IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • First IPIC, Estoril, Portugal, 400 participants
  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
  • Patients' family camp in Sweden
Improving awareness, access to early diagnosis and optimal treatments for PID patients worldwide


May 5, 2014
IPOPI is pleased to announce the publication of its survey manuscript looking at Improving current immunoglobulin therapy for patients with primary immunodeficiency.
Apr 22, 2014
The 4th edition of World Primary Immunodefiencies Week (WPIW) starts today with the theme “Test! Diagnose! Treat!”


Dec 20, 2013
The third series of IPOPI patient information leaflets comprises helpful information and guidance for patients, their families and other interested stakeholders.
Jul 4, 2013
The 2012 IPOPI Review of Activities and Achievements is now available online! In this report find out about IPOPI's activities and achievements during the past year.

Biennial Meeting 2014

IPOPI Global Immunoglobulin list

Website Sponsors

World PI Week

IPIC 2015