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National Member Organisations of IPOPI

National Members Organisations’ Skills Manual (PDF)

The following is a list of Member Organisations and International Support Groups.

Argentine Association Ayuda al Paciente con IDP
(AAPIDP)
Roberta Pena
Gallo 1553, 4 A
Capital Federal Bs. As
Argentina
Codigo Postal 1425
+54 0115 778 2570
+54 15 944154415


www.aapidp.com.ar
Australia The Immune Deficiency Foundation of Australia
(IDFA)

Michael Daniels
IDFA
PO Box 198
Willawood NSW 2163
Australia
+61 (0) 432 282  729

General Manager: Cathryn Baker

www.idfaustralia.org

Canada

Canadian Immunodeficiencies Patient Organisation
(CIPO)

Tina Morgan
362 Concesion 12 East
Rural Route 2
Hastings
KOL 1YO Ontario
Canada
+1 877 262 2476 (CIPO)

www.cipo.net

Denmark

Immun Defekt Foreningen
(IDF)

Sven Fandrup
Birkeengen 96
DK-2740 Skovlunde
Denmark
+45 44 61 03 81

www.idf.dk

Estonia

Estonian Patient Society for Primary Immunodeficiencies

Mrs. Janne Remmel
Niine 37
Haapsalu 90506
Estonia
+372 5143 891

Finland

Immunipuutospotilaiden yhdistys r.y.

Anna Ristsatama
+358 40 737 5909

France

Immuno-Deficience Primitive: Recherche, Information, Soutien
(IRIS)

Francis Rembert
Association IRIS
BP 72 55 102 Verdun cedex
France
+33 03 29 83 48 34

www.associationiris.org

Germany

Deutsche Selbsthilfe Angeborene Immundefekte e. V.
(DSAI)

 

Mrs. Gabriele Gruendl
Hochschatzen 5
D-83 530 Schnaitsee
Germany
+49 08074 8164


www.dsai.de

 

Interessengemeinschaft Menschen mit Immundefecten e. V, Berlin

 

Gabriele Hoehnke
Schoenburgstrasse 11
D-12103 Berlin
+49 030 75 14077

www.immundefekte.de

Hungary Foundation for Immunodeficient Children Dr. Melinda Erdos
Phone: +36 52416841
Fax: +36 52430323

Iceland

Lind - Icelandic Immune Deficiency Foundation

Juliana Hansdottir
Hjallahlid 19b
IS - 270 Mosfellsbaer
Iceland
+354 566 8701

India

 

Indian Patients Society for Primary Immunodeficiency
(IPSPI)

Mrs. Rubby Chawla
H/7 2nd Floor Civil Township
Rourkela (769004 Orissa)
India
Phone: +91 (0)661 2401456



Iran

Iranian Primary Immunodeficiency Association
(IPIA)

Asgar Aghamohammadi
Immunology, Asthma and Allergy Research Institute
Childrens´ Medical Center
No. 62 Dr. Gharib St., Keshavarz Blvd
Teheran 14194
Iran
P.O.Box 14185-863
+98 21 693 58 55

www.iranianpia.org

Ireland

Primary Immunodeficiency Association Ireland
(PIAI)

Maria Nolan
Topfield
Clonegath
Fenagh
Bagenalstown
Ireland
Co. Carlow
+353 59 9727 332

Italy

Associazione Immunodeficienze Primitive
(AIP)

Bianca Pizzera
Via Vittorio Vento 8
28041 Arona (NO)
Italy

www.aip-it.org

Morocco

Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitfs

Ahmed Aziz Bousfiha
+212 61 431062

www.hajar.org.ma

New Zealand

Immunodeficiency Foundation – New Zealand
(IDFNZ)

IDFNZ
PO Box 75-076, Manurewa
Auckland
New Zealand
+64 9 528 6212

www.idfnz.org.nz

Norway

Norwegian Immunodeficiency Organisation

Eva Brox
Brunholmgt. 3A
N-6004 Aalesund
Norway
+47 70 12 83 88

Poland

Association for Friend of Children with Primary Immunodeficiency

Maria Bukaty
Matuskiewicz
Ul. Mielczarskiego 1/86
02-798 Warszawa
Poland
+48 22 649 32 87

South Africa

Primary Immunodeficiency Network of South Africa
(PINSA)

Joy Rosario
Suite 236
Private Bag X10
Musgrave 4062
South Africa
+27 031 312 1483

www.pinsa.org.za

Spain

Asociation espanola deficits immunitarios primarios
(AEDIP)

Nieves Moreno
629734788

www.aedip.com

Sweden

Primaer Immunbrist Organisationen
(PIO)

Anneli Larsson
Mellringevaegen 120 B
S-703 53 Oerebrro
Sweden
+46 19 673 21 24

www.pio.nu

Switzerland

Schweizerische Vereinigung für Angeborene Immundefekte
(SVAI)

Sergio Vassalli
Postfach 1089
Baslerstr. 141
CH-8048 Zürich
Switzerland
+41 44 4353 800 (Day time)
+41 43 8171 717 (home)
+41 44 4353 808 (fax)

The Netherlands

Stichting voor Afweerstoornissen

Kees Waas
Burg Krygsmangeerde 27
4942 AV Raamsdonksveer
The Netherlands
+ 31 162 517 210

www.stichtingvoorafweerstoornissen.nl

United Kingdom

The Primary Immunodeficiency Association
(PIA)

Chris Hughan
Alliance House
12 Caxton Street
London SW1H 0QS
England
+44 207 976 7640

www.pia.org.uk

United States of America

Immune Deficiency Foundation
(IDF)

Marcia Boyle
40 West Chesapeake Avenue (Suite 308)
Towson
MD 21204
USA
+1 800 296 4433

www.primaryimmune.org

 

Jeffrey Modell Foundation
(JMF)

Vicki & Fred Modell
747 Third Avenue – 34th Floor,
New York, New York 10017
USA
+1 212 819 0200

www.info4pi.org

Yugoslavia
(Serbia-Montenegro)

Jugoslovenska organizacija za primaru immunodeficijenciju
(YUGOPID)

Dragana Koruga
O. Zapanica 12/38
YU-11070 New Belgrade
+381 11 602 030

Please notify David Watters, IPOPI, of any changes, alterations or omissions, Email: .

 
 

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