IPOPI Autumn e-News is out!

The Autumn 2014 edition of IPOPI’s e-News is out and can be accessed here.
Check out the new section NMO Focus with an article about the Portuguese NMO APDIP and get in touch with our preparation work for the second edition of IPIC2015.

e-News is a quarterly electronic newsletter covering the latest activities and news items from IPOPI as well as other developments from the international PID community.
For information on how to subscribe to e-News, see our e-News webpage.

IPOPI joins Health First Europe

IPOPI is now a member of Health First Europe (HFE). As a follow-up from the participation in HFE’s General Assembly IPOPI requested membership to this alliance of patients, healthcare workers, academics and healthcare experts and the medical technology industry. As a patient organization, IPOPI will bring a first-hand insight of what are the key policy issues for patients suffering from PIDs, such as: the need for investing in prevention and adequate care in order to ensure sustainable healthcare systems, newborn screening or health technology assessment.