Generated by All in One SEO v4.9.10, this is an llms.txt file, used by LLMs to index the site. # IPOPI Improving PID patients’ lives. Worldwide.  ## Sitemaps - [XML Sitemap](https://ipopi.org/sitemap.xml): Contains all public & indexable URLs for this website. ## Posts - [Introducing IPOPI's new Board of Directors - 2024](https://ipopi.org/introducing-ipopis-new-board-of-directors-2024/) - The new IPOPI Board of Directors was recently elected by the membership and announced at the Global Patients' Meeting 2022 in Gothenburg, Sweden. - [Shaping EU Policy for PIDs & SIDs](https://ipopi.org/ipopi-at-pid-forum-pids-sids/) - Learn about the PID Forum at the European Parliament, where experts, policymakers and patient advocates discussed the future of EU policy for PIDs and SIDs. - [IPOPI statement on access to IG therapies](https://ipopi.org/ipopi-position-on-access-ig-therapies/) - IPOPI’s Position Statement calls for continuous, equitable, and patient-centred access to immunoglobulin therapies for people living with PIDs worldwide. - [PLUS hosts annual Stakeholder Consensus Conference](https://ipopi.org/plus-meeting-2025/) - PLUS organises its annual Stakeholder Consensus Conference on January 23-24 in Estoril, focusing on collaboration and shared priorities among key experts. - [IPOPI PID Forum addresses ageing with PIDs](https://ipopi.org/ipopi-at-pid-forum/) - IPOPI gathered policymakers, clinicians, and patient advocates at the European Parliament to discuss ageing with PIDs in Europe. - [IPOPI at the International Plasma Protein Congress in Milan](https://ipopi.org/ipopi-at-ippc2026/) - IPOPI advocates for access to plasma-derived therapies at IPPC 2026, representing people with primary immunodeficiencies and associated conditions. - [Global Stakeholders' Summit 2026 Explores the Future of PIDs](https://ipopi.org/gss-2026/) - Discover the key discussions from the 2026 IPOPI Global Stakeholders' Summit on the future of Primary Immunodeficiencies, innovation and patient care. - [New PID Life Index Leaflet Highlights Global Access to SCID Newborn Screening](https://ipopi.org/leaflet-global-access-scid-newborn-screening/) - Discover IPOPI's new PID Life Index leaflet highlighting global progress and gaps in SCID newborn screening to support earlier diagnosis and care. - [Applications Open for the Jose Drabwell Research Grant Programme](https://ipopi.org/open-applications-research-grant-2026/) - IPOPI launches the 2026 Jose Drabwell Research Grant Programme, offering three €10,000 grants to advance research in primary immunodeficiencies. - [IPOPI Participates in Moroccan IEI Congress](https://ipopi.org/ipopi-participates-in-moroccan-iei-congress/) - IPOPI was proud to participate in the 19th Moroccan Congress on the Predisposition to Infections, Allergies and Autoimmunities and the 10th Maghrebin IVIG Meeting, held in Casablanca, Morocco. Representing IPOPI, Martine Pergent, President of IPOPI, joined healthcare professionals, researchers, patient advocates and representatives from across the region for important discussions on advancing care and raising - [Nordic PID Community Strengthens Collaboration](https://ipopi.org/nordic-pid-community-strengthens-collaboration/) - The Nordic primary immunodeficiency (PID) community recently came together with a clear goal: to regain momentum after the COVID years and rebuild strong Nordic collaboration. The meeting gave participants a chance to reconnect, discuss shared needs and agree on priorities for the years ahead. It also helped strengthen links between Nordic patient organisations. A new The Nordic PID community met to rebuild regional collaboration after the COVID years, developing a 3-year plan focused on mission, governance, advocacy and stronger member connections. - [IPOPI welcomes EU authorisation of XOLREMDI TM](https://ipopi.org/ipopi-welcomes-eu-authorisation-of-xolremdi/) - IPOPI welcomes the EU approval of XOLREMDI™, the first authorised treatment for patients with WHIM syndrome in Europe. - [IPOPI in Ukraine: Supporting the PID Community](https://ipopi.org/ipopi-in-ukraine-2026/) - IPOPI took part in a conference in Kyiv, supporting collaboration and raising awareness to improve care for people with primary immunodeficiencies in Ukraine. - [Remembering Paweł Górniak](https://ipopi.org/in-memoriam-pawel-gorniak/) - IPOPI mourns the passing of Paweł Górniak, President of Immunoprotect and a dedicated advocate for the PID community. His legacy will be remembered. - [Regional Asian PID Patients and Doctors‘ Meeting](https://ipopi.org/ipopi-regional-asian-patients-doctors-meeting/) - IPOPI’s Asian PID Meeting in Bangkok brings together patients, doctors, and experts to advance care, diagnosis, and awareness across the region. - [In Memoriam - Prof Claude Griscelli](https://ipopi.org/in-memoriam-claude-griscelli-2/) - IPOPI honours Professor Claude Griscelli, a pioneer in paediatric immunology whose groundbreaking work advanced the understanding and treatment of rare genetic immune disorders. - [Mini-Doc: The Life Journey with Primary Immunodeficiencies](https://ipopi.org/mini-documentary-life-journey-with-pids/) - Discover the challenges and journeys of people living with Primary Immunodeficiencies, highlighting awareness, treatment, and daily life. - [EU SoHO Regulation at the Midpoint: Strengthening Plasma Collection in the EU](https://ipopi.org/eu-soho-regulation-plasma-collection-systems-eu/) - At the SoHO Regulation midpoint, IPOPI calls for action to boost plasma collection and prevent shortages of vital immunoglobulin treatments. - [Mini-Doc: Pulmonary Alveolar Proteinosis (PAP) - A Hidden Challenge in PIDs](https://ipopi.org/mini-documentary-pap/) - A mini-documentary on Pulmonary Alveolar Proteinosis (PAP), a rare and frequently overlooked lung complication in people living with Primary Immunodeficiencies. - [IPOPI–SEAPID–Chulalongkorn–Erasmus MC Meeting in Bangkok](https://ipopi.org/ipopi-seapid-chulalongkorn-erasmus-meeting/) - IEI experts met at King Chulalongkorn Memorial Hospital for the IPOPI SEAPID Chulalongkorn Erasmus MC Meeting 2026, advancing research and collaboration. - [New Educational Leaflet on SIDs is Out!](https://ipopi.org/new-educational-resource-25/) - Explore