IPOPI Indonesian PID Conference
Welcome to IPOPI’s Indonesian PID Conference!
This conference offers three meeting days, two for doctors at the Clinical Care Meeting held on June 19-20, and one for PID patients and their close contacts at the PID Patients Meeting on June 26, 2021.
This conference offers three meeting days, two for doctors at the Clinical Care Meeting held on June 19-20, and one for PID patients and their close contacts at the PID Patients Meeting on June 26, 2021.
Doctors Meeting – Day 1, 19 June18.30 – 21.30 hrs // GMT+6 JAKARTA(click on the session to view details) ↓ |
||
1st Session: Opening KeynoteModerator: Ms Martine Pergent |
||
| Time | Presentation | Speaker |
|---|---|---|
| 18.30 | Welcome and opening remarks | Prof Ari Fahrial Syam, Dean of Faculty of Medicine, University of Indonesia
Ms Martine Pergent, IPOPI President Dr Christine Jendrsczok, Kedrion |
| 18.40 | Ethics in Genetic Disease | Dr Nia Kurniati,
Cipto Mangunkusumo Hospital, Faculty of Medicine, Universitas Indonesia
|
| 18.50 | The A to Z of PIDs + Q&A | Dr Nizar Mahlaoui, Chairman IPOPI MAP, Necker Enfants-Malades Hospital, France |
2nd Session: Diagnosis and Management of PIDsModerator: Ms Martine Pergent & Dr Nia Kurniati |
||
| Time | Presentation | Speaker |
| 19:20 | How to recognize PID in adults + Q&A | Prof Martin van Hagen, Vice-Chairman IPOPI MAP, Rotterdam Erasmus University Hospital, Netherlands |
| 19:50 | Diagnosis advances in PIDs – democratizing access to genetic diagnosis + Q&A | Dr Narissara Suratannon, Chulalongkorn University, Thailand |
| 20:15-20:20 | COMFORT BREAK | |
| 20:20 | Future treatment in PIDs: HSCT & Gene Therapy + Q&A | Dr Pamela Lee, The University of Hong Kong |
| 20:45 | The role of IG replacement therapy in treating PIDs + Q&A | Prof Surjit Singh, PGIMER, India |
| 21:10 | Closing statements | Ms Martine Pergent & Dr Nia Kurniati |
Doctors Meeting – Day 2, 20 June18.30 – 21.30 hrs // GMT+6 JAKARTA(click on the session to view details) ↓ |
||
3rd Session: COVID-19Moderator: Ms Martine Pergent |
||
| Time | Presentation | Speaker |
|---|---|---|
| 18.30 | Welcome to the second day | Ms Martine Pergent, IPOPI President |
| 18.40 | COVID-19, PIDs and autoinflammation: where do we stand? + Q&A | Prof Stuart Tangye, Garvan Institute of Medical Research, Australia |
4th Session: PIDs in South East AsiaModerator: Mr Johan Prevot and Dr Evy Yunihastuti |
||
| Time | Presentation | Speaker |
| 19:10 | PID management in South East Asia – Update from SEAPID + Q&A | Dr Adli Ali, Universiti Kebangsaan Malaysia Medical Center, Malaysia |
| 19:35 | PID management in Indonesia + Q&A | Dr Dina Muktiarti, Cipto Mangunkusumo Hospital, Indonesia |
| 20:00-20:05 | COMFORT BREAK | |
| 20:05 | Paediatric case study: PID in Indonesia | Dr Edy Noveri,
Cipto Mangunkusumo Hospital, Faculty of Medicine, Universitas Indonesia
|
| 20:20 | Panel discussion | Dr Nizar Mahlaoui, Prof Martin van Hagen, Dr Adli Ali, Dr Dina Muktiarti |
| 20:35 | Adult case study: PID in Indonesia | Dr Alvina Widhani,
Cipto Mangunkusumo Hospital, Faculty of Medicine, Universitas Indonesia
|
| 20:50 | Panel discussion | Dr Nizar Mahalaoui, Prod Martin van Hagen, Dr Adli Ali, Dr Evy Yunihastuti |
| 21:05 | Closing statements | Ms Martine Pergent & Dr Dina Muktiarti |
Accredited by IDI and IDAI.
