The following is a list of Member Organisations and International
Support Groups.
| Argentine |
Association Ayuda al Paciente con IDP
(AAPIDP) |
Roberta Pena
Gallo 1553, 4 A
Capital Federal Bs. As
Argentina
Codigo Postal 1425
+54 0115 778 2570
+54 9 11 4415 4415
www.aapidp.com.ar |
| Australia |
The Immune Deficiency Foundation
of Australia
(IDFA) |
Cathryn Baker
General Manager
IDFA
PO Box 149
Stroud NSW 2425 Australia
+61 2 49945118
www.idfaustralia.org |
Austria
(Associate NMO) |
Österreichische Selbsthilfegruppe primärer Immum Defekte (ÖSPID) |
Karin Modl
Eichkogelstraße 7
3004 Riederberg
Österreich
0664/1830169
Fax: 02271/26146
www.oespid.at |
Belgium
(Associate NMO) |
Belgian Organisation for Patients with Primary Immunodeficiencies (BOPPI) |
Mark Bouamoud
Velleke 13
2440 Geel
+32479013713
|
Brazil
(Associate NMO) |
Assossiação Brasileira de Imunodeficiência (ABRI) |
Tatiana C Lawrence
Rua Santa Justina, 222
CEP 04545041
+55 11 81967837
www.abri.com.br |
| Canada |
Canadian Immunodeficiencies
Patient Organisation
(CIPO) |
Tina Morgan
362 Concesion 12 East
Rural Route 2
Hastings
KOL 1YO Ontario
Canada
+1 877 262 2476 (CIPO)
www.cipo.net |
Colombia
(Associate NMO) |
Fundación "Diana García de Olarte" para las Inmunodeficiencias Primarias (FIP) |
Carolyn Álvarez, Secretary
Carrera 43C #9-21 Ed. Modulor
Medellin
Colombia (South America)
011 (574) 266-4534
Fax: 011 (574) 219-6472
Cell: 011 +57 (314) 864-6956
www.fundacionfip.org.co |
| Cyprus |
Cyprus Primary Association and Friends |
Maria G. Charalambous
Kalli Sakka 5
Parisinos
Strovolos
Nicosia 2066
Cyprus
Phone: 0035 722 453630
Fax: 0035 722 453 631
|
| Denmark |
Immun Defekt Foreningen
(IDF) |
Sven Fandrup
Birkeengen 96
DK-2740 Skovlunde
Denmark
+45 44 61 03 81
www.idf.dk |
| Estonia |
Estonian Patient
Society for Primary Immunodeficiencies |
Mrs. Janne Remmel
Niine 37
Haapsalu 90506
Estonia
+372 5143 891
|
| Finland |
Immunipuutospotilaiden yhdistys r.y. |
Tatu Kulmala
Nälkänummentie 19
FI-21250
Phone: +358 5052053
|
| France |
Immuno-Deficience
Primitive: Recherche, Information, Soutien
(IRIS) |
Francis Rembert
Association IRIS
BP 72 55 102 Verdun cedex
France
+33 03 29 83 48 34
www.associationiris.org |
| Germany |
Deutsche Selbsthilfe
Angeborene Immundefekte e. V.
(DSAI)
|
Mrs. Gabriele Gruendl
Hochschatzen
5
D-83 530 Schnaitsee
Germany
+49 08074 8164
www.dsai.de |
Greece
(Associate NMO) |
|
|
| Hungary |
Foundation for Immunodeficient
Children |
Katakin Erdös
Debreceni Egyetem OEC
Department of Infectious and Pedietric Immunology
Nagyerdei krt. 98
4032 Debrecen
Phone: +36 52416841
Fax: +36 52430323
|
| Iceland |
Lind - Icelandic Immune Deficiency Foundation |
Gudlaug Bjarnadottir
Spitalastigur 8
IS-101 Reykjavik
Phone: +354 698 88 06
|
| India
|
Indian Patients
Society for Primary Immunodeficiency
(IPSPI) |
Mrs. Rubby Chawla
H/7 2nd Floor Civil Township
Rourkela (769004 Orissa)
India
Phone: +91 (0)661 2401456
|
| Iran |
Iranian Primary
Immunodeficiency Association
(IPIA) |
Asgar Aghamohammadi
Immunology, Asthma and Allergy Research Institute
Childrens´ Medical Center
No. 62 Dr. Gharib St., Keshavarz Blvd
Teheran 14194
Iran
P.O.Box 14185-863
+98 21 693 58 55
www.iranianpia.org |
| Ireland |
Primary Immunodeficiency
Association Ireland
(PIAI) |
Maria Nolan
Topfield
Clonegath
Fenagh
Bagenalstown
Ireland
Co. Carlow
+353 59 9727 332
|
| Italy |
Associazione Immunodeficienze
Primitive
(AIP) |
Andrea Gressani
Via Medolo, 2
25123 Brescia (BR)
Italy
+39-030-3386557
www.aip-it.org |
Japan
(Associate NMO) |
PID Tsubasa-no-Kai |
Kohsuke IMAI, M.D., Ph.D.