IPOPI’s new leaflet on Secondary Immunodeficiencies (SIDs) — a clear, practical guide for patients, caregivers, and healthcare professionals. - [Thank You and See You in Mallorca!](https://ipopi.org/thank-you-see-you-in-mallorca/) - IPIC2025 brought together over 900 attendees for learning, collaboration, and advancing care for primary immunodeficiencies. See you at IPIC2027 in Mallorca! - [The IPOPI Jose Drabwell Research Grant Programme Winners](https://ipopi.org/research-grant-winners-2025/) - IPOPI proudly announces the 2025 Jose Drabwell Research Grant winners, supporting global innovation and improved care in primary immunodeficiencies. - [In loving memory of Jose Drabwell](https://ipopi.org/in-memory-of-jose-drabwell/) - In loving memory of Jose Drabwell - [New Leaflet on Secondary Immunodeficiencies](https://ipopi.org/leaflet-sids/) - Explore Secondary Immunodeficiencies (SIDs): causes, symptoms, diagnosis, treatment, and the importance of early detection and care. - [IPOPI Applauds EMA’s Positive Opinion on Waskyra™ for Wiskott-Aldrich Syndrome](https://ipopi.org/ema-waskyra-wiskott-aldrich-syndrome/) - IPOPI welcomes the EMA’s positive opinion on Waskyra™, a breakthrough gene therapy bringing new hope to patients with Wiskott-Aldrich Syndrome. - [APDS - Activated PI3K Delta syndrome](https://ipopi.org/apds-activated-pi3k-delta-syndrome/) - [Ataxia Telangiectasia](https://ipopi.org/ataxia-telangiectasia/) - [Hyper-IgE Syndrome](https://ipopi.org/hyper-ige-syndrome/) - [PIDs and Cancer](https://ipopi.org/pids-and-cancer/) - [Primary immunodeficiencies and infections](https://ipopi.org/primary-immunodeficiencies-and-infections/) - [A Guide for Schools](https://ipopi.org/a-guide-for-schools/) - [Essentials of PID Diagnosis](https://ipopi.org/essentials-of-pid-diagnosis-2/) - [CVID management](https://ipopi.org/cvid-management/) - [Secondary Immunodeficiencies (SIDs)](https://ipopi.org/secondary-immunodeficiencies/) - [Rheumatological, Autoimmune & Autoinflammatory Crossovers](https://ipopi.org/rheumatological-autoimmune-autoinflammatory-crossovers-2/) - [PIDs and the Skin](https://ipopi.org/pids-and-the-skin/) - [Genetic Diagnosis of PIDs](https://ipopi.org/genetic-diagnosis-of-pids/) - [Targeted Therapies for PIDs](https://ipopi.org/targeted-therapies-for-pids-2/) - [Chronic Granulomatous Disease (CGD)](https://ipopi.org/chronic-granulomatous-disease-cgd/) - Chronic Granulomatous Disease (CGD) is a primary immunodeficiency. This booklet explains what CGD is, its main symptoms, and how it is diagnosed and treated. - [X-linked Agammaglobulinaemia (XLA)](https://ipopi.org/x-linked-agammaglobulinaemia-xla/) - X-linked agammaglobulinaemia (or agammaglobulinemia), also known as Bruton’s disease, is an inherited primary immunodeficiency (PID) affecting males. - [Primary immunodeficiencies and psychological management](https://ipopi.org/primary-immunodeficiencies-and-psychological-management/) - [Primary immunodeficiencies and allergies](https://ipopi.org/primary-immunodeficiencies-and-allergies/) - [IPOPI Global Survey Highlights Long-Term Impact of COVID-19 on PID Patients](https://ipopi.org/survey-long-term-impact-covid-19-pid-patients/) - IPOPI’s global survey, published in JACI, reveals 25% of PID patients faced long-term COVID-19 symptoms and reduced quality of life. - [Proceedings from IPOPI’s 2024 Global Stakeholders Summit Published in Frontiers in Immunology](https://ipopi.org/proceedings-2024-global-stakeholders-summit/) - IPOPI’s 2024 Summit proceedings in Frontiers in Immunology outline future priorities for PIDs, from innovation to global care access. - [New IPOPI Leaflets](https://ipopi.org/new-information-leaflets-2025/) - Five New IPOPI Leaflets on aPAP, HLH, Fertility & Pregnancy, Congenital Athymia, and Associated Conditions - [IPOPI holds EU PID Forum on Shaping the future of research: patients as equal partners](https://ipopi.org/pid-forum-patient-future-of-research/) - On 14 May the PID Forum at the European Parliament highlighted the vital role of patient organisations as equal partners in shaping EU rare disease research. - [IPOPI’s 2024 Review of Activities and Achievements](https://ipopi.org/2024-annual-review/) - The 2024 Review of Activities and Achievements highlights the most significant IPOPI initiatives, campaigns, and events in the previous year. - [Global Patients’ Meeting 2024: A Milestone for our Community](https://ipopi.org/gpm-2024-2/) - Meet the winners of the IPOPI PID Champion Awards Ceremony 2024 - [Plasma-derived therapies](https://ipopi.org/plasma-derived-therapies/) - [Meet the winners of the PID Champion Awards Ceremony 2024](https://ipopi.org/pid-champions-2024/) - Meet the winners of the IPOPI PID Champion Awards Ceremony 2024 - [PIDs and their recognition as disability for disability support](https://ipopi.org/disability-statement/) - Primary immunodeficiencies causing a heavy burden of disease must always be recognised as a disability and such patients should receive disability support. - [PIDs: Fertility and Pregnancy](https://ipopi.org/pids-fertility-pregnancy-2025/) - [PIDs, Associated Conditions and Clinical Trials](https://ipopi.org/pids-clinical-trials-2025/) - [Management of Autoimmune Pulmonary Alveolar Proteinosis (aPAP)](https://ipopi.org/management-apap-2025/) - [Management of Hyper IgM Syndromes](https://ipopi.org/management-of-hyper-igm-syndromes/) - [The Management of Congenital Athymia](https://ipopi.org/management-congenital-athymia/) - [Wiskott-Aldrich Syndrome (WAS)](https://ipopi.org/wiskott-aldrich-syndrome-was/) - Wiskott-Aldrich Syndrome (WAS) is a primary immunodeficiency (PID). This booklet explains what WAS is, its main symptoms, and how it is diagnosed and treated. - [The Management of Severe Combined Immunodeficiency (SCID)](https://ipopi.org/management-of-scid/) - [Diagnosis of PID](https://ipopi.org/diagnosis-of-pid/) - [How are primary immunodeficiencies classified?](https://ipopi.org/how-are-primary-immunodeficiencies-classified/) - [Management of Primary Haemophagocytic Lymphohistiocytosis (HLH)](https://ipopi.org/management-of-primary-hlh-2025/) - [Global Stakeholders Summit 2023 proceedings](https://ipopi.org/gss-proceedings-2023/) - Read the