Patients Meeting – 26 June16.00 – 18.10 hrs // GMT+6 JAKARTA(click on the session to view details) ↓ |
||
| 1st Session: Opening Keynote
Moderator: Ms Martine Pergent |
||
| Time | Presentation | Speaker |
|---|---|---|
| 16.00 | Welcome and opening remarks | Martine Pergent, IPOPI President
Dimas Adhi Sugiharto, IPIPS Dr Christine Jendrsczok, Kedrion |
| 16.10 | What are PIDs and how do we treat them? + Q&A | Dr Nizar Mahlaoui, Chairman IPOPI MAP, Necker Enfants-Malades Hospital, France |
| 16.40 | PIDs in Indonesia + Q&A | Dr Dina Muktiarti, Cipto Mangunkusumo Hospital, Indonesia |
2nd Session: Workshop – Challenges in daily lifeModerator: Mr Bruce Lim & Mr Dimas Adhi Sugiharto |
||
| Time | Presentation | Speaker |
| 17:05 | Workshop: Challenges in daily life | Introduction – Dimas Adhi Sugiharto, Bruce Lim / MyPOPI
Goup discussion – Dimas Adhi Sugiharto, Bruce Lim, Hendy Wijaya Budijanto IPIPS, Lenny Susanti IPIPS |
| 17:40 | Highlights from group discussion | Hendy Wijaya Budijanto IPIPS, Lenny Susanti IPIPS |
| 17:55 | Meeting challenges with patient advocacy and awareness | Bruce Lim, IPOPI / MyPOPI |
| 18:05 | Closing statements & next steps | Bruce Lim, Martine Pergent |
Pertemuan Pasien – 26 Juni16.00 – 18.10 hrs // GMT+6 JAKARTA
|
||
Sesi pertama: Pembukaan dan Presentasi UtamaPelarai: Ms Martine Pergent |
||
| Time | Presentation | Speaker |
|---|---|---|
| 16.00 | Sambutan dan Pembukaan | Dimas Adhi Sugiharto, IPIPS
Martine Pergent, Ketua IPOPI |
| 16.10 | Apa itu Imunodefisiensi Primer dan bagaimana penangananya? (diikuti sesi tanya jawab) | Dr Nizar Mahlaoui, Ketua Komite Penasehat Medis IPOPI, Necker Enfants-Malades Hospital, Prancis |
| 16.40 | Imunodefisiensi Primer di Indonesia (diikuti sesi tanya jawab) | Dr Dina Muktiarti, Rumah Sakit Cipto Mangunkusumo, Indonesia |
Sesi kedua: Diskusi Pasien mengenai “Kehidupan sehari-hari pasien Imunodefisiensi Primer”Pelarai: Mr Bruce Lim & Mr Dimas Adhi Sugiharto |
||
| Time | Presentation | Speaker |
| 17:05 | Diskusi mengenai tantangan sehari-hari pasien Imunodefisiensi Primer | Pembukaan – Dimas Adhi Sugiharto, Bruce Lim IPOPI / MyPOPI Diskusi terbuka bersama pasien – Dimas Adhi Sugiharto, Bruce Lim, Hendy Wijaya Budijanto IPIPS, |
| 17:40 | Poin-poin penting dari Diskusi pasien | Hendy Wijaya Budijanto, IPIPS, Lenny Susanti, IPIPS |
| 17:55 | Mengatasi Tantangan Edukasi dan Advokasi Imunodefisiensi Primer di Indonesia | Bruce Lim, IPOPI / MyPOPI |
| 18:05 | Penutupan dan Rencana ke depan | Bruce Lim, Martine Pergent |
This meeting is supported by an unrestricted grant from:
