IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • New website page on SCID newborn screening
  • First IPIC, Estoril, Portugal, 400 participants
  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
Visit our new website page on Severe Combined Immunodeficiency
(SCID Newborn screening)


Mar 24, 2015
IPOPI is proud to announce the launch of a new website section dedicated to newborn screening for Severe Combined Immunodeficiencies (NBS for SCID).
Mar 2, 2015
IPOPI is releasing today its first patient testimonial video. Jose Drabwell, Common Variable Immunodeficiency (CVID) patient and IPOPI President is the first one up with a very positive message.


Jan 16, 2015
A new series of IPOPI patient information leaflets has just been released! Five new interesting leaflets providing helpful information and guidance for patients and their families
Jul 31, 2014
The 2013 IPOPI Review of Activities and Achievements is out and available online! In this report find out about IPOPI's activities and achievements during the past year. 2013 was a historical for IPO

IPIC 2015

IPOPI Global Immunoglobulin list

Website Sponsors

World PI Week

Biennial Meeting 2016