IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • First IPIC, Estoril, Portugal, 400 participants
  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
  • Patients' family camp in Sweden
Improving awareness, access to early diagnosis and optimal treatments for PID patients worldwide


Dec 19, 2014
Over the last two years, IPOPI combined its efforts with a worldwide multi-disciplinary team of specialists to develop the “Primary Immunodeficiencies Principles of Care”.
Dec 5, 2014
IPOPI held yesterday its 5th PID Forum at the European Parliament in Brussels (Belgium), which was co-chaired by Dr Cristian Busoi MEP and Dr Boreslaw Piecha MEP.


Jul 31, 2014
The 2013 IPOPI Review of Activities and Achievements is out and available online! In this report find out about IPOPI's activities and achievements during the past year. 2013 was a historical for IPO
Dec 20, 2013
The third series of IPOPI patient information leaflets comprises helpful information and guidance for patients, their families and other interested stakeholders.

Biennial Meeting 2014

IPOPI Global Immunoglobulin list

Website Sponsors

World PI Week

IPIC 2015