Early diagnosis and care

Previous IPOPI PID Forums at the European Parliament

8th IPOPI EU PID Forum – Don’t Brexit on Rare Diseases Patients

IPOPI’s 8th Primary Immunodeficiency Forum took place at the European Parliament on January 24 and focused on the impact of Brexit for Rare Diseases patients under the motto Don’t Brexit on Rare Diseases Patients – the case of primary immunodeficiencies. Members of the European Parliament (MEPs) Carlos Zorrinho (S&D, Portugal) and Seb Dance (S&D, UK) chaired the event and MEPs Linda McAvan, Catherine Bearder, Mairead McGuinness, Marian Harkin and Glenis Willmott offered their support to IPOPI’s efforts.

Kindly sponsored by:

7th IPOPI EU PID Forum – Tackling PID care disparities in the EU, October 12, 2016

Kindly sponsored by:

6th IPOPI EU PID Forum – Principles of Care for Primary Immunodeficiencies, December 7, 2015

Kindly sponsored by:

5th IPOPI EU PID Forum – A comprehensive framework of care and policy for PIDs, December 4, 2014

Kindly sponsored by:

4th IPOPI EU PID Forum – Cross-border Healthcare and PIDs, January 29, 2014

Kindly sponsored by:

3th IPOPI EU PID Forum – National Plans for Rare Diseases: Centers of reference and patients’ registries, September 26, 2012

Kindly sponsored by:

2nd IPOPI EU PID Forum – Health Technology Assessments, December 6, 2011

Kindly sponsored by:

1st IPOPI EU PID Forum – SCID Newborn Screening, Brussels, June 15, 2011

Kindly sponsored by: