IPOPI 25th Anniversary

IPOPI is celebrating its 25th Anniversary and we are pleased to celebrate this major milestone with the extended primary immunodeficiencies (PIDs) community!
IPOPI is grateful to many people and many organisations who have been part of IPOPI’s success story. In particular, we would like to thank Bob LeBien, who had the vision and global thinking to create IPOPI which represents this fantastic community that is the extended primary immunodeficiencies family.
Since its inception, IPOPI grew tremendously. Eight years ago, IPOPI had 30 national member organisations, nowadays we represent 61 patient groups, from across the world, and the family keeps growing.
A lot has been accomplished but there is still a lot to be done, not only for the patients but with their involvement. IPOPI is extremely busy in all regions of the world, greatly contributing to increased awareness of primary immunodeficiencies globally. With a new Board of Directors and a larger staff IPOPI is more than ever committed to building an improved global framework of care for our patients’ community.

New website

To celebrate IPOPI’s 25th Anniversary a new IPOPI.org website is being launched. The new website is modern looking and easy to navigate on mobile devices, includes all IPOPI news, publications (leaflets, ebooks, recommendations, papers, etc), events, campaigns and, importantly, the IPOPI PID Map. With this new feature you can find information on PID diagnosis, treatment and patient support from all over the world.

Historical highlights

1992

  • IPOPI is created

1996

  • First staff member is hired and publication of a quarterly newsletter

2003

  • Immunoglobulins are removed from the World Health Organization (WHO) List of Essential Medicines (EML).

2004

  • IPOPI first high-level EU meeting at European Parliament’s Scientific and Technological Assessment Options Committee (STOA)

2005

  • David Watters becomes IPOPI Executive Director.

2006

  • IPOPI’s European PID Consensus Conference in 2006 in Langen, Germany.

2007

  •  Immunoglobulins are reinstated in the World Health Organization (WHO) List of Essential Medicines (EML) following IPOPI/ International Union of Immunological Societies (IUIS) joint campaign in collaboration with key stakeholders.
  • IPOPI is accepted as a member of the WHO Global Collaboration on Blood Safety.

2010

  •  IPOPI expands its staff. Johan Prevot joins as Director of Development.

2011

  • First IPOPI EU PID Forum is held. SCID newborn screening is discussed at the European Parliament.
  • IPOPI reaches 30 national member organisations.

2012

  • Asian development plan is created thank to a generous grant from one of IPOPI’s founders, Bob LeBien.

2013

  • First International Primary Immunodeficiencies Congress – IPIC – is held in Estoril, Portugal

2014

  • Publication of the Principles of Care for Primary Immunodeficiencies paper on Frontiers of Immunology 

2015

  •  IPIC2015 takes place in Budapest, Hungary, with 700 participants.

2016

  •  IPOPI reaches 60 National Member Organisations.

In the pipeline

  • IPIC2017 in Dubai
  • IPOPI XV Biennial Meeting in Lisbon in 2018
  • Increased PID awareness in remote regions of the world