Member organisations

IPOPI’s National Member Organisations (NMOs), national patient groups that represent the interests of primary immunodeficiencies patients, are the reason for IPOPI’s existence.
IPOPI recognises one national patient group per country.

Argentina Asociación Ayuda al Paciente con Inmunodeficiencia Primaria (AAPIDP)

Address

Roberta Anido de Pena

Bollini 2157

Capital Federal Bs. As

Codigo Postal 1425

Argentina

Email/Web

Roberta@ipopi.org 

info@aapidp.com.ar 

www.aapidp.com.ar

Phone

+54 011 4805 4052

+54 9 11 4415 4415

Australia The Immune Deficiency Foundation of Australia (IDFA)

Address

Christine Jeffery

Executive Officer IDFA

Address: PO Box 969 Penrith NSW 2751

5 North Circle Blaxland NSW 2774

Australia

Email/Web

christine.jeffery@idfa.org.au

info@idfa.org.au

www.idfa.org.au

Phone

Office: 1800 100 198

Mobile: 0409 945 114

Austria Österreichische Selbsthilfegruppe primärer Immum Defekte (ÖSPID)

Address

Karin Modl 

Eichkogelstraße 7 

3004 Riederberg 

Österreich 

Email/Web

modl.karin@gmx.at 

www.oespid.at

Phone

0664/1830169 

Fax 02271/26146 

Belarus The republican public organisation of patients (parents) with primary immunodeficiency “Save immunity”

Address

Ekaterina Shatuho

Minsk, st. Voronyanskogo 50/4-188 of. 212

Belarus

Belgium Belgian Organisation for Patients with Primary Immunodeficiencies (BOPPI)

Address

Edith Klapwijk: President

5 rue d’Anseroeul

7760 Escanaffles

Belgium

Bolivia Fundacion FIDEP-Bolivia

Bosnia and Herz. Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje (POPID)

Address

Dzenita Subasic: Founder

Sarajevo, Trg Heroja, 30, Bosnia & Harzegovina

Email/Web

dzenita.subasic@sos-ds.ba

Phone

+387-66-910 677

Brazil ANPIC (Associação Nacional dos Portadores de Imunodeficiência Primária Congênita)

Address

Alexandre Fonseca: Communications Director

Alameda Alváro Celso, 241, Centro. Belo Horizonte - Minas Gerais

Bulgaria Association of People with Congenital Immunodeficiency

Address

Stoil Lazarov: President

Dr. Nedelcho Hadjinikolov: Vice-President and contact person

3, Javoretz str., vh. B 1164, Sofia, Bulgaria

Email/Web

stoil_lazarov@abv.bg

nhadjinikolov@abv.bg

Phone

+359 888 97 87 22

Canada Canadian Immunodeficiencies Patient Organisation (CIPO)

Address

CIPO

c/o Erin Harder

25 La Grange Street

R3V 1J1 Winnipeg, MB

Canada

Email/Web

Info@cipo.ca

www.cipo.ca

Phone

1-877-607-CIPO (2476) Toll free line

Chile Chilean Association for Support of Patients with Primary Inmunodeficiencies (Life for Life)

Address

Roberto Velasquez Fernandez: President

Callao 3380. Las Conds, Santiago, Chile 

Email/Web

vidaporlavida@gmail.com

Phone

562.2337932 

Fax 562.2342043 

Colombia Fundación “Diana García de Olarte” para las Inmunodeficiencias Primarias (FIP)

Address

Carolyn Álvarez: Secretary

Carrera 43C #9-21 Ed. Modulor 

Medellin

Colombia (South America) 

Email/Web

fundacionfip@gmail.com

www.fundacionfip.org.co

Phone

(57) 4-266-4534 

Mobile: (57) 314-864-6956

Cyprus Cyprus Primary Association and Friends

Address

Maria G. Charalambous

Kalli Sakka 5

Parisinos - Strovolos

Nicosia 2066

Cyprus

Email/Web

Maria.g.charalambous@cyta.com.cy

Phone

0035 722 453630

Fax 0035 722 453 631

Denmark Immun Defekt Foreningen (IDF)

