IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

  • facebook join us
  • Follow us on twitter
  • YouTube watch us
  • Visit the new IPOPI TV
  • IPIC2015, Budapest, Hungary, 700 participants
  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
Visit the new


Apr 21, 2017
Learn all about the photo contest, the Call to action and download the Press release
Apr 7, 2017
IPIC2017 is an international scientific meeting focusing on the diagnosis and clinical management of primary immunodeficiencies (PIDs). Register now to join us in Dubai!


Oct 21, 2016
IPOPI’s 2015 Review of Activities and Achievements is out and you can now read it online! We hope you will enjoy reading about one of the most important years for IPOPI yet.
Aug 29, 2016
IPOPI is pleased to announce the publication of the ‘PID Principles of Care Implementation Package’, a new key document designed specifically for our National Member Organisations (NMOs)

IPIC 2017

IPOPI Global Immunoglobulin list

Website Sponsors

World PI Week

Biennial Meeting 2016