IPOPI Review of Activities and Achievements – 2013

The 2013 IPOPI Review of Activities and Achievements is out and available online!
In this report find out about IPOPI’s activities and achievements during the past year. 2013 was a historical for IPOPI and for the global PID community with great initiatives taking place in all regions of the world.

IPOPI Review of Activities and Achievements – 2013

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IPOPI Patient Needs and Outlooks Study Publication

IPOPI is pleased to announce the publication of its survey manuscript looking at Improving current immunoglobulin therapy for patients with primary immunodeficiency: quality of life and views on treatment. The purpose of this study was to gain an understanding of how existing PID therapies affect patient lives and to identify desired improvements to immunoglobulin treatments.  A total of 300 responded to the survey (72% patients with PID and 28% caregivers) from across 21 countries. The results highlight the importance of providing access to different treatment options and modes of administration to ensure individual patient needs are best met. The manuscript can be found here.

Click here to see the full press release

World Primary Immunodefiencies Week is here!

The 4th edition of World Primary Immunodefiencies Week (WPIW) starts today with the theme “Test! Diagnose! Treat!”. From April 22nd to the 29th join us in a unique global momentum to raise awareness about Primary Immunodeficiencies (PIDs).

This year’s campaign will be really exciting with numerous awareness actions taking place around the globe. Our National Member Organisations are hosting educational events, starting advocacy campaigns, organising family days, and more. Do not forget to share online on our Facebook and Twitter pages all that you have planned for this WPIW.

Visit http://www.worldpiweek.org/ for more information and to download the campaign resources.