proceedings from IPOPI's Global Multi-Stakeholders' Summit, including comprehensive recommendations for the primary immunodeficiency community. - [New Article: Newborn Screening Today and Tomorrow](https://ipopi.org/ipopi-article-newborn-screening/) - IPOPI joins the Critical Medicines Alliance - [New position statement: IPOPI welcomes newly elected European Parliament](https://ipopi.org/ipopi-welcomes-newly-elected-european-parliament/) - New position statement: IPOPI welcomes newly elected European Parliament - [Statement of solidarity and support to those affected by the war in Ukraine](https://ipopi.org/solidarity_statement/) - ESID, IPOPI together with INGID and J Project - [IPOPI joins the Critical Medicines Alliance](https://ipopi.org/ipopi-joins-critical-medicines-alliance/) - IPOPI joins the Critical Medicines Alliance - [New statement: Patients with PIDs should have access to safe, efficacious and high-quality immunoglobulin therapies](https://ipopi.org/patients-pids-safe-access-immunoglobulin-therapies/) - New statement: Patients with PIDs should have access to safe, efficacious and high-quality immunoglobulin therapies - [The PID Odyssey 2030: outlooks, unmet needs, hurdles, and opportunities](https://ipopi.org/pid-odyssey-2023/) - Read the proceedings from IPOPI's Global Multi-Stakeholders' Summit, including comprehensive recommendations for the primary immunodeficiency community. - [Celebrating International Neonatal Screening Day](https://ipopi.org/celebrating-neonatal-screening-day/) - Celebrating International Neonatal Screening Day: A Milestone for Newborn Health - [Three Newly Published IPOPI Information Leaflets](https://ipopi.org/new-ipopi-information-leaflets/) - Three Newly Published IPOPI Information Leaflets on SCID, Hyper IgM Syndromes and PID Warning Signs Across Medical Specialties - [IPOPI celebrates 70 members!](https://ipopi.org/ipopi-celebrates-70-members/) - The International Patient Organisation for Primary Immunodeficiencies has welcomed the Lithuanian Society of Primary Immunodeficiencies as its 70th member. - [IPOPI welcomes the adoption of the EU Regulation on Substances of Human Origin](https://ipopi.org/position-statement-soho-regulation-2024/) - IPOPI welcomes the adoption of the EU Regulation on Substances of Human Origin. - [New video series on primary immunodeficiencies](https://ipopi.org/video-series-2022/) - IPOPI is launching new video series covering the diagnosis, treatment and management of primary immunodeficiencies (or inborn errors of immunity, IEI). - [Haematopoietic stem cell transplantation](https://ipopi.org/haematopoietic-stem-cell-transplantation-2/) - [IPOPI’s 2023 Review of Activities and Achievements](https://ipopi.org/2023-annual-review/) - The 2023 Review of Activities and Achievements highlights the most significant IPOPI initiatives, campaigns, and events in the previous year. - [IPOPI statement on the Council's SoHO position](https://ipopi.org/ipopi-position-on-the-councils-negotiating-mandate-on-the-proposed-soho-regulation/) - The International Patient Organisation for Primary Immunodeficiencies welcomes the European Parliament report’s intention to increase EU plasma collection. - [PID Warning Signs Across Medical Specialties](https://ipopi.org/pid-warning-signs-across-medical-specialties/) - [IPOPI’s 2022 Review of Activities and Achievements](https://ipopi.org/2022-annual-review/) - The 2022 Review of Activities and Achievements highlights the most significant IPOPI initiatives, campaigns, and events in the previous year. - [Treatments for primary immunodeficiencies: a guide for patients and their families](https://ipopi.org/treatments-for-primary-immunodeficiencies-a-guide-for-patients-and-their-families/) - [Stay healthy! A guide for patients and their families](https://ipopi.org/stay-healthy-a-guide-for-patients-and-their-families/) - [Primary immunodeficiencies in adults](https://ipopi.org/primary-immunodeficiencies-in-adults/) - [Moving from child to adult care](https://ipopi.org/moving-from-child-to-adult-care/) - [IPOPI's Position on the EU Parliament's SoHO Legislation Vote](https://ipopi.org/position-statement-ep-vote-soho-regulation/) - The International Patient Organisation for Primary Immunodeficiencies welcomes the European Parliament report’s intention to increase EU plasma collection. - [IPOPI’s 2021 Review of Activities and Achievements](https://ipopi.org/2021-annual-review/) - The 2021 Review of Activities and Achievements highlights the most significant IPOPI initiatives, campaigns, and events in the previous year. - [IPOPI’s 2018 Review of Activities and Achievements](https://ipopi.org/ipopis-2018-review-of-activities-and-achievements-just-published/) - [A guide for general practitioners](https://ipopi.org/a-guide-for-general-practitioners/) - [Autoimmunity and autoinflammation](https://ipopi.org/autoimmunity-and-autoinflammation/) - [Immunoglobulin replacement therapy: one size doesn’t fit all](https://ipopi.org/immunoglobulin-replacement-therapy-one-size-doesnt-fit-all/) - [A guide for internal medicine specialists](https://ipopi.org/a-guide-for-internal-medicine-specialists/) - [A guide for pulmonologists](https://ipopi.org/a-guide-for-pulmonologists/) - [Value of SCID newborn screening](https://ipopi.org/value-of-scid-newborn-screening/) - [A guide for gastroenterologists](https://ipopi.org/a-guide-for-gastroenterologists/) - [IPOPI Review of Activities and Achievements - 2015](https://ipopi.org/ipopi-review-of-activities-and-achievements-2015/) - [IPOPI Review of Activities and Achievements - 2016](https://ipopi.org/ipopi-review-activities-achievements-2016/) - [The International Neonatal Screening Day is born!](https://ipopi.org/the-international-neonatal-screening-day-is-born/) - IPOPI, in partnership with ISNS and the ESID, announces the launch of the first International Neonatal Screening Day on June 28, 2021. - [WHIM Syndrome](https://ipopi.org/whim-syndrome/) - [IPOPI and SAFE oppose calls to reduce IG for PID patients](https://ipopi.org/ipopi-and-safe-oppose-calls-to-reduce-ig-therapies-for-pid-patients/) - Read the Position Paper - [Six new IPOPI PID information leaflets published](https://ipopi.org/six-new-ipopi-pid-information-leaflets-published/) - PIDs