IPOPI welcomes the Commission’s proposal for a Regulation on Substances of Human Origin

The International Patient Organisation for Primary Immunodeficiencies…
29th July 2022/by IPOPI
NEWS

International Neonatal Screening Day (INSD) website comes to life!

Visit article
3rd June 2022/by IPOPI
NEWS

Recomb is developing promising gene therapy for RAG1-SCID

Visit article
3rd June 2022/by IPOPI
NEWS

EMA renews IPOPI membership at PCWP

Read more here
12th May 2022/by IPOPI
NEWS

‘Towards Achieving Equity and Innovation in Newborn Screening across Europe’

Screen4Rare collaborations
11th May 2022/by IPOPI
NEWS

IPOPI is ready to play Q-ID!

So what is Q-ID all about?
- a quiz-based app for everyone to play
- a fun and easy game-based learning tool for PIDs
- join in challenging others to beat your score
28th February 2022/by IPOPI
NEWS

Screen4Rare celebrates Rare Disease Day

In light of Rare Disease Day, Screen4Rare advocates the importance of newborn screening (NBS) as a key element to access to care.
28th February 2022/by IPOPI
NEWS

Three new IPOPI PID information leaflets published

- Essentials of PID Diagnosis
- Rheumatological, Autoimmune & Autoinflammatory Crossovers
- Targeted Therapies for PIDs
10th February 2022/by dc
NEWS

New publication presenting the PID environment in 60 countries

New publication: The global PID environment
Read IPOPI’s latest publication on the PID Principles of Care, measured through the PID Life Index
24th November 2021/by IPOPI
News

IPIC 5th Edition – Regular registration is open until 18 April 2022

Regular registration is open until April 18th
10th June 2021/by IPOPI
News

IPOPI’s 2020 Review of Activities and Achievements

GPM, Webinars, PID Forum and more, this past 2020
22nd October 2021/by IPOPI
calendar

8th Sept, 2022

IPOPI 21st PID Forum

Virtual Event

IPOPI

12-15 Oct, 2022

XVII Global Patients’ Meeting 2022

Gothenburg, Sweden

IPOPI

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