IPOPI - International Patient Organisation for Primary Immunodeficiencies IPOPI - International Patient Organisation for Primary Immunodeficiencies
The global patient organisation working to improve the quality of life for people with primary immunodeficiencies.

Purpose

Young Adults are defined as young people from 16 to 25 years of age. Young Adults are the future. It is therefore important:

  • For National Member Organisations (NMOs):
    To involve them to the extend possible in their on-going activities.
  • For IPOPI:
    To listen to the opinions of the Young Adults and as far as possible incorporate their ideas in its reflections.
  • To give the Young Adults an opportunity to exchange points of view by offering a IPOPI Forum for Young Adults on its website.
  • To urge NMOs to let some of their Young Adults participate in the biannual IPOPI meetings.

 

Events

In which Young Adults have taken part

Geneve 2000

Weimar 2002

Versailles 2004

During the biannual meeting in Versailles a small group of YAs ran their own programme including a final report. Pictures...

 

Budapest 2006

9 Young Adults joined the IPOPI/ESID/INGID biennial meeting in Budapest 4th - 7th October 2006.

They had created their own agenda and programme, which included:

  • Workshop on “How can NMOs develop their engagement of Young Adults”, and
  • Workshop on “Travelling with PID”, which was followed by a discussion with people from Baxter.

Friday 6th October was set aside for a day of sightseeing in Budapest under direction of David Pádár, Hungary.

As a result of the discussions the Young Adults have created a special forum, which will be available for YAs representing their NMO. Details for this forum can be obtained from sven@ipopi.org.

The Young Adult programme was generously supported by the World Immunodeficiency Networh (WIN) - Thank you WIN.

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