and Skin, PIDs and Cancer, Hyper IgE Syndrome, Ataxia-Telangiectasia, A Guide for Hepatologists and Genetic Diagnosis of PIDs - [IPIC2019 - Congress report](https://ipopi.org/ipic2019-congress-report-2/) - [IPOPI launches new strategic plan](https://ipopi.org/more-pid-diagnostic-tests-included-in-the-who-edl-2/) - In the last 24 months, IPOPI undertook a thorough and comprehensive process to develop its new 5-year strategic plan for the 2021-2025 period. - [Vaccines and primary immunodeficiencies](https://ipopi.org/vaccines-and-primary-immunodeficiencies/) - [A Guide for Hepatologists](https://ipopi.org/a-guide-for-hepatologists/) - [Safety and Efficacy of Immunoglobulin: A Guide for Users, Assessors and Funders](https://ipopi.org/safety-and-efficacy-of-immunoglobulin-a-guide-for-users-assessors-and-funders/) - This IPOPI publication is available for download on our website. Within a national healthcare system, selection of immunoglobulin (IG) therapies for conditions such as Primary Immunodeficiencies (PIDs) is difficult. In well-resourced countries, regulatory agencies make key decisions regarding such therapies' quality and safety; such regulatory agencies, including the U.S. Food and Drug Administration (FDA) and - [PID Principles of Care Implementation Package](https://ipopi.org/pid-principles-of-care-implementation-package/) - [IPOPI Review of Activities and Achievements - 2014](https://ipopi.org/ipopi-review-of-activities-and-achievements-2014/) - [IPOPI joins Health First Europe](https://ipopi.org/ipopi-joins-health-first-europe/) - IPOPI is now a member of Health First Europe (HFE). As a follow-up from the participation in HFE’s General Assembly IPOPI requested membership to this alliance of patients, healthcare workers, academics and healthcare experts and the medical technology industry. As a patient organization, IPOPI will bring a first-hand insight of what are the key policy issues for - [IPOPI Autumn e-News is out!](https://ipopi.org/ipopi-autumn-e-news-is-out/) - The Autumn 2014 edition of IPOPI's e-News is out and can be accessed here. Check out the new section NMO Focus with an article about the Portuguese NMO APDIP and get in touch with our preparation work for the second edition of IPIC2015. e-News is a quarterly electronic newsletter covering the latest activities and news items from ## Pages - [Home](https://ipopi.org/) - IPOPI is a non-profit international organisation that represents primary immunodeficiency patients. - [Executive Committee](https://ipopi.org/about-ipopi/executive-committee/) - [IPOPI MENA PID Patients and Doctors’ Meeting 2026](https://ipopi.org/mena-2026/) - The IPOPI MENA PID Patients and Doctors Meeting brings together patients and healthcare professionals from the Middle East and North Africa to improve PID care. - [PID-SID National Clinical Care Workshop 2026 Turkey](https://ipopi.org/pid-sid-national-clinical-care-workshop-2026-turkey/) - A two-day clinical workshop in Istanbul focused on PID and SID diagnosis, treatment strategies, cancer risk, and access to care. - [Corporate partners](https://ipopi.org/corporate-partners/) - Discover IPOPI’s corporate partners, project sponsors and supporters, and learn about the guiding principles that ensure transparent, independent and mission-driven corporate relations. - [NEX - Network of Experts](https://ipopi.org/about-ipopi/network-of-experts/) - Meet the IPOPI Network of Experts, a consultative group supporting IPOPI with specialist advice across policy, ethics, access and care. - [IPOPI Jose Drabwell Research Grant Programme - Application Guidelines](https://ipopi.org/ipopi-research-grant-application-guidelines/) - Apply for the IPOPI Research Grant Programme to support patient-centred research in primary immunodeficiencies. Grants up to €30,000. Deadline: August 31. - [IPOPI Jose Drabwell Research Grant Programme 2026](https://ipopi.org/ipopi-research-grant-programme-2026/) - Apply for the IPOPI Research Grant Programme to support patient-centred research in primary immunodeficiencies. Grants up to €30,000. Deadline: August 31. - [IPOPI HARD TALKS - EXPLORING THE COMPLEXITY OF OUR FIELD](https://ipopi.org/hard-talks-apap-2026/) - Explore the diagnosis and management of Autoimmune Pulmonary Alveolar Proteinosis through expert insights, clinical discussions, and patient perspectives. - [ NMO Documents](https://ipopi.org/nmos/nmo-documents/) - [NMO support](https://ipopi.org/our-work/nmo-support/) - [IPOPI Governance](https://ipopi.org/about-ipopi/ipopi-governance/) - [Staff](https://ipopi.org/about-ipopi/staff/) - [IPOPI Regional Asian PID Meeting 2026](https://ipopi.org/asia2026/) - Join IPOPI 's upcoming meeting on Primary Immunodeficiency in Bangkok, Thailand. Open to patient leaders and health care professionals interested in the field. - [IPOPI e-News: Call for articles](https://ipopi.org/call-for-articles-enews-26/) - [Medical Advisory Panel](https://ipopi.org/about-ipopi/medical-advisory-panel/) - [Early diagnosis and care](https://ipopi.org/our-work/early-diagnosis-and-care/) - [Mission and objectives](https://ipopi.org/about-ipopi/mission-and-objectives/) - [Previous PID Forums](https://ipopi.org/our-work/previous-pid-forum/) - [Previous WPIW](https://ipopi.org/our-work/pid-awareness/previous-wpiw/) - [PID Campaign Calendar](https://ipopi.org/pid-campaign-calendar/) - [IPOPI Immunity Pulse Podcast](https://ipopi.org/ipopi-immunity-pulse-podcast/) - Tune into Immunity Pulse, where we explore primary immunodeficiencies through real patient stories and insights from medical experts - [Finances and transparency](https://ipopi.org/about-ipopi/finances-and-transparency/) - Finance and transparency Our accounts are audited by an external auditor and approved by our members during the Annual General Assembly. In 2024, IPOPI received funding from the following income sources: No contribution received from a single company reached the majority of the total income. The highest single contribution by a company represented - [PID awareness](https://ipopi.org/our-work/pid-awareness/) - [IPOPI HARD TALKS - EXPLORING THE COMPLEXITY OF OUR FIELD](https://ipopi.org/ipopi-hard-talks-calculated-globulin-screening/) - Join IPOPI Hard Talks to explore the role of calculated globulin screening in diagnosing and managing primary immunodeficiencies with expert insights. - [Media](https://ipopi.org/media/) - [IPOPI NMO Toolkit](https://ipopi.org/nmos/ipopi-nmo-toolkit/) - [What are Primary Immunodeficiencies?](https://ipopi.org/pids/what-are-pids/) - Primary immunodeficiencies (PID, PI) or inborn errors of immunity (IEI) are rare & chronic conditions that occur when the immune system does not work properly. - [History](https://ipopi.org/about-ipopi/history/) - [IPOPI HARD TALKS - EXPLORING THE COMPLEXITY OF OUR FIELD](https://ipopi.org/hard-talks-ada-scid-management/) - Gain expert insights on ADA-SCID management, exploring diagnosis, treatment options, and patient care in IPOPI’s Hard Talks webinar. - [IPOPI: Call for articles for Spring e-News](https://ipopi.org/call-for-articles-spring-enews-25/) - [IPOPI Research Grant Programme](https://ipopi.org/ipopi-research-grant-programme-2/) - [IPOPI NMO Webchat on Feb 4 "Empowering the PID voice"](https://ipopi.org/ipopi-nmo-webchat-on-feb-4-empowering-the-pid-voice/) - [World PI Week 2025 - Experience and pictures](https://ipopi.org/world-pi-week-2025-experience-and-pictures/) - [World PI Week 2025 - NMO Grant application](https://ipopi.org/world-pi-week-2025-nmo-grant-application/) - [IPOPI African Meeting 2025 - NMO travel grant application](https://ipopi.org/ipopi-african-meeting-2025-nmo-travel-grant-application/) - [FUNDRAISING](https://ipopi.org/nmo-toolkit-fundraising-2/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [Relevant international and regional publications](https://ipopi.org/relevant-international-and-regional-publications/) - [ADVOCACY](https://ipopi.org/nmo-toolkit-advocacy/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [Level Up Board Game - Share with us your insights!](https://ipopi.org/level-up-board-game-share-with-us-your-insights/) - [AWARENESS](https://ipopi.org/nmo-toolkit-awareness/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [STRATEGY AND GOVERNANCE](https://ipopi.org/nmo-toolkit-strategy-governance/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [IPOPI Toolkit Education](https://ipopi.org/ipopi-toolkit-education-2/) - [COMMUNICATIONS AND MEDIA](https://ipopi.org/nmo-toolkit-communications-media/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [Previous Biennial Meetings](https://ipopi.org/our-work/previous-biennial-meetings/) - [RESEARCH AND DATA COLLECTION](https://ipopi.org/nmo-toolkit-research-data-collection/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [COMMUNITY BUILDING](https://ipopi.org/nmo-toolkit-community-building/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [PATIENT SUPPORT](https://ipopi.org/nmo-toolkit-patient-support/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [IPOPI HARD TALKS - EXPLORING THE COMPLEXITY OF OUR FIELD](https://ipopi.org/hard-talks-flow-cytometry-screening/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [IPOPI HARD TALKS - EXPLORING THE COMPLEXITY OF OUR FIELD](https://ipopi.org/hard-talks-viral-respiratory-infections-antibody-deficiency/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [IPOPI HARD TALKS - EXPLORING THE COMPLEXITY OF OUR FIELD](https://ipopi.org/hard-talks-apap/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [Global Patients Meeting: Social Activity, October 19](https://ipopi.org/socialactivity/) - [PIDs FAQs](https://ipopi.org/pids/pids-faqs/) - [Related Events](https://ipopi.org/related-events/) - [IPOPI HARD TALKS - EXPLORING THE COMPLEXITY OF OUR FIELD](https://ipopi.org/hard-talks-xlinked-agammaglobulinemia/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [IPOPI Strategic Plan 2026-2030](https://ipopi.org/strategic-plan-nmo/) - [IPOPI HARD TALKS - EXPLORING THE COMPLEXITY OF OUR FIELD](https://ipopi.org/hard-talks-paediatric-congenital-athymia-di-george-syndrome/) - Explore paediatric congenital athymia in IPOPI's Hard Talks Webinar. Discover advanced diagnostics, treatments, and regional differences in care accessibility. - [Hard Talks Evaluation Form June 2024](https://ipopi.org/hard-talks-feedback-2-2/) - [Hard Talks Evaluation Form May 2024](https://ipopi.org/hard-talks-feedback-2/) - [IPOPI Hard Talks - Exploring The Complexity of Our Field](https://ipopi.org/hard-talks-sids/) - Join IPOPI's Hard Talks Webinar on Secondary Immunodeficiencies. Explore the aetiology, clinical manifestations, management strategies, and future perspectives of SIDs. - [Cookie Policy](https://ipopi.org/cookie-policy/) - [GPM2024 - NMO travel grant application](https://ipopi.org/gpm2024-nmo-travel-grant-application-3/) - [IPOPI NMO Support Programme](https://ipopi.org/ipopi-nmo-support-programme/) - [Privacy Policy](https://ipopi.org/privacy-policy/) - [Donate to IPOPI](https://ipopi.org/about-ipopi/donate/) - [Previous Patient Meetings](https://ipopi.org/our-work/previous-patient-meetings/) - [Webinar Feedback Form](https://ipopi.org/webinar-feedback-form/) - [IPOPI Clinical Care Webinar](https://ipopi.org/webinar-reg/) - [Previous IPIC](https://ipopi.org/our-work/previous-ipics/) - [Thank you for your donation](https://ipopi.org/thank-you-for-your-donation/) - [Sources of funding by company](https://ipopi.org/sources-of-funding-by-company/) - [Position statements](https://ipopi.org/publications/position-statements/) - [Member organisations](https://ipopi.org/about-ipopi/member-organisations/) - [Leaflets ](https://ipopi.org/publications/leaflets-2/) - [Reviews](https://ipopi.org/publications/reviews/) - [News](https://ipopi.org/publications/news/) - [Key publications](https://ipopi.org/publications/key-publications/) - [IPOPI strategic plan](https://ipopi.org/our-work/ipopi-strategic-plan/) - [Stakeholder collaboration](https://ipopi.org/our-work/stakeholder-collaboration/) - [IPOPI SCID NBS Campains](https://ipopi.org/our-work/ipopi-scid-nbs-campaigns/) - [Calendar](https://ipopi.org/about-ipopi/calendar/) - [PID Life Index](https://ipopi.org/pid-life-index/) - This is an interactive tool that measures the status of the PID healthcare environment across the globe - [Global PID Patients Meeting 2020](https://ipopi.org/global-pid-patients-meeting-2020/) - [Webinar Feedback Form PID and