Member organisations

IPOPI’s National Member Organisations (NMOs), national patient groups that represent the interests of primary immunodeficiencies patients, are the reason for IPOPI’s existence.
IPOPI recognises one national patient group per country.

Argentina Asociación Ayuda al Paciente con Inmunodeficiencia Primaria (AAPIDP)

Address

Roberta Anido de Pena

Bollini 2157

Capital Federal Bs. As

Codigo Postal 1425

Argentina

Email/Web

Roberta@ipopi.org 

info@aapidp.com.ar 

www.aapidp.com.ar

Phone

+54 011 4805 4052

+54 9 11 4415 4415

Australia The Immune Deficiency Foundation of Australia (IDFA)

Address

Carolyn Dews

Executive Officer IDFA

Address: PO Box 969 Penrith NSW 2751

5 North Circle Blaxland NSW 2774

Australia

Email/Web

carolyn@idfa.org.au

info@idfa.org.au

www.idfa.org.au

Phone

Office: 1800 100 198

Mobile: 0409 945 114

Austria Österreichische Selbsthilfegruppe primärer Immum Defekte (ÖSPID)

Address

Karin Modl 

Eichkogelstraße 7 

3004 Riederberg 

Österreich 

Email/Web

oespid@gmx.at

www.oespid.at

Phone

0664/1830169 

Fax 02271/26146 

Belarus The republican public organisation of patients (parents) with primary immunodeficiency “Save immunity”

Address

Ilya Murashkin

Minsk, st. Voronyanskogo 50/4-188 of. 212

Belarus

Email/Web

save_immunity@tut.by

www.save-immunity.by

Phone

+375 017 2654 222

Belgium Belgian Patient Organisation for Primary Immunodeficiencies (BePOPI)

Address

Poelstraat 16 3012 Wilsele

0774.361.490 RPR afdeling Leuven

Belgium

Bolivia Fundacion FIDEP-Bolivia

Bosnia and Herzegovi Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje (POPID)

Address

Dzenita Subasic: Founder

Sarajevo, Trg Heroja, 30, Bosnia & Harzegovina

Email/Web

dzenita.subasic@sos-ds.ba

Phone

+387-66-910 677

Brazil ANPIC (Associação Nacional dos Portadores de Imunodeficiência Primária Congênita)

Address

Alexandre Fonseca: Communications Director

Alameda Alváro Celso, 241, Centro. Belo Horizonte - Minas Gerais

Bulgaria Association of People with Congenital Immunodeficiency

Address

Stoil Lazarov: President

Dr. Nedelcho Hadjinikolov: Vice-President and contact person

3, Javoretz str., vh. B 1164, Sofia, Bulgaria

Canada Canadian Immunodeficiencies Patient Organisation (CIPO)

Address

CIPO

#206-645

Fort Street Victoria, BC

V8W 1G2

Canada

Email/Web

Info@cipo.ca

whitney.goulstone@cipo.ca

www.cipo.ca

Phone

(250) 381-7134 Toll free line

Chile Chilean Association for Support of Patients with Primary Inmunodeficiencies (Life for Life)

Address

Yessica Araya Flores (President)

Email/Web

jarayabmx@gmail.com

Phone

 

China PID Care China

Address

Jessie Qu

5/F Huafuyang building Kejizhong NO.3 Road HI-Tech Park

Nanshan Districs Shenzhen City, Guangdong Province

China

Colombia Fundación “Diana García de Olarte” para las Inmunodeficiencias Primarias (FIP)

Address

Carolyn Álvarez: Secretary

Carrera 43C #9-21 Ed. Modulor 

Medellin

Colombia (South America) 

Email/Web

fundacionfip@gmail.com

www.fundacionfip.org.co

Phone

(57) 4-266-4534 

Mobile: (57) 314-864-6956

Cyprus Cyprus Primary Association and Friends

Address

Maria G. Charalambous

Kalli Sakka 5

Parisinos - Strovolos

Nicosia 2066

Cyprus

Denmark Immun Defekt Foreningen (IDF)

Address

Anja Pihl (Chair)

Østparken 83

6840 Oksbøl

Email/Web

formand@idf.dk

www.idf.dk

Phone

+45 60 45 20 13

Ecuador Fundación PIDE

Address

Diana Carolina Cantuña Cachago (President)

