IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • New website page on SCID newborn screening
  • IPIC2015, Budapest, Hungary, 700 participants
  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
Visit our new website page on Severe Combined Immunodeficiency
(SCID Newborn screening)


Nov 25, 2015
IPIC2015 was a great success with 700 participants from over 70 countries in attendance! The second International Primary Immunodeficiencies Congress was held in Budapest, Hungary.
Oct 12, 2015
IPOPI attended the 2nd European Reference Networks (ERNs) conference organised by the European Commission on 8-9 October 2015.


Aug 17, 2015
IPOPI’s 2014 Review of Activities and Achievements is out and you can now read it online!
Apr 9, 2015
Over the last two years, IPOPI combined its efforts with a worldwide multi-disciplinary team of specialists to develop the “Primary Immunodeficiencies Principles of Care”.

IPIC 2015

IPOPI Global Immunoglobulin list

Website Sponsors

World PI Week

Biennial Meeting 2016