Address

Jette Agerholm Olsen: President

Østparken 83

6840 Oksbøl

Email/Web

formand@idf.dk

www.idf.dk

Phone

+45 60 45 20 13

Egypt The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency

Address

Shereen Reda, Professor of Pediatrics, Faculty of Medicine, Ain Shams University

Nada Society 

Room 5, ground floor of Children’s Hospital at Faculty of Medicine- Ain Shams University, Abbassya, Cairo 1156, Egypt

Email/Web

shereen.m.reda@gmail.com

Phone

+202 24187440

+202 24187440

Estonia Estonian Patient Society for Primary Immunodeficiencies

Address

Juhan Liiva

Finland Immunipuutospotilaiden yhdistys r.y.

Address

Janika Sundström: Chairman

Läpisuontie 12

02780 Espoo

FINLAND

France Immuno-Deficience Primitive: Recherche, Information, Soutien (IRIS)

Address

Estelle Pointaux: Chairperson

Virginie Grosjean: Executive Director

Association IRIS

195 avenue Victor Hugo - 54200 Toul

France

Email/Web

info@associationiris.org

www.associationiris.org

Phone

Office: +33 3 29 83 48 34 

Mobile: +33 6 43 78 50 34

Germany Deutsche Selbsthilfe Angeborene Immundefekte e. V. (DSAI)

Address

Gabriele Gruendl

Hochschatzen 5

D-83 530 Schnaitsee

Germany

Greece Association of Greek Friends for Paediatric Immunology – Primary Immunodeficiencies (APMONIA)

Address

Christos Manolakakis 

14 Romanou Melodou Str.

11471 Athens 

Greece 

Hong Kong Primary Immunodeficiency League

Address

Gary But: President

Geoffrey Yu: Vice-President

Dept. of pediatrics & adolescent medicine

Room 115, New Clinical Building, Queen Mary Hospital, Pokfulam, Hong Kong

Hungary HOPI (Hungarian Organization for Patients with Immunodeficiencies)

Address

Monika Apati Nagy: President

Zsuzsa Horváth: Vice-President and contact person

Nagyerdei Krt.

98. 4032 Debrecan

Hungary

Iceland Lind – Icelandic Immune Deficiency Foundation

Address

Gudlaug Bjarnadottir

Spitalastigur 8

IS-101 Reykjavik

Email/Web

gmb@bhs.is

Onaemisgalli@onaemisgallar.is

Phone

+354 698 88 06

India Indian Patients Society for Primary Immunodeficiency (IPSPI)

Address

Rubby Chawla: Predident

PLOT NO. 36, SWARNAPURI,PATIA,C.S.PUR,

BHUBANESWAR(ORISSA)-751075

Email/Web

rubbychawla@ipspiindia.org

rubbyipspi@rediffmail.com

www.ipspiindia.org

Phone

Tel/Fax: 0674-2726402 (O)

+91 98611 85656 (M)

Indonesia Perhimpunan Pasien Imunodefisiensi Primer Indonesia (PPIPI)

Address

Contact person: Dina Muktiarti, MD

Iran, Islamic Republ Iranian Primary Immunodeficiency Association (IPIA)

Address

Nima Rezaei, MD, PhD

Research Center for Immunodeficiencies

Children's Medical Center - Dr Gharib St, Keshavarz Blvd

Tehran 14194, Iran

Ireland Irish Primary Immunodeficiency Organisation (IPIA)

Italy Associazione Immunodeficienze Primitive (AIP)

Address

Andrea Gressani

Associazione Imunodeficienze Primitive onlus

Via Galvani, 18

25123 Brescia - Italy

Email/Web

info@aip-it.org

www.aip-it.org

Phone

+39-030-3386557

Address

Kohsuke IMAI, M.D., Ph.D. 