Associate Professor
Department of Medical Informatics
Department of Pediatrics
National Defense Medical College
3-2, Namiki, Tokorozawa,
Saitama, 359-8513,
Japan
+81-4-2995-1621
Fax: +81-4-2996-5204
npo-pidtsubasa.org |
Mexico
(Associate NMO
as of 20-05-2009) |
Fundacion Mexicana para Ninas y Ninos con Immunodeficiencias Primarias, A.C.
(FUMENIP) |
Eva Margarita Solorzano
Vialidad de la Barranca S/N
Manzana 2 Lote 1
Colonia Valle de las Palmas
Estado de Mexico
C.P. 52 787
Mexico
+52 55 5546 4130
www.fumenip.org.mx |
| Morocco |
Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitfs |
Bousfiha Ahmed Aziz
Number 60, Street 2
District Miamer
California
Casablanca
+212 61 431062
www.hajar.org.ma |
| The Netherlands |
Stichting voor
Afweerstoornissen |
Kees Waas
Burg Krygsmangeerde 27
4942 AV Raamsdonksveer
The Netherlands
+ 31 162 517 210
www.stichtingvoorafweerstoornissen.nl |
| New Zealand |
Immunodeficiency
Foundation – New Zealand
(IDFNZ) |
IDFNZ
PO Box 75-076, Manurewa
Auckland
New Zealand
+64 9 528 6212
www.idfnz.org.nz |
| Norway |
Norwegian Immunodeficiency
Organisation |
Eva Brox
Brunholmgt. 3A
N-6004 Aalesund
Norway
+47 70 12 83 88
|
| Poland |
Association for
Friend of Children with Primary Immunodeficiency |
Maria Bukaty
Matuskiewicz
Ul. Mielczarskiego 1/86
02-798 Warszawa
Poland
+48 22 649 32 87
|
| Serbia |
Supporting Persons with Primary Immunodeficiency (SPwID) |
Dragana Koruga
O. Zapanica 12/38
YU-11070 New Belgrade
+381 11 602 030
|
| South Africa |
Primary Immunodeficiency
Network of South Africa
(PINSA) |
Joy Rosario
P.O. Box 95532
Waterkloof 0181
Pretoria
South Africa
+27 082 365 4663
www.pinsa.org.za |
| Spain |
Asociation espanola de deficits immunitarios primarios
(AEDIP) |
Jose Gonzales
Avda. Pompeu i Fabra, 10-1-E
08024 Barcelona
www.aedip.com |
| Sweden |
Primaer Immunbrist
Organisationen
(PIO) |
Anneli Larsson
Mellringevaegen 120 B
S-703 53 Oerebrro
Sweden
+46 19 673 21
24
www.pio.nu |
| Switzerland |
Schweizerische
Vereinigung für Angeborene Immundefekte
(SVAI) |
Sergio Vassalli
Postfach 1089
Baslerstr. 141
CH-8048 Zürich
Switzerland
+41 44 4353 800 (Day time)
+41 43 8171 717 (home)
+41 44 4353 808 (fax)
www.svai.ch |
| United Kingdom |
The Primary Immunodeficiency
Association
(PIA) |
Chris Hughan
Alliance House
12 Caxton Street
London SW1H 0QS
England
+44 207 976 7640
www.pia.org.uk |
| United States
of America |
Immune Deficiency
Foundation
(IDF) |
Marcia Boyle
40 West Chesapeake Avenue (Suite 308)
Towson
MD 21204
USA
+1 800 296 4433
www.primaryimmune.org |
| |
Jeffrey Modell
Foundation
(JMF) |
Vicki & Fred Modell
747 Third Avenue – 34th Floor,
New York, New York 10017
USA
+1 212 819 0200
www.info4pi.org |
Please notify David Watters, IPOPI, of any changes, alterations
or omissions, Email:
.
