer.

miriam@ipopi.org

DISCOVER THE PROGRAMME

24 MARCH 25 MARCH

Sunday, 24 March

IPOPI Regional Asian PID Patients´ Meeting

08:30 Welcome and Registration

09:00-10:30 Session 1 – Welcome Session
Moderator: Ms Martine Pergent (IPOPI President)

09:00-09:10 Welcome remarks and introduction to IPOPI, Ms Martine Pergent
09:10-09:15 Welcome to Tokyo – Ms Emi Homareda, on behalf of Mr Shun Kimura, PID Tsubasa-no-Kai (Japan)
09:15-09:20 Welcome from sponsors – Takeda, Pharming and Grifols
09:20-10:10 Inspire & Connect: Regional updates – Ms Miriam Ferreira (IPOPI NMO Programmes Officer)
10:10-10:25 PID development in the last 2 years in Asia – Dr Adli Ali (Malaysia)
10:25-10:30 Questions & Answers

10:30-11:00 COFFEE BREAK

11:00-12:30 Session 2 – Effective PID patient care
Moderator: Mr Johan Prevot (IPOPI Executive Director)

11:00-11:15 Latest developments on the state of the art treatment in PIDs, Dr Pamela Lee (Hong Kong)
11:15-11:20 Questions & Answers
11:20-11:50 Panel discussion: Achieving optimal patient care for PID patients – Mr Bruce Lim, Prof Surjit Singh (India), Dr Nizar Mahlaoui (France) and Ms Jitchanwichai Narumon (Thailand)
11:50-12:25 How to manage daily life with a PID? – Dr Intan Hakimah (Malaysia) and Mr Bruce Lim (IPOPI Vice-President)
12:15-12:25 Report back
12:25-12:30 Conclusions – Mr Bruce Lim

12:30-13:30 LUNCH

13:30-15:00 Session 3 – PID Action Planning Workshop
Moderator: Ms Miriam Ferreira and Dr Samya van Coillie (IPOPI Medical Affairs Project Manager)

13:30 Workshop Introduction – All
13:40 Workshop Development
14:30 Action Presentation
14:50 Summary remarks – Ms Martine Pergent and Mr Bruce Lim

15:00-15:30 COFFEE BREAK

15:30-16:30 Session 4 – IPOPI/APSID Joint Session – PID Life Odyssey – the Patient Journey
Moderator: Prof Martin Van Hagen (IPOPI Map Vice-Chair) and Dr Nizar Mahlaoui (IPOPI Map Chair)

15:30-15:40 – IPOPI’s Global Initiatives for PID Patients, Ms Martine Pergent (IPOPI President).
15:40-15:50 – Issues in Transitional and Adult Care of PID Patients in Japan, Ms Tomoko Kaito (PID Tsubasa-no-Kai, Japan).
15:50-16:20 – Panel discussion on the PID Life Odyssey – the Patient Journey, Ms Martine Pergent (IPOPI President), Mr Bruce Lim (Vice-President) and Ms Emi Homareda, on behalf of Mr Shun Kimura, PID Tsubasa-no-Kai (Japan).
16:20-16:30 Closure of the day, Ms Martine Pergent

Monday, 25 March

IPOPI Regional Asian PID Doctors’ Meeting

09:00 Welcome and Registration

09:30-10:25 Welcome Session
Moderator: Ms Martine Pergent (IPOPI President)

09:30-09:40 Welcome remarks and introduction to IPOPI – Ms Martine Pergent
09:40-09:45 Welcome to Tokyo – Ms Emi Homareda, on behalf of Mr Shun Kimura, PID Tsubasa-no-Kai (Japan)
09:45-09:50 Welcome from sponsors – Takeda, Pharming and Grifols
09:50-09:55 Welcome from APSID and SEAPID – Prof Hirokazu Kanegane (Japan) and Dr Adli Ali (Malaysia)
09:55-10:20 Keynote lecture: Ten-year prospective for the region (APSID role) – Prof Hirokazu Kanegane (Japan)
10:20-10:25 Questions & Answers

10:25-10:40 COFFEE BREAK

10:40-12:45 Session 1 – The fast-evolving field of immunodeficiency
Moderators: Dr Nizar Mahlaoui (France) and Prof Kohsuke Imai (Japan)

10:40-11:00 The role of auto-inflammation in primary immunodeficiency – Prof Ryuta Nishikomori (Japan)
11:00-11:05 Questions & Answers
11:05-11:25 The crossover between primary and secondary immunodeficiencies – Prof Martin van Hagen (Netherlands)
11:30-11:45 The growing demand for plasma products and balancing regional needs – Dr René Buechel (Switzerland)
11:45-11:50 Questions & Answers
11:50-12:20 Challenging clinical cases (APSID+SEAPID)
– APDS diagnostics – Prof Intan Hakimah (Malaysia)
– HSCT in congenital neutropenia – Dr Jia Hou (China)
12:20-12:45 Panel: Case discussion – Prof Martin van Hagen (Netherlands) and Prof Hirokazu Kanegane (Japan) and Dr Ewen Munro (Pharming).

12:45-13:45 LUNCH

13:45-15:00 Session 2 – Asian perspectives on PID diagnostics and screening
Moderators: Mr Bruce Lim (IPOPI Vice-President) and Dr Narissara Suratannon (Thailand)

13:45-14:05 Specific infectious agents relevant to PID in the Asian region – Prof Surjit Singh (India)
14:05-14:10 – Questions & Answers
14:10-14:30 Flow Cytometry for Diagnostics: Value, Context, and Sustainability – Dr Jaime Sou da Rosa Duque (Hong Kong)
14:30-14:35 – Questions & Answers
14:35-15:00 Tailoring Newborn Screening for Severe Combined Immunodeficiency in Asian Context:
-Insights from Japan– Dr Manabu Wakamatsu (Japan)
-Insights from Malaysia – Dr Adli Ali (Malaysia)

15:00-15:15 COFFEE BREAK

15:15-16:30 Session 3 – PID management and access: the Asia-Pacific context
Moderators: Mr Johan Prevot (IPOPI Executive Director) and Dr Adli Ali (Malaysia)

15:15-15:25 PID Life Index – Avenues for the future in Asia – Dr Adli Ali (Malaysia)
15:25-15:30 – Questions & Answers
15:30-16:00 Panel discussion: Empowering regional advancements: Innovations and initiatives from participating countries – Prof Kohsuke Imai (Japan), Dr Van Anh Nguyen (Vietnam), Dr Narissara Suratannon (Thailand), Dr Dina Muktiarti (Indonesia), Dr Jonie Tillah (Philippines), Dr Yae-Jean Kim (South Korea), Dr Dharmagat Bhatarrai (Nepal).
16:00-16:30 Panel discussion and recommendations for the way forward – Prof Surjit Singh (India) and Dr Adli Ali (Malaysia)
16:30 Closure of the day

Improving PID patients’ lives. Worldwide.