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The global organisation working
to improve the quality of life for people with primary immunodeficiencies.
ESID/INGID/IPOPI Congress 2008
16th – 19th. October 2008 ‘s-Hertogenbosch, the Netherlands
Booklets On 6 Different Primary Immunodeficiencies
IPOPI is happy to announce that booklets have been produced in English, French, German, Spanish and Portuguese thanks to great support from the Immune Deficiency Foundation (IDF) USA and a generous sponsorship from CSL Behring.
IPOPI Global Immunoglobulin List
This list is dedicated to the global PID community! It provides information about the supply of Immunoglobulin in some 100 countries, so that every patient or relative know about the situation in the different areas and countries of the world.
You can contribute!
- If the information about the situation in your country is not complete, has changed or is not correct, or
- your country is not yet in this list,
then contact Martine Pergent (martine@ipopi.org) with your suggestions or comments.
World Health Organization
Great news!
- Intravenous immunoglobulin has been reinstated on the “Model List of Essential Medicines”. See the link: http://mednet3.who.int/EMLib/
- Subcutaneous Immunoglobulin has, as of October 2007, been added to the WHO Model List of Essential Medicines for Children, alongside Intravenous and Intramuscular Immunoglobulin. See the link: http://www.who.int/medicines/publications/essentialmedicines/en/index.html
- IPOPI has become a member of the Global Collaboration for Blood Safety (GCBS) as of December 2007
Thank you to all who worked for these cases!
This landmark conference was held at Paul Ehrlich Institute,
Langen, Germany on 19 and 20 June 2006. For details see:
More than 1,000 patients, doctors and nurses took part
in this fantastic congress.
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