Sector Yaruqui-Barrio Chinangachi

Calle Perseo y Nicolás Paillacho E3-76

Quito, Pichincha

Ecuador

Email/Web

nenita393@hotmail.com

www.facebook.com/FundacionPIDE.ec/

Phone

+593022777030

+593984896930

Egypt The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency

Address

Shereen Reda, Professor of Pediatrics, Faculty of Medicine, Ain Shams University

Nada Society 

Room 5, ground floor of Children’s Hospital at Faculty of Medicine- Ain Shams University, Abbassya, Cairo 1156, Egypt

Email/Web

shereen.m.reda@gmail.com

Phone

+202 24187440

+202 24187440

El Salvador Fundación Escudo de Amor para las Inmunodeficiencias Primarias (Love Shield for PID Foundation)

Estonia Estonian Patient Society for Primary Immunodeficiencies

Address

Kersti Urbala, President

Finland Immunipuutospotilaiden yhdistys r.y.

Address

Pirkko Grahn (Chair)

Turkismiehenkuja 6 A 2

00370 Helsinki

FINLAND

France Immuno-Deficience Primitive: Recherche, Information, Soutien (IRIS)

Address

Evelyne Larquet (President)

Virginie Grosjean: Executive Director

Association IRIS

247 Colonel Péchot Avenue 54200 Toul

France

Email/Web

info@associationiris.org

www.associationiris.org

Phone

Office: +33 3 83 64 09 80

Mobile: +33 6 43 78 50 34

Germany Deutsche Selbsthilfe Angeborene Immundefekte e. V. (DSAI)

Address

Gabriele Gruendl

Hochschatzen 5

D-83 530 Schnaitsee

Germany

Greece GALINOS – Immune Deficiency Association of Greece

Address

Konstantinos Chondropoulos

GALINOS—Immune Deficiency Association of Greece

Ilia Iliou 5, Stavroupoli, Thessaloniki

P.C. 56430

Greece 

Hong Kong Primary Immunodeficiency League

Hungary HOPI (Hungarian Organization for Patients with Immunodeficiencies)

Address

Monika Apati Nagy: President

Nagyerdei Krt.

98. 4032 Debrecan

Hungary

Iceland Lind – Icelandic Immune Deficiency Foundation

Address

Gudlaug Bjarnadottir

Spitalastigur 8

IS-101 Reykjavik

India Indian Patients Society for Primary Immunodeficiency (IPSPI)

Address

Rubby Chawla: Predident

PLOT NO. 36, SWARNAPURI,PATIA,C.S.PUR,

BHUBANESWAR(ORISSA)-751075

Email/Web

rubbychawla@ipspiindia.org

rubbyipspi@rediffmail.com

www.ipspiindia.org

Phone

Tel/Fax: 0674-2726402 (O)

+91 98611 85656 (M)

Indonesia Indonesian Primary Immunodeficiency Patients Society (IPIPS)

Address

Contact person: Dimas Adhi Sugiharto

Iran Iranian Primary Immunodeficiency Association (IPIA)

Address

Dr Nima Rezaei

Research Center for Immunodeficiencies

Children's Medical Center - Dr Gharib St, Keshavarz Blvd

Tehran 14194, Iran

Ireland Irish Primary Immunodeficiency Association (IPIA)

Italy Associazione Immunodeficienze Primitive (AIP)

Address

Andrea Gressani

Associazione Imunodeficienze Primitive onlus

Via Galvani, 18

25123 Brescia - Italy

Email/Web

info@aip-it.org

www.aip-it.org

Phone

+39-030-3386557

Address

Kohsuke IMAI, M.D., Ph.D. 