Vaccines](https://ipopi.org/webinar-feedback-form-pid-vaccines/) - [GLOBAL PATIENTS MEETING](https://ipopi.org/registration-global-patients-meeting/) - [Leaflets](https://ipopi.org/publications/leaflets/) - IPOPI has since 2011 been producing primary immunodeficiencies (PID) information leaflets with helpful guidance for patients, their families, and healthcare teams. - [IPOPI Zoom test](https://ipopi.org/ipopi-zoom-test/) - [zoom_api_link meeting_id="85762015129" link_only="no"] - [IPOPI's 5th Clinical Care Webinar: Hyperinflammation in PID explained & how it differs from COVID-19 by Prof Frédéric Rieux-Laucat](https://ipopi.org/feedback-form-ipopi-5th-clinical-care-webinar/) - [6TH COVID-19 NMO WEBCHAT](https://ipopi.org/submission-to-covid-19-nmo-webchat/) - [Member organisations](https://ipopi.org/organisations/) - IPOPI’s National Member Organisations (NMOs), national patient groups that represent the interests of primary immunodeficiencies patients, are the reason for IPOPI’s existence. IPOPI recognises one national patient group per country. - [Contact us](https://ipopi.org/contact-us/) - [About IPOPI](https://ipopi.org/about-ipopi/) - [IPOPI Scid](https://ipopi.org/ipopi-scid/) - Newborn Screening Campaign - Click to find out more information about SCID NBS at national level.(excerpt) - [Our Work](https://ipopi.org/our-work/) - [PIDs](https://ipopi.org/pids/) - [NMOs](https://ipopi.org/nmos/) - [NMOs](https://ipopi.org/about-ipopi/nmos/) - [Publications](https://ipopi.org/publications/) ## Calendar - [IPOPI MENA PID Patients and Doctors' Meeting](https://ipopi.org/ipopievent/mena-2026-2/) - [IPOPI PID-SID National Clinical Care Workshop](https://ipopi.org/ipopievent/clinical-workshop-2026/) - [Global PID Patients' Meeting](https://ipopi.org/ipopievent/gpm-2026/) ## Organisations - [Primary Immunodeficiency Support Ireland (IPIA)](https://ipopi.org/organizations/irish-primary-immunodeficiency-organisation-ipia/) - [Immune Deficiency Foundation (IDF)](https://ipopi.org/organizations/immune-deficiency-foundation-idf/) - [Ghana Patients Organisation for Primary Immunodeficiencies (GhanaPOPI)](https://ipopi.org/organizations/ghana-patients-organisation-for-primary-immunodeficiencies-ghanapopi/) - [Algerian Association of People with Primary Immunodeficiency](https://ipopi.org/organizations/algerian-association-of-people-with-primary-immunodeficiency/) - [Taiwan Primary Immunodeficiency Patient Support Group](https://ipopi.org/organizations/taiwan-primary-immunodeficiency-patient-support-group/) - [Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitifs](https://ipopi.org/organizations/association-hajar-de-soutien-aux-patients-atteints-de-deficits-immunitaires-primitifs/) - [ASOGEIDI (Asociación guatemalteca de Errores Innatos de la Inmunidad)](https://ipopi.org/organizations/asogeidi-asociacion-guatemalteca-de-errores-innatos-de-la-inmunidad/) - [Immunodeficiency UK](https://ipopi.org/organizations/immunodeficiency-uk/) - [Kuwait PIDs Group](https://ipopi.org/organizations/kuwait-pids-group/) - [NePOPII - Nepal](https://ipopi.org/organizations/nepopii/) - [ASOCIACIÓN PERUANA DE INMUNODEFICIENCIAS PRIMARIAS – NO SOMOS INVISIBLES – IDP PERÚ](https://ipopi.org/organizations/idp-peru/) - [Association of Lebanese Patients with Primary Immunodeficiency](https://ipopi.org/organizations/association-of-lebanese-patients-with-primary-immunodeficiency/) - [APIP - Puerto Rico Alliance of PID patient](https://ipopi.org/organizations/apip-puerto-rico-alliance-of-pid-patient/) - [Fundación IDP Chile](https://ipopi.org/organizations/fundacion-idp-chile/) - [Dove Primary Immune Deficiency Patients Organisation Limited (DPIDPO)](https://ipopi.org/organizations/dpidpo/) - [Eu Luto Pela Imuno Brasil - ELPIB](https://ipopi.org/organizations/eu-luto-pela-imuno-brasil-elpib/) - [Association sénégalaise des déficients immunitaires primitifs (ASDIP)](https://ipopi.org/organizations/association-senegalaise-des-deficients-immunitaires-primitifs-asdip/) - [PID Care China](https://ipopi.org/organizations/primary-immunodeficiency-league/) - [Asociación Mexicana para Pacientes con Inmunodeficiencias Primarias](https://ipopi.org/organizations/asociacion-mexicana-para-pacientes-con-inmunodeficiencias-primarias/) - [Primary Immunodeficiencey Patients Society of Bangladesh (PIDPSB)](https://ipopi.org/organizations/primary-immunodeficiencey-patients-society-of-bangladesh-pidpsb/) - [Lithuanian society of primary immunodeficiencies (IMUNAS)](https://ipopi.org/organizations/lithuanian-society-of-primary-immunodeficiencies-imunas/) - [Bubble Care](https://ipopi.org/organizations/bubble-care/) - [Sudanese Organization for Patients with Primary Immunodeficiency - Soppi](https://ipopi.org/organizations/sudanese-organization-for-patients-with-primary-immunodeficiency-soppi/) - [Asociación Nicaraguense de Pacientes con Imunodeficeincias Primarias (ANIPIDP)](https://ipopi.org/organizations/asociacion-nicaraguense-de-pacientes-con-imunodeficeincias-primarias-anipidp/) - [Tunisian Association of Primitive Immune Deficiency (ATunDip)](https://ipopi.org/organizations/tunisian-association-of-primitive-immune-deficiency-atundippresident-mohamed-habib-selmi/) - [The Primary Immunodeficiencies Association of Kenya (PIDs Kenya)](https://ipopi.org/organizations/the-primary-immunodificiencies-association-kenya-pids-kenya/) - [Kazakhstan Society of Patients with Primary Immune Deficiency "ARAY"](https://ipopi.org/organizations/kazakhstan-society-of-patients-with-primary-immune-deficiency-aray/) - [Primary Immunodeficiency League](https://ipopi.org/organizations/primary-immunodeficiency-league-2/) - [Fundación Escudo de Amor para las Inmunodeficiencias Primarias (Love Shield for PID Foundation)](https://ipopi.org/organizations/fundacion-escudo-de-amor-para-las-inmunodeficiencias-primarias-love-shield-pid-foundation/) - [Fundación PIDE](https://ipopi.org/organizations/fundacion-ecuatoriana-de-pacientes-con-inmunodeficiencias-primarias/) - [VietPIPS (Vietnam  Primary Immunodeficiency Patient Support Group)](https://ipopi.org/organizations/vietpips-vietnam-primary-immunodeficiency-patient-support-group/) - [Inmunodeficiencias Primarias Venezuela (IDP