IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • First IPIC, Estoril, Portugal, 400 participants
  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
  • Patients' family camp in Sweden
Improving awareness, access to early diagnosis and optimal treatments for PID patients worldwide


Jan 30, 2015
IPOPI in collaboration with the Care-for-Rare Foundation, co-organized the “First Care-for-Rare European-South East Asian PID Meeting – from Bench to Bedisde” in Bangkok, Thailand
Dec 19, 2014
Over the last two years, IPOPI combined its efforts with a worldwide multi-disciplinary team of specialists to develop the “Primary Immunodeficiencies Principles of Care”.


Jan 16, 2015
A new series of IPOPI patient information leaflets has just been released! Five new interesting leaflets providing helpful information and guidance for patients and their families
Jul 31, 2014
The 2013 IPOPI Review of Activities and Achievements is out and available online! In this report find out about IPOPI's activities and achievements during the past year. 2013 was a historical for IPO

IPIC 2015

IPOPI Global Immunoglobulin list

Website Sponsors

World PI Week

Biennial Meeting 2016