PID Tsubasa-no-Kai

C/O Japanese Society for Pediatric Infectious Diseases

3F 3-11-8 Toranomon, Minato-ku, Tokyo, 105-0001 JAPAN

Email/Web

kimai.ped@tmd.ac.jp

npo-pidtsubasa.org

Phone

+81-3-5803-4082

Fax +81-3-5803-0378

Kazakhstan Kazakhstan Society of Patients with Primary Immune Deficiency “ARAY”

Address

Eugeniya Beloussova (Chair)

Shashkin Street 38B

Almaty

A26G7H4

Kazakhstan

Email/Web

beloussova19871601@gmail.com

Phone

+7 (727) 223 6733

Kenya The Primary Immunodificiencies Association – Kenya (PIDs Kenya)

Address

Cynthia Olotch

P.O.Box 7146

00100 Nairobi

Kenya

Malaysia Malaysia Patient Organization of Primary Immunodeficiencies (MyPOPI)

Address

Mr. Bruce Lim Wee Diong: President 

Jabatan Pediatrik, Pusat Perubatan Universiti Kebangsaan Malaysia

Jalan Yaacob Latiff, 56000 Bandar Tun Razak, Kuala Lumpur, Malaysia

Mexico Asociación Mexicana para Pacientes con Inmunodeficiencias Primarias

Address

President: Gabriela Suárez Martinez

Av. José Loreto Fabela N° 659 Edif. 1C Depto. 204, Col. Pueblo San juan de Aragón, Del. Gustavo A. Madero

C.P. 07950, CDMX

Mexico

Morocco Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitifs

Address

Bousfiha Ahmed Aziz

Number 60, Street 2 

District Miamer 

Casablanca 

Email/Web

Aabousfiha@menara.ma 

http://hajar-maroc.org/

Phone

+212 61 431062 

Netherlands Stichting voor Afweerstoornissen

Address

Jose Verstegen (Vice-president)

Groenstraat 17

KW Geffen

5386

The Netherlands

New Zealand Immunodeficiency Foundation – New Zealand (IDFNZ)

Address

Janet Simons

IDFNZ

PO Box 75-076, Manurewa, Auckland

Manukau 2243

New Zealand

Email/Web

gm@idfnz.org.nz

info@idfnz.org.nz

idfnz.org.nz

Phone

+64 9 528 6212 

Nicaragua Asociación Nicaraguense de Pacientes con Imunodeficeincias Primarias (ANIPIDP)

Address

Katia Valeska Ríos Fonseca

Nicaragua

Norway Norwegian Immunodeficiency Organisation

Address

Eva Brox

Borgundvegen 478

6015 Ålesund

Norway

Paraguay Association of parents of children and adults with primary immunodeficiency of Paraguay (ASPANA IDP)

Address

President: Dario Alderete

Paraguay

Philippines Philippine Patient Organization for Primary Immunodeficiencies (PhilPOPI)

Address

Colly Carag (President)

17 San Isidro Arcade

128 Dona Soledad Barangay Don Bosco

1711 Paranaque City

Philippines

Poland Association for Patients with Primary Immunodeficiencies “Immunoprotect”

Address

Ewa Kapuścińska, President

Stowarzyszenie IMMUNOPROTECT

ul. Wedmanowej 7

93-228 Łódź 

Poland

Portugal Associação Portuguesa de Doentes com Imunodeficiência Primária (APDIP)

Address

President: Ricardo Pereira

Portugal

Puerto Rico APIP – Puerto Rico Alliance of PID patients

Address

Blanca Imbert (President)

Republic of Korea PID Korea

Address

Contact person: Jungwoo Park

Address: 429-23 Hyundai-Village B-1, Wolgye-dong, Nowon-gu, Seoul, Korea

Romania Romanian Association for Patients with Primary Immunodeficiencies (ARPID)

Address

Artemiza Baldea - President

Matei Basarab Street, no.10 A, building 37, entrance B, apartment 6

Timisoara, Timis County

Romania 

Russian Federation OPPID

Address

Anton Emelin

Russian Federation

Email/Web

info@oppid.ru

www.oppid.ru

Phone

+79 268700047

Senegal Association sénégalaise des déficients immunitaires primitifs (ASDIP)

Address

Prof Tandakha Dieye

Université Cheikh Anta Diop Dakar (UCAD)

Service d’Immunologie CHNU A le Dantee

Senegal (Associate NMO)

Serbia Supporting Persons with Primary ImmunoDeficiencies (SPwPID/POsPID)

Address

Dragana Koruga

O. Zapanica 12/38

SRB -11070 New Belgrade

Serbia

Slovakia Slovakian Association of Patients with Primary Immunodeficiency

Address

Mrs Lucia Bodor

Slovakia

Slovenia Slovenian Society for immune disorders

Address

Tadej Avcin: President

Bohoričeva 20

SI-1000 Ljubljana

Slovenia

Email/Web

drustvo@imuno.si

www.imuno.si

Phone

38615229277

South Africa Primary Immunodeficiency Network of South Africa (PINSA)

