Welcome to IPOPI...

IPOPI is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • Patients' family camp in Sweden
  • Global Leaders Meeting – London, UK
  • A patients and physicians awareness event in Belgium
  • 2nd PID Forum - EU Parliament
  • Family weekend in Wernigerode Germany
Improving awareness, access to early diagnosis and optimal treatments for PID patients worldwide

News

May 16, 2012
IPOPI is pleased to announce the launch of its NMO Website Toolkit accessible online on the IPOPI website. The toolkit was created specifically to help IPOPI’s National Member Organisations (NMOs) set
May 8, 2012
This new IPOPI statement is intended to provide a summary of IPOPI’s position with regards to the importance of ensuring access for patients living with a primary immunodeficiency (PID) to the best su

Publications

Jan 19, 2012
IPOPI has published three information leaflets comprising helpful information and guidance for patients, their families and schools as well as other interested stakeholders.
Dec 7, 2011
IPOPI’s recently released a co-edited issue of Pharmaceuticals Policy and Law in collaboration with Professor Jose-Luis Valverde (University of Granada, Spain) looking at Health Technology Assessments

IPOPI Global Immunoglobulin list

This list is dedicated to the global PID community! It provides information about the supply of Immunoglobulin in some 100 countries. To let every patient or relative know about the situation in the different areas and countries of the world.

The IPOPI Global Immunoglobulin List is currently being redesigned and updated. Come back soon to access the new improved version of our List!

Website Sponsors
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Our NMOs

World PI Week