Associate Professor - Department of Community Pediatrics, Perinatal and Maternal Medicine

Tokyo Medical and Dental University

1-5-45, Yushima, Bunkyo-ku, Tokyo

Email/Web

kimai.ped@tmd.ac.jp

npo-pidtsubasa.org

Phone

+81-3-5803-4082

Fax +81-3-5803-0378

Malaysia Malaysia Patient Organization of Primary Immunodeficiencies (MyPOPI)

Address

Mr. Bruce Lim Wee Diong: President 

Jabatan Pediatrik, Pusat Perubatan Universiti Kebangsaan Malaysia

Jalan Yaacob Latiff, 56000 Bandar Tun Razak, Kuala Lumpur, Malaysia

Mexico Fundacion Mexicana para Ninas y Ninos con Immunodeficiencias Primarias, A.C. (FUMENIP)

Address

Mayela García Ramírez

Vialidad de la Barranca S/N - Manzana 2 Lote 1

Colonia Valle de las Palmas - Estado de Mexico

C.P. 52 787

Mexico

Morocco Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitifs

Address

Bousfiha Ahmed Aziz

Number 60, Street 2 

District Miamer 

Casablanca 

Email/Web

Aabousfiha@menara.ma 

http://hajar-maroc.org/

Phone

+212 61 431062 

Netherlands Stichting voor Afweerstoornissen

Address

Kees Wass: Secretary 

Burg Krygsmangeerde 27

AV Raamsdonksveer

4942

The Netherlands

New Zealand Immunodeficiency Foundation – New Zealand (IDFNZ)

Address

IDFNZ

PO Box 75-076, Manurewa

Auckland

Manukau 2243

New Zealand

Email/Web

info@idfnz.org.nz 

www.idfnz.org.nz

Phone

+64 9 528 6212 

Norway Norwegian Immunodeficiency Organisation (PIO)

Address

Eva Brox

Borgundvegen 478

6015 Ålesund

Norway

Paraguay Association of parents of children and adults with primary immunodeficiency of Paraguay (APANID)

Address

Guillermo Espinola: President

Paraguay (Associate NMO)

Email/Web

guillermo.espinola08@gmail.com

Phone

+595 0973 800 807

Peru Asociacion Peruana de Ayuda al Inmunodeficiente Primario (ASPAIP)

Address

Luciana Salcedo: President 

San Juan de Miraflores,

Urb Valle SaronCal. las Lilas 584.

LimaPeru 00511

Peru

Philippines Philippine Patient Organization for Primary Immunodeficiencies (PhilPOPI)

Address

Dindin Shenna Villena: President

Bolbok Bantagas City, Philippines

Philippines (Associate NMO)

Poland Association for Patients with Primary Immunodeficiencies “Immunoprotect”

Address

Izabela Morawska: Volunteers' coordinator

Stowarzyszenie IMMUNOPROTECT

ul. Okręgowa 64

93-367 Łódź 

Poland

Portugal Associação Portuguesa de Doentes com Imunodeficiência Primária (APDIP)

Address

President: Ricardo Pereira

Portugal

Puerto Rico APIP – Puerto Rico Alliance of PID patient

Address

Blanca Imbert, Chairperson

Puerto Rico (Associate NMO)

Romania Romanian Association for Patients with Primary Immunodeficiencies (ARPID)

Address

Baldea Artemiza – President; Neacsu Stefania Larisa – Secretary; Posea Ana-Maria – Vice-President 

Matei Basarab Street, no.10 A, building 37, entrance B, apartment 6

Timisoara, Timis County

Romania 

Email/Web

general_praxis@yahoo.com

arpid_life@yahoo.com

http://arpid.ro/

Phone

0040 743 078 143

0040 756 060 718

Russia OPPID

Address

Violetta Kozhereva

Russian Federation

Email/Web

9972836@gmail.com

www.oppid.ru

Phone

+7 (985) 997-28-36

S. Korea PID Korea

Address

Contact person: Jungwoo Park

Address: 429-23 Hyundai-Village B-1, Wolgye-dong, Nowon-gu, Seoul, Korea

Senegal Association sénégalaise des déficients immunitaires primitifs (ASDIP)

Address

Prof Tandakha Dieye

Université Cheikh Anta Diop Dakar (UCAD)