Venezuela)](https://ipopi.org/organizations/inmunodeficiencias-primarias-venezuela-idp-venezuela/) - [Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias (AUPIDP)](https://ipopi.org/organizations/asociacion-uruguaya-de-pacientes-con-inmunodeficiencias-primarias-aupidp/) - [Rare Immune Diseases (RID)](https://ipopi.org/organizations/rare-immune-diseases-rid/) - [Immun Yetmezlik Dernegi (IMYED)](https://ipopi.org/organizations/immun-yetmezlik-dernegi-imyed/) - [ThaiPOPI](https://ipopi.org/organizations/thaipopi/) - [Primär Immunbrist Organisationen (PIO)](https://ipopi.org/organizations/primaer-immunbrist-organisationen-pio/) - [Asociación española de deficits immunitarios primarios (AEDIP)](https://ipopi.org/organizations/asociacion-espanola-de-deficits-immunitarios-primarios-aedip/) - [Primary Immunodeficiency Network of South Africa (PINSA)](https://ipopi.org/organizations/primary-immunodeficiency-network-of-south-africa-pinsa/) - [Slovenian Society for immune disorders](https://ipopi.org/organizations/slovenian-society-for-immune-disorders/) - [Slovakian Association of Patients with Primary Immunodeficiency](https://ipopi.org/organizations/slovakian-association-of-patients-with-primary-immunodeficiency/) - [Supporting Persons with Primary ImmunoDeficiencies (SPwPID/POsPID)](https://ipopi.org/organizations/supporting-persons-with-primary-immunodeficiencies-spwpidpospid/) - [Association for primary immune deficient patients](https://ipopi.org/organizations/association-for-primary-immune-deficient-patients/) - [Romanian Association for Patients with Primary Immunodeficiencies (ARPID)](https://ipopi.org/organizations/romanian-association-for-patients-with-primary-immunodeficiencies-arpid/) - [Associação Portuguesa de Doentes com Imunodeficiência Primária (APDIP)](https://ipopi.org/organizations/associacao-portuguesa-de-doentes-com-imunodeficiencia-primaria-apdip/) - [Association for Patients with Primary Immunodeficiencies "Immunoprotect"](https://ipopi.org/organizations/association-for-patients-with-primary-immunodeficiencies-immunoprotect/) - [Philippine Patient Organization for Primary Immunodeficiencies (PhilPOPI)](https://ipopi.org/organizations/philippine-patient-organization-for-primary-immunodeficiencies-philpopi/) - [Association of parents of children and adults with primary immunodeficiency of Paraguay (ASPANA IDP)](https://ipopi.org/organizations/association-of-parents-of-children-and-adults-with-primary-immunodeficiency-of-paraguay-aspana/) - [Norwegian Immunodeficiency Organisation](https://ipopi.org/organizations/norwegian-immunodeficiency-organisation-pio/) - [Immunodeficiency Foundation – New Zealand (IDFNZ)](https://ipopi.org/organizations/immunodeficiency-foundation-new-zealand-idfnz/) - [Stichting voor Afweerstoornissen](https://ipopi.org/organizations/stichting-voor-afweerstoornissen/) - [Malaysia Patient Organization of Primary Immunodeficiencies (MyPOPI)](https://ipopi.org/organizations/malaysia-patient-organization-of-primary-immunodeficiencies-mypopi/) - [PID Korea](https://ipopi.org/organizations/pid-korea/) - [PID Tsubasa-no-Kai](https://ipopi.org/organizations/pid-tsubasa-no-kai/) - [Associazione Immunodeficienze Primitive (AIP)](https://ipopi.org/organizations/associazione-immunodeficienze-primitive-aip/) - [Iranian Primary Immunodeficiency Association (IPIA)](https://ipopi.org/organizations/iranian-primary-immunodeficiency-association-ipia/) - [Perhimpunan Pasien Imunodefisiensi Primer Indonesia](https://ipopi.org/organizations/perhimpunan-pasien-imunodefisiensi-primer-indonesia-ppipi/) - [Indian Patients Society for Primary Immunodeficiency (IPSPI)](https://ipopi.org/organizations/indian-patients-society-for-primary-immunodeficiency-ipspi/) - [Lind - Icelandic Immune Deficiency Foundation](https://ipopi.org/organizations/lind-icelandic-immune-deficiency-foundation/) - [HOPI (Hungarian Organization for Patients with Immunodeficiencies)](https://ipopi.org/organizations/hopi-hungarian-organization-for-patients-with-immunodeficiencies/) - [GALINOS - Immune Deficiency Association of Greece](https://ipopi.org/organizations/association-of-greek-friends-for-paediatric-immunology-primary-immunodeficiencies-apmonia/) - [Deutsche Selbsthilfe Angeborene Immundefekte e. V. (DSAI)](https://ipopi.org/organizations/deutsche-selbsthilfe-angeborene-immundefekte-e-v-dsai/) - [Immuno-Deficience Primitive: Recherche, Information, Soutien (IRIS)](https://ipopi.org/organizations/immuno-deficience-primitive-recherche-information-soutien-iris/) - [Immunipuutospotilaiden yhdistys r.y.](https://ipopi.org/organizations/immunipuutospotilaiden-yhdistys-r-y/) - [Estonian Patient Society for Primary Immunodeficiencies](https://ipopi.org/organizations/estonian-patient-society-for-primary-immunodeficiencies/) - [Immun Defekt Foreningen (IDF)](https://ipopi.org/organizations/immun-defekt-foreningen-idf/) - [Cyprus Primary Association and Friends](https://ipopi.org/organizations/cyprus-primary-association-and-friends/) - [Fundación "Diana García de Olarte" para las Inmunodeficiencias Primarias (FIP)](https://ipopi.org/organizations/fundacion-diana-garcia-de-olarte-para-las-inmunodeficiencias-primarias-fip/) - [ImmUnity Canada](https://ipopi.org/organizations/immunity-canada/) - [Association of People with Congenital Immunodeficiency](https://ipopi.org/organizations/association-of-people-with-congenital-immunodeficiency/) - [Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje (POPID)](https://ipopi.org/organizations/udruzenje-za-podrsku-osobama-sa-primarnom-imunodeficijencijom-udruzenje-popid/) - [Fundacion FIDEP-Bolivia](https://ipopi.org/organizations/fundacion-fidep-bolivia/) - [Belgian Patient Organisation for Primary Immunodeficiencies (BePOPI)](https://ipopi.org/organizations/belgian-patient-organisation-for-primary-immunodeficiencies-bepopi/) - [The republican public organisation of patients (parents) with primary immunodeficiency "Save immunity"](https://ipopi.org/organizations/the-republican-public-organisation-of-patients-parents-with-primary-immunodeficiency-save-immunity/) - [Österreichische Selbsthilfegruppe primärer Immum Defekte (ÖSPID)](https://ipopi.org/organizations/osterreichische-selbsthilfegruppe-primarer-immum-defekte-ospid/) - [Asociación Ayuda al Paciente con