IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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May 1, 2016
Participants at the IPOPI 2016 WPIW Policy event identified European Reference Networks as essential to improve care for PIDs. IPOPI is currently collaborating with RITA Network
May 1, 2016
On the occasion of World Primary Immunodeficiency Week, IPOPI organised on Tuesday 26th April a policy event at the European Parliament in Brussels.


Apr 29, 2016
IPOPI is glad to release a new series of patient information leaflets during this World Primary Immunodeficiencies Week!
Aug 17, 2015
IPOPI’s 2014 Review of Activities and Achievements is out and you can now read it online!

IPIC 2017

IPOPI Global Immunoglobulin list

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World PI Week

Biennial Meeting 2016