Address

Janet Grab (Chair)

PiNSA, P.O. Box 1547

Midstream Estate

1692

South Africa

Email/Web

janetgrab@gmail.com

www.pinsa.org.za

Phone

+27 836619162

Spain Asociación española de deficits immunitarios primarios (AEDIP)

Address

Carlos Jimenez: President

Cl. Manuel Pombo Angulo, 10 2º Puerta 5

28050 Madrid

Spain

Sudan Sudanese Organization for Patients with Primary Immunodeficiency – Soppi

Address

Salma Ali Elmahdi

P.O. Box 13031, Khartoum Central Post, Khartoum, Sudan

00249962831502

Sweden Primär Immunbrist Organisationen (PIO)

Address

Maria Monfors: Chair

Anneli Larsson: Executive Director

Mellringevaegen 120 B

S-703 53 Oerebrro

Sweden

Email/Web

maria.monfors@pio.nu

www.pio.nu

Phone

+46 19 673 21 24

Switzerland Schweizerische Vereinigung für Angeborene Immundefekte (SVAI)

Address

Sergio Vassalli

Postfach 1089

Baslerstr. 141

CH-8048 Zürich

Switzerland

Email/Web

info@swai.ch

s.vassalli@bluewin.ch

www.svai.ch

Phone

+41 44 4353 800 (day time); +41 43 8171 717 (home)

+41 44 4353 808 (fax)

Thailand ThaiPOPI

Address

Contact person: Ronnapee Nushiri

27/43 The Plant 2 Village, Khanayao District, Khannayao Sub-district, Kanchanapisek Road, 10230 Bangkok

Thailand

Tunisia Tunisian Association of Primitive Immune Deficiency (ATunDip)

Address

Mohamed Habib Selmi (President)

Association Tunisienne des patients atteins des Déficits Immunitaires Primitifs (ATun DIPs)

18 Avenue Hbib BOURGUIBA

5100 Mahdia

Tunisie

Email/Web

sel.med.hab@live.fr

atundips.tn

Phone

+216 98 453 023

Turkey Immun Yetmezlik Dernegi (IMYED)

Address

Omer Iren

Unalan Mah. Ulgen sok. No:14/1

Uskudar / İstanbul

Turkey

Email/Web

info@imyed.org.tr

selcankaya@yahoo.com

imyed.org

Phone

0216 523 60 60 /145

Mobile: 0535 736 81 33

Uganda PRIMARY IMMUNODEFICIENCIES PATIENT ORGANISATION (PIPO)

Address

Department of Paediatrics and Child Health

College of Health Sciences Makerere University

P.O BOX 7062 KAMPALA

Uganda

Email/Web

barugahare@gmail.com

winmuk_nam@yahoo.com

Phone

+256 (0) 414 531875

Ukraine Rare Immune Diseases (RID)

Address

Roman Shpak

4 Levanevskogo street., ap. 65/1

03058 Kiev, Ukraine

Ukraine

Email/Web

imunodefekt@gmail.com

ngo-rid.com

Phone

+38 (044) 515-54-85

United Kingdom Immunodeficiency UK

Address

Contact: Susan Walsh, Director

Immunodeficiency UK

PO Box 12635

Colchester CO7 5AN

United Kingdom

United States Immune Deficiency Foundation (IDF)

Address

Immune Deficiency Foundation

110 West Road, Suite 300

Towson

MD 21204

United States of America

Email/Web

Idf@primaryimmune.org

www.primaryimmune.org

Phone

410-321-6647

+1 800 296 4433

Uruguay Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias (AUPIDP)

Address

María Isabel Sánchez - President

Hudson 4591 bis, Montevideo, Uruguay

Uruguay

Venezuela Inmunodeficiencias Primarias Venezuela (IDP Venezuela)

Address

Chairman: César Pérez Maldonado

Urb. Campo Claro.

Terrazas de Sol. Casa 46.

5151, Mérida

Venezuela

Vietnam VietPIPS (Vietnam  Primary Immunodeficiency Patient Support Group)

Address

Dr Thuc Thanh Huyen

Vietnam