Inmunodeficiencia Primaria (AAPIDP)](https://ipopi.org/organizations/asociacion-ayuda-al-paciente-con-inmunodeficiencia-primaria-aapidp/) - Asociación Ayuda al Paciente con Inmunodeficiencia Primaria (AAPIDP) - [Schweizerische Vereinigung für Angeborene Immundefekte (SVAI)](https://ipopi.org/organizations/schweizerische-vereinigung-fur-angeborene-immundefekte-svai/) - [The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency](https://ipopi.org/organizations/the-society-of-nada-for-the-support-of-egyptian-patients-with-primary-immunodeficiency/) - [The Immune Deficiency Foundation of Australia (IDFA)](https://ipopi.org/organizations/the-immune-deficiency-foundation-of-australia-idfa/) - The Immune Deficiency Foundation of Australia (IDFA) ## Products - [Gammagard S/D](https://ipopi.org/pid-products/gammagard-s-d-2/) - [Cuvitru](https://ipopi.org/pid-products/cuvitru/) - [Gammagard S/D](https://ipopi.org/pid-products/gammagard-s-d/) - [HyQvia](https://ipopi.org/pid-products/hyqvia/) - [Kiovig](https://ipopi.org/pid-products/kiovig/) - [Beriglobin P](https://ipopi.org/pid-products/beriglobin-p/) - [Octagam](https://ipopi.org/pid-products/octagam/) - [Kedrigamma](https://ipopi.org/pid-products/kedrigamma/) - [Flebogamma® 5% DIF/ Flebogamma® DIF 50mg/ml](https://ipopi.org/pid-products/flebogamma-5-dif-flebogamma-dif-50mgml/) - [Intratect®](https://ipopi.org/pid-products/intratect/) - [Sandoglobulin (lyo)](https://ipopi.org/pid-products/sandoglobulin-lyo/) - [Octagam 10%](https://ipopi.org/pid-products/octagam-10/) - [Bivigam](https://ipopi.org/pid-products/bivigam/) - [Gammaked](https://ipopi.org/pid-products/gammaked/) - [Gamunex®/Gamunex®-C*](https://ipopi.org/pid-products/gamunexgamunex-c/) - [Flebogamma® 10% DIF/ Flebogamma® DIF 100mg/ml](https://ipopi.org/pid-products/flebogamma-10-dif-flebogamma-dif-100mgml/) - [Hizentra](https://ipopi.org/pid-products/hizentra/) - [Privigen](https://ipopi.org/pid-products/privigen/) - [Carimune NF](https://ipopi.org/pid-products/carimune-nf/) - [Gammaplex®](https://ipopi.org/pid-products/gammaplex/) - [IG Vena](https://ipopi.org/pid-products/ig-vena/) - [Nanogam](https://ipopi.org/pid-products/nanogam/) - [Gammanorm](https://ipopi.org/pid-products/gammanorm/) - [Iqymune](https://ipopi.org/pid-products/iqymune/) - [Intratect® 100 g/l](https://ipopi.org/pid-products/intratect-100-gl/) - [Subgam®](https://ipopi.org/pid-products/subgam/) - [Vigam®](https://ipopi.org/pid-products/vigam/) - [Tegeline](https://ipopi.org/pid-products/tegeline/) - [GammaQuin](https://ipopi.org/pid-products/gammaquin/) - [Optiglobin](https://ipopi.org/pid-products/optiglobin/) - [TBSF Human Immunoglobulin](https://ipopi.org/pid-products/tbsf-human-immunoglobulin/) - [INTRAGAM P](https://ipopi.org/pid-products/intragam-p/) - [Redimune](https://ipopi.org/pid-products/redimune/) - [Intragam® IM](https://ipopi.org/pid-products/intragam-im/) - [Polygam ®](https://ipopi.org/pid-products/polygam/) - [Kiovig 10%](https://ipopi.org/pid-products/kiovig-10/) - [Kiovig 5%](https://ipopi.org/pid-products/kiovig-5/) - [Clairyg](https://ipopi.org/pid-products/clairyg/) - [Human Normal Immunoglobulin-VF](https://ipopi.org/pid-products/human-normal-immunoglobulin-vf/) - [TEGELINE Liquid 100 mg/ml](https://ipopi.org/pid-products/tegeline-liquid-100-mgml/) - [Venital](https://ipopi.org/pid-products/venital/) - [Humaglobin (liquid)](https://ipopi.org/pid-products/humaglobin-liquid/) - [Endobulin S/D](https://ipopi.org/pid-products/endobulin-sd/) - [Privigen 1](https://ipopi.org/pid-products/privigen-1/) ## External Events - [FAIS 2026 Congress](https://ipopi.org/external_events/fais-2026-congress/) - [Porto Autoimmune Meeting (PAM) 2026](https://ipopi.org/external_events/porto-autoimmune-meeting-pam-2026/) - [6th International Conference on Lymphocyte Engineering (ICLE)](https://ipopi.org/external_events/6th-international-conference-on-lymphocyte-engineering-icle/) ## Categories - [News](https://ipopi.org/category/news/) - [homepage](https://ipopi.org/category/homepage/) - [Leaflets](https://ipopi.org/category/leaflets/) - [Reviews](https://ipopi.org/category/reviews/) - [Key publications](https://ipopi.org/category/key-publications/) ## Tags - [landscape](https://ipopi.org/tag/landscape/) - [6](https://ipopi.org/tag/6/) - [europe](https://ipopi.org/tag/europe/) - [Nordic PID community](https://ipopi.org/tag/nordic-pid-community/) - [primary immunodeficiencies](https://ipopi.org/tag/primary-immunodeficiencies/) - [patient organisations](https://ipopi.org/tag/patient-organisations/) - [Nordic collaboration](https://ipopi.org/tag/nordic-collaboration/) - [PID advocacy](https://ipopi.org/tag/pid-advocacy/) - [patient support](https://ipopi.org/tag/patient-support/) - [awareness](https://ipopi.org/tag/awareness/) - [National Member Organisations](https://ipopi.org/tag/national-member-organisations/) - [NMO](https://ipopi.org/tag/nmo/) - [community building](https://ipopi.org/tag/community-building/) ## Country - 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[Vietnam](https://ipopi.org/country/vn/) - [Yemen](https://ipopi.org/country/ye/) - [Taiwan](https://ipopi.org/country/twn/) - [Hong Kong](https://ipopi.org/country/hk/) - [Puerto Rico](https://ipopi.org/country/pr/) - [Chile](https://ipopi.org/country/cl/) - [Belgium](https://ipopi.org/country/be/) - [Uganda](https://ipopi.org/country/uganda/) - [South Korea](https://ipopi.org/country/south-korea/) - [Peru](https://ipopi.org/country/peru/) ## Brand - [CSL-Behring](https://ipopi.org/brand/csl-behring/) - [Grifols](https://ipopi.org/brand/grifols/) - [Shire](https://ipopi.org/brand/shire/) - [Bio-Products Laboratory](https://ipopi.org/brand/bio-products-laboratory/) - [CSL Biotherapies](https://ipopi.org/brand/csl-biotherapies/) - [Octapharma](https://ipopi.org/brand/octapharma/) - [Biotest Pharma GmbH](https://ipopi.org/brand/biotest-pharma-gmbh/) - [Kedrion](https://ipopi.org/brand/kedrion/) - [Sanquin](https://ipopi.org/brand/sanquin/) - [LFB](https://ipopi.org/brand/lfb/) - [National Bioproducts Institute](https://ipopi.org/brand/national-bioproducts-institute/) ## Leaflets - [Physicians](https://ipopi.org/leaflets-cat/physicians/) - [Patients](https://ipopi.org/leaflets-cat/patients/)