IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide
Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.
New website page on SCID newborn screening
First IPIC, Estoril, Portugal, 400 participants
Dsai, Germany, central and regional leaders
PID patient's meeting in Bangkok
(SCID Newborn screening)
IPOPI Global Immunoglobulin list
This list is dedicated to the global PID community! It provides information about the supply of Immunoglobulin in some 100 countries. To let every patient or relative know about the situation in the different areas and countries of the world.