IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • IPIC2015, Budapest, Hungary, 700 participants
  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
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May 11, 2016
SCIDNET, a partnership initiative in which IPOPI is participating, has launched its new website
May 1, 2016
Participants at the IPOPI 2016 WPIW Policy event identified European Reference Networks as essential to improve care for PIDs. IPOPI is currently collaborating with RITA Network


Apr 29, 2016
IPOPI is glad to release a new series of patient information leaflets during this World Primary Immunodeficiencies Week!
Aug 17, 2015
IPOPI’s 2014 Review of Activities and Achievements is out and you can now read it online!

IPIC 2017

IPOPI Global Immunoglobulin list

Website Sponsors

World PI Week

Biennial Meeting 2016