Service d’Immunologie CHNU A le Dantee

Senegal (Associate NMO)

Email/Web

tandakha.dieye@ucad.edu.sn

Phone

+221 7765 77054

Serbia Supporting Persons with Primary ImmunoDeficiencies (SPwPID/POsPID)

Address

Dragana Koruga

O. Zapanica 12/38

SRB -11070 New Belgrade

Serbia

Slovakia Slovakian Association of Patients with Primary Immunodeficiency

Address

Dr Katarina Fedorova

Slovakia

Slovenia Slovenian Society for immune disorders

Address

Tadej Avcin: President

Bohoričeva 20

SI-1000 Ljubljana

Slovenia

Email/Web

drustvo@imuno.si

www.imuno.si

Phone

38615229277

South Africa Primary Immunodeficiency Network of South Africa (PINSA)

Address

Joy Rosario: Chair

P.O. Box 95532

Pretoria

Waterkloof 0181

South Africa

Email/Web

pinsahelp@mweb.co.za

www.pinsa.org.za

Phone

+27 082 365 4663

Spain Asociación española de deficits immunitarios primarios (AEDIP)

Address

Carlos Jimenez: President

Avda. Pompeu i Fabra, 10-1-E

08024 Barcelona

Spain

Sweden Primaer Immunbrist Organisationen (PIO)

Address

Maria Monfors: Chair

Anneli Larsson: Executive Director

Mellringevaegen 120 B

S-703 53 Oerebrro

Sweden

Email/Web

maria.monfors@pio.nu

www.pio.nu

Phone

+46 19 673 21 24

Switzerland Schweizerische Vereinigung für Angeborene Immundefekte (SVAI)

Address

Sergio Vassalli

Postfach 1089

Baslerstr. 141

CH-8048 Zürich

Switzerland

Email/Web

sergio.vassalli@svai.ch sandra.vassalli@svai.ch 

info@svai.ch

www.svai.ch

Phone

+41 44 4353 800 (day time); +41 43 8171 717 (home)

+41 44 4353 808 (fax)

Thailand ThaiPOPI

Address

Contact person: Dr. Narissara Suratannon

Thailand

Email/Web

mayzped@gmail.com

www.facebook.com/ThaiPOPI-286499001528863/

Phone

662564951

Mobile: +66812950190

Turkey Immun Yetmezlik Dernegi (IMYED)

Address

Selcan Kaya

Unalan Mah. Ulgen sok. No:14/1

Uskudar / İstanbul

Turkey

Email/Web

info@imyed.org.tr

selcankaya@yahoo.com

www.imyed.org.tr

Phone

0216 523 60 60 /145

Mobile: 0535 736 81 33

Uganda UPPID

Address

Winnie Namara

Uganda (Associate NMO)

Ukraine Rare Immune Diseases (RID)

Address

Halyna Pavuk

Street Kiltseva Road 5, app 69,

Kiev, Ukraine

Ukraine

Email/Web

imunodefekt@gmail.com

ngo-rid.com

Phone

+38 (044) 515-54-85

United Kingdom Primary Immunodeficiency UK (PID UK)

Address

Contact: Susan Walsh, Director

United Kingdom

Email/Web

hello@piduk.org

www.piduk.org

Phone

0800 097 8986

United States Immune Deficiency Foundation (IDF)

Address

President: Marcia Boyle

110 West Road, Suite 300

Towson

MD 21204

United States of America

Email/Web

Idf@primaryimmune.org

www.primaryimmune.org

Phone

410-321-6647

+1 800 296 4433

Uruguay Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias (AUPIDP)

Address

María Isabel Sánchez: President

Hudson 4591 bis, Montevideo, Uruguay

Uruguay

Venezuela Inmunodeficiencias Primarias Venezuela (IDP Venezuela)

Address

Chairman: César Pérez Maldonado

Urb. Campo Claro.

Terrazas de Sol. Casa 46.

5151, Mérida

Venezuela

Viet Nam VietPIPS (Vietnam  Primary Immunodeficiency Patient Support Group)

Address

Dr Thuc Thanh Huyen

Vietnam