The Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency patients worldwide.
The NMO Support Programme
has been created to assist mainly new and emerging National Member Organisations (NMOs) to become effective organisations.
NMOs should feel free to explore any avenue of activity that is appropriate to their national situation. Maximum grant for project €5,000.
To see the NMO Support Programme in French, German, Portuguese, Russian and Spanish – click here.
Global Leaders Meeting,
London
October 30-November 1 2009
Vision: Provide a platform for a Global Collaboration of all stakeholders involved with primary immunodeficiency.
Mission: Creation of an ongoing annual global forum for establishing international priorities to improve diagnosis and management of the primary immunodeficiencies through research, advocacy and education.
Objectives:
- Improved methods of diagnosis
- The development of diagnostic and treatment guidelines than can be shared globally
- Access to appropriate therapeutic materials.
Groups invited:
AAAAI, Asiatic Group, ASID, EFIS, ESID, J-PROJECT, INGID, IPFA, IUIS, JMF, LASID, PPTA.
Twinning will enable/facilitate a network of co-operation between national PID organisations around the world. Established NMOs have knowledge, experience and resources. Transfer of those can be used to help emerging NMOs reach a lvel of performance that directly benefits people with PIDs.
To see the details click here.
Primary Immunodeficiencies in Latin America...
current status and future directions
The First Meeting of the Latin American Chapter of the International Patient Organisation for Primary Immunodeficiencies (IPOPI) will take place on October 16-17 2009 and the First Meeting of the Latin American Society for Primary Immunodeficiencies (LASID) on October 15-17 2009 at Cartagena de Indias, Columbia.
Booklets On 6 Different Primary Immunodeficiencies
IPOPI is happy to announce that booklets have been produced in English, French, German, Spanish, Portuguese and Russian thanks to great support from the Immune Deficiency Foundation (IDF) USA and a generous sponsorship